Sorry to hear of your search for a dx. I'm not a doctor but it sounds like you have a systemic disorder which could include many odd sounding diseases. May I suggest you go see a rheumy. There are many that can be excluded by a simple blood test.
I myself, have anklylosing spondilitis which presented with uveitis, headaches and tired, tired, tired. When I was dxed I thought they were crazy. However i've learned to accept it and have since had back, neck, wrist, elbow, shoulder ect. Pain. This is basically a spine disease but the arthritis travels the whole body.
Wish you luck in your search.
Klem

Have they checked you for fibromyalgia?
Sure hope you are doing better soon! I know this was posted in nov.
I know that it is heck trying to live w/pain, I do almost 24/7.
Sincerely,
sandy

Long ago I suffered from the same symptoms as your. My family doctor asked for different checks, after many checks I was diagnosed with systematic lupus that caused joints sore,neck, back pain. Also thyroid caused these broblems . You feel tiredness and fatigue. Your doctor is the one who can decide what you are going through, and what caused that pain.

My heart is with you

I have had the same symptoms as you are describing for the past 4 weeks. It started out as really stiff joints and muscles, than muscle spasms now fatigue. At times I hardly feel like I can move. Im not depressed or have any stress. The dr just sent me to have a test for lyme disease and I will find out next week the results. I feel your frustration. For most of the day today I have not felt to bad. But right now i'm starting to feel body aches and tiredness. Iv been to physical therapy with no relief and am going to a reumotologist next week. Let me know if this helps at all. I will let you know the results of my test.

You probably have lyme disease, I have had it since thanksgiving, I had 2 negative tests, one in march , one in may, a new doctor (alternative) and a new lab found a positive lyme..........It is a mysterious little micro-organism that regular doctors do not know much about, you must find specialists, the lab my original negative tests came from I was told by an expert lyme guy does not even test for all strands of the bacteria.........................I am bitter, I was sick for far too long and told I was nuts. Check out lymenet.Org and read up on Dr. Burrascano and his latest research............