I am still undergoing testing to determine if I actually have lupus or not, it is looking pretty promising at this point. I know exactly what you mean by wanting at least 1 day out of 365 days to feel normal. Doesn't haven't to be great, just normal. No pain, no headache, no rashes, feel alert and awake, have energy. I don't think 1 day is too much to ask!
Right now I am in early stages of a cold, and it is kicking my @$$ already! I know colds are annoying and can make you feel less than your normal self. But not this bad! I feel as though another day and I will be bed ridden until it is gone. I am so weak and tired, I can barely make it through my work day.
I feel like such a whiner complaing about all this, but this seems to be the only place that people would understand where I am coming from. Friends and family just think I am hypocondriact (spell?). Everyday it is something and they think I make it all up. I know there is something wrong with me and I am almost hoping that I do in fact have lupus. Just so I can say, "see, I am not making it up...I really have something wrong with me". But at the same time, I hope I don't have it. I mean hearing everyone's stories and dealing with what I go through everyday. If this is to progress throughout life, I don't know if I can take much more of it, especially if it can only get worse.
Well enough complaining for one day, thanks for listening! I hope we all get our 1 day to feel normal! I'd hope for more, but I don't want to push it.
~erin