Hey there,
i was diagnosed with sle in 1999. I had the malar rash which extended down my arms and legs. My rash is pretty much gone now with the help of plaquenil. I have rhumatoid arthritis, acid reflux, chronic muscle pain, light sensitivity, rhynauds phenomenon, etc... All of which my doctors contribute to lupus. I don't have any kidney involvment but I do have some lung involvment that seems to be much better since I quit smoking a pack a day. :d
i have also suffered a major depression for which I had to be removed from high school and medicated. I am now 22 and off the anti-depressants.
Oh yeah I also have really bad ibs. Mostly chronic stomach pain.
I am taking plaquenil 200mg bid everyday and I was recently put back on prednisone for a while with the doseage going like this 30mg x 5 days, 20mg x 5 days, then 10 mg x 14 days. I take different things for pain from atasol 30, flexeril, amytriptiline, tylenol, advil, demerol,etc...
I have never been tested for sjorgens syndrome, most of the reason I have dry mouth is because of the drugs.
My biggest symptom of lupus is unfortunately fatigue. Most people don't understand because it is not something they can see like the rash.
I have recently had some symptoms of cns involvment and am scheduled for an eeg in november.
Thats my history in a small nut shell.
Cheers,
jenn