I too struggle with all the same things I have read in this forum...I will attempt to outline as much as I know about my symptoms and possible causes. I'm trying to rule out one thing at a time in hopes of maybe finding a solution to this irritating and persistent problem.
I am a 20yo female
I am 5'2" and weigh a little under 110 pounds
(I eat like a pig, just have a small frame)
This problem began around 5 years ago the best I can remember
I have no known health problems or family history.
I had one grandma with asthma.
I do not regularly exercise (ie-at a gym) but i am active
I played tennis in high school and was generally not inhibited by this problem
I saw an allergist 3 1/2 years ago
He accused me of being a smoker although I've never smoked a day in my life
They did the breathing tests and told me I had 40% lung capacity
They did the albuterol test and had no results (positive or negative)
They tested me with an advair inhaler and said it helped 30%...aka NOTHING
I was told to take the advair inhaler twice a day everyday which I did
The breathing never got any better
I was told (by same allergist) that I was allergic to cats, fescue grass??, ragweed (who isn't?) and dust mite F
I hate cats but I've never had any reaction being around them
I had 2 long-haired yorkie dogs and never had allergy issues
I don't have seemingly any more of a problem with allergies than the average
person
The reason I went to the allergist was I went to the nurse's office at school one day when I absolutely could not breathe--not just deep breathe. She used a stethoscope and told me to get to an ER because air was not passing through my left lung.
The hospital injected me with a steroid in the butt (ouch! they're lying if they tell
you it doesn't hurt!)
They said the shot would help over the next several hours--it did not.
I took prednisone for the next 7-10 days (can't remember) and it did nothing.
I tried to self-diagnose and this is what I can tell you:
I lived in a house with mold--not sure how long it was there before it was
discovered
It was the 2nd most toxic type of mold behind stachybatris
We moved out for a year while it was "remediated"
During clean up it was determined my mom had sarcoidosis (possibly from mold)
Sarcoidosis is a disease affecting the lungs and is not thought to be hereditary
I would notice the breathing trouble would get worse sometimes when I was mid-meal. I found it nearly impossible to continue eating until it subsided--often that could take quite a while. I tried to detect a food allergy. Sometimes it got worse after having a Starbucks so I tried eliminating coffee/all caffeine from my diet with no result.
I have lived in Houston all my life with all the lovely pollution.
I moved to a small, relatively non-polluted town for college and the problem still
exists.
I cannot run at all. Not short or long distances. The breathing is insane. I feel like I am going to pass out. Tennis coach never seemed to understand.
I was tested about 4 years ago for heart problems when a cousin was diagnosed
with a type of heart problem--normal EKG and echo.
I am a big milk drinker and dairy consumer. I am absolutely not lactose-intolerant. The problem did not go away when I eliminated milk from my diet.
I've tried the breathing techniques and they do not help me at all.
I have been a sloucher for my entire life. Don't know if this contributes.
I have never been treated for anxiety problems. I get stressed over school but no
more than the average student. At the times I have the breathing problems I am
usually never stressed at all.
I don't drink. I don't smoke. (again--allergist did NOT believe me)
I've never had a panic attack.
It's not really seasonal. Just whenever. Although there was one summer it was particularly rough--usually will last for a few hours a day--anywhere from one day to a week or two. it just comes and goes.
Doctors don't take me seriously. It's really aggravating. I do not have anxiety
problems. Please stop fake diagnosing me.
I've been exceptionally healthy all my life--used to make perfect attendance at school for a long time. My senior year I started getting sick a lot. I spent the whole first year of college very ill. I had mono for about 11 months, tonsilitis twice (for a total of 3 times now), strep twice, bronchitis twice, pneumonia, and flu. The first summer after college I got better and have not really been ill since (i am now in my third year)
Kissing my boyfriend is a joke--I feel like i'm suffocating.
If i try to yawn to get a deeper breath I can't, my chest tightens up.
I'm having a "flare up" right now which is what spurred me to do some more research. So far the only true diagnoses I've seen are Lyme disease and Sarcoidosis and I'm fairly positive I have neither.
Can someone please post if any of these symptoms are common to them and which ones. Once again let me say-- I'm not stressed. It is not anxiety. It's not in my head and please don't try to convince me that it is. The doctors telling you this are just wasting your time and money letting you be guinea pigs for all their crazy remedies.