Post Traumatic Epilepsy; Can It Stop!? Posted: 12-26-04 12:27pm
Hi
in 1994 I had an accident with quite an
injury to my head. I was in hospital for
four days.
More than a year later I had my first
attack (a grand mall seizure). The
frequency of my attacks has got lower
through time but hasn't changed much in
last couple of years. I take 400mg of
tegratol cr a day at the most, and I can
go for half a year without an attack.
Then there are times when they can be a
month appart.
My big question:
can these attacks just stop, or change the
shape of the attack (that it may not be
grand mall, but some other type of
attack). Or do I just have to wait as
the frequency of the attacks becomes lower
& lower.
Does anyone have any experiences to share
with me.
Is there hope for me
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
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Posted: 12-26-04 15:48pm
So sorry you had this all start with a
head injury. They sure can change in type
and frequency. It helps if you can keep
the triggers low, lack of sleep, stress,
poor diet, not taking medications on time
or consistently all can increase the
chances to seize.
Sometimes when you do everything right
they still come...You can talk to your
doctor to see if it is worth trying a
different medication to see if they can be
better controlled. Trileptal is in the
tegretol family and some find it more
tolerable ...
Hang in there. Read up and learn all you
can to be the best advocate for yourself
to get the best treatment. Hope you can
get them better controlled.
|
shorty1825
New User, Becoming EHEALTHy
Joined: 22 Feb 2006 Posts: 27
Post Trama - Seizures Posted: 05-24-06 12:38pm
So sorry to hear this. I understand how
you feel, a bit. I also was involved in
a car accident in 1980 in which I received
head injuries. I hit my head on my
stearing wheel - it left a bruise where it
hit.
Soon after this accident I started having
these "seizures", although I really didn't
know what they were. I chalked it up to
working 45hrs a week while attending
college all day - just plain stress and no
sleep.
My mom finally made me see a neurologist
who preformed test which diagnosed me as
having seizures. I don't have grand mal
type seizures. Mine are more
cronic-klonic partial-complex seizures.
Neuro immediately placed me on
phenobarbitol. Years later [and several
neuro's later], my current neuro has me on
felbatol and keppra. This combo seems to
work well. Seizures have been downgraded
to "simple seizures" with occasional
"partial complex" (usually oround monthly
period).
Good luck and we all hope they all
[seizures] go away!
