I feel really hurt and angry for us all that there is not good, true information out there to help us understand and navigate this issue. Like you all I trusted my gynecologist when she said marsupelization would fix it - the cyst wasn't painful at all, but it was the size of a golf ball and not very pretty - and I let her put me under general - the first time in my life, trusting that all would be well. I was terrified of the anesthesia but it was easy as pie - don't let that scare you away. As soon as the stitches started dissolving the incision closed and it swelled up again. I went right back and she did a word catheter in her office - it was easy once the lidocain kicked in, and painless to wear. She took it out after a week and said I should be good to go, but within two weeks it had closed again, was swollen beyond all reasonable means, and on the verge of going septic.
Here is where my story may offer help or an alternative.
A long time friend of mine is the department head of urology at a major hospital here. I talked to him about my experience, and he made an appointment for me with a man he trusted deeply, a guy who is a female pelvic surgeon. The day I went to see this new doctor I was in agony with the cyst, which had abcessed, and he booked me into emergency surgery that night, afraid for my health. I woke to find that because of the size of the cyst, the cavity it left when it was drained, like a deflated balloon, would always be ready to fill back up again. He removed the whole gland, and packed it with about five feet of gauze, and I spent the night in hospital. I was given morphine the next morning for the first changing of the gauze, and my boyfriend unpacked and repacked the incision twice a day for two weeks (yes, i think I'm going to keep him!). I won't lie - that hurt, and I'm now almost four weeks out and it is still twingy and tender. I took ibuprofen every four hours for the first two weeks because it felt like I was being seared with a hot poker, but I don't need pain killers now. It is sort of lumpy still, and I think I must have a lot of scar tissue in there, but my boyfriend says it is very pretty. (Sorry, TMI, but that was the point).
My urologist friend says that this is not surgery for oncologists or gynos - it is for female pelvic surgeons, and he is going to take it to the American College of Gynecologists to make sure they start referring us to the appropriate doctors for the job. Some of your stories are heartbreaking - we need compassion and good, proper care - I feel very fortunate and hope I can share some of the wealth. Hugs to you all.