I got my first bartholin cyst when I was 12 (!!!). I was definately not sexually active. I have had them recurring ever since, at first it was only one cyst every year or so - sometimes more. I am now 25. I have been with one man, my husband, and he with one woman, me. I definately do NOT have STDs. I do NOT wear tight pants. I DO have GREAT hygeine.
When I was 20 and had recently give birth to my first child, another cyst showed up. By then I was averaging about 2-4 every month. Usually they didn't go away for months at a time. The pain is unbearable, it was worse than pre-labor pains for me.
I went to the family medical center. We are army, so we were seen immediately as soon as I put in the appointment. By then my one cyst had been around for about 4 months continiously growing to the size of my daughter's head! No lie, it was about the size of a small ball. It was HUGE!!!
The MALE doctor didn't know what it was. He snickered at the pain I said I was having. I told him to look carefully because the thing is pretty huge and I need something done about it. Then I told him to imagine his nuts to swell that big, that stopped almost all the snickering.
He went to go look up what it was, when he came back it was to tell me what it was. He suggested we put a word catheter in it. (I now regret this) He told me to keep it in place for 14 weeks (another mistake, after much research it's only supposed to be 4 weeks max).
He drained my cyst/tumor. The smell was awful. My mother was there crying, holding my hand telling me it was disgusting. Know how he drained it? He jsut shoved a needle into it and it popped. Excruciating pain. He was trying to numb me up. It didn't work. So there I am screaming my head off, my mother crying, and this jerk has the nerve to say "gee look painful".
Weeks pass, the catheter falls out at 13 weeks. I go through a good 3-4 more cysts and draining before I make a resolve to get this completely fixed. I go back in to the doctor, I see a female doctor this time. She tells me she's had it before. She refers me to a specialist. We find out I'm pregnant. I go through an entire pregnancy with another huge cyst. It stays there for over 13 months. Never draining, never stopping the pain. I'm popping pain pills like nuts. I recently moved. Just had my 2nd daughter. FINALLY I can do something about this again.
As of about 3 weeks ago, I saw another specialist. She told me the statistics.
- Women dealing with this under 30: 2% of all women in the world
- Women dealing with recurring cysts: .001% of those previously mentioned 2% women.
I am a rare breed, apparently. She goes on to tell me that it has been rumored that it is actually GENETIC, or so she thinks. My mother has had ovarion cysts, my grandmom has had bartholin cysts. This makes complete sense to me. She tells me she wants to do a marsupialization on it.
I am currently scheduled to have mine done tomorrow. As for the up and walking around in 2 days, that's a lie. There is a high risk for nerve damage (50%), and a high risk of recurrance (45%) with just the marsupialization when it's done on women like me. With the excision (removing the gland) the recurrance will drop to 15%, they will be doing this if the gland becomes a problem during the surgery.
Since some of these posts are old, I thought I'd throw that information out there. I've tried everything I could find on the internet to get rid of these cysts. Herbal rememdies, pain killers, antibiotics, none of it worked. Those sitz baths btw, they prescribe that for everything...and seriously, never worked for me not even post-childbirth.
Here are some facts some of you may want to know about Marsupialization that my doctor told me.
- You have a risk of hemoraghing (spelling?)
- You may need a blood transfusion
- You need to pick out your anethetic, and there are over 100s to pick from (how you will be doped up)
- You will have a therapist assigned to you afterwards
- It is a walk-in, walk-out same day proceedure lasting total 3 hours
- You DO have a chance of recurrance, but this helps lessen it
- They MAY need to do some minor surgery on important parts on you, like your uretha/uterus/etc, IF the cyst has grown so big and up that far
- They MAY need to remove dead tissue (they do with me)
- You will be on required bedrest for at least a month, some women take up to 3 months to just be able to sit down
- It MAY cause nerve damage, resulting in ghost pains
- It MAY affect your future sex life, not being able to get wet etc
- It WILL help you stop getting pain when you get turned on (happens to me), will stop the fevers (happens to me), will stop problems getting wet (happens to me)
- They MAY need to repair your bartholin cyst tube (leading to the cyst) or remove it all together
- As for the clown that stated that they were nauseous because they didn't eat before the surgery, I'm going to call junkies on that. You are told not to eat after MIDNIGHT the night before, and the surgery is usually scheduled at 6am-9am. Not that long without a snack, eh ladies?
- Do not take any pain pills within 10 days of your surgery because it will dillute your blood.
Because I am such a rare breed, I have dead tissue outside of my labia. They will be removing a part of my vagina as well. Apparently the recurring cysts caused dead tissue, and that tissue needs to be removed.
Overall, I believe the nuts that talk about herbal remedies...are nuts. There are SOME things that can be fixed with herbs. This is NOT one of them, at least for me.
There is no common cause for this. Don't let anyone tell you that you are dirty/disease filled. I have told every single one of those doctors off when they asked me that question. You will have worries about looking like a freak, you will be VERY depressed because this is a lifelong thing that will never go away, and you will DEFINATELY at some point consider this surgery. In a few days I'll let you know how I'm feeling then.
I'm one of those chicks that would rather limit the chance of recurrance than know for a fact I was going to have this for such a long time. Like I said, everyone is different, but these are ALL the facts that I was presented with myself. I wanted to personally put a stop to all of the fake rumors going around about this surgery and the cysts in general (which are also referred to as benign tumors).
By the way, my word catheter was inserted completely wrong by that MALE doctor. I have since been told it will take ANOTHER surger to repair the damaged tissue.