I had my first seizure (grand mal) when I was 4 years old. I was diagnosed with status epilepus. (sp?). I then had my next seizure when I was 6, ironicly, on today, the 23rd while watching rudeoffs nose blink. I than had my 3rd and last grandmal seizure at age 11. I am now 24. I have been on the same medication (phenobarbitol) for 20 years.

Frankly, I am sick of being on medication. I haven't had a grand mal seizure for 13 years.

The only problem I seem to have is small tremors in my hands every now and then, which started when I was 20. Sometimes it is on my thigh and back. Most of these "tremors" feel like a cell phone on vibration, they last anywhere from a few seconds to 6 hours or so. They look like muscle spasms. My neurologist (who I havn't talked to since my last eeg, 2 years ago) said she thought they were "folic molations" (sp?) and were benign. I have had the same nuerologist and doctor for 8 years. My eeg is still a little abnormal, (as of 2 years ago).

So with almost all I can think of, as regarding to all my symptoms, up there I ask you this question,

can I get of my medication now??

I can't complain, it doesn't seem to affect me, but how am I sopposed to know what normal is? I only remember a little bit of life before phenobarb.

But, soon I will be on my own insurance, and I want this to be behind me.

So, what are your suggestions? Do I stay on this medication for life? Is there a reason for me to stay on? What are the dangers of me getting off?

Sorry if this isn't exactly coherent. It is late, so I am not thinking clearly. :oops:

thank you for your suggestions.

Also, I don't know if this makes much of a difference or not, but I am the only epilepic in my family. There is no history of this disorder at all on my dad's side or mom's. My last mri (about 2 years ago) also showed nothing wrong with my brain. So it isn't scared or anything.