My story is a bit complex and I could use any suggestion. When I was 10 years old I suffered from acute sinusitis in my right-frontal sinus, which was treated with an operation. The operation included entering the sinus from outside, by breaking the bone below my eye brow, and inserting a drain which was left there for a month and a half. For the following few years I haven’t suffered from sinusitis, until I reached the age of 18, when the sinusitis reappeared. I had to undergo another surgery, and the doctor was unable to use only endoscopic entry to the sinus, since many of the bones of the sinus have been destroyed in the 1st operation. So the 2nd operation was the same as the first one. 2-3 months after the 2nd operation I re-experienced severe headaches. I went through thorough examinations and the sinuses turned out to be clean. Eventually I was diagnosed by a doctor at a pain clinic as suffering from trigeminal neuralgia (probably caused in one of the surgeries, the neuralgia started in the branch located near the eye but has spread to all 3 branches). I was treated with many drugs (depalept, elatrol, elatrolet), I was injected with steroids to my face and to the back of my neck and I tried alternative treatments, with no help whatsoever. I could live with the seizures I experienced daily, no matter how painful they were, until last year, when my sinusitis re-appeared again. With my sinusitis attacks I had seizures of pain lasting several hours, causing me to almost faint. I met with a nose-ear-throat doctor who decided to operate on me once again. He said that he doesn’t think that I have a trigeminal neuralgia and that all the pain is caused by the sinusitis, so taking care of the sinusitis would take care of the pain as well. I had the surgery done almost 3 months ago. The operation was different from the previous two in that the doctor had entered the sinus from a different location (he broke the bone above my eyebrow) and in that that this time he left the drain inside, intending to leave it there for a year. 3 days ago the drain came out (as the doctor said it might), and since i’m experiencing a relapse, I suffer from severe pain (though i’ve been suffering from pain all the time, even after the last operation) and I feel my sinuses are stuffed again. The doctor is thinking of putting me through another operation.
I will be so thankful if anyone could suggest anything to me. I really feel like there is no hope and that i’m doomed to living with daily pain and an operation every few years.
I should also mention that no pain relieving medicine helps my pain, besides morphine, which I hardly take.
Thanks,
roy