My boyfriend was just diagnosed with
lupus. I realize after all the research
I have done, he is a very rare case being
male and caucasian. I am trying to find
all the info I can to help with this
transition in his life. If anyone can
help with these questions, I would be most
appreciative! :d
1. I have started him on omega 3 fatty
acid and flaxseed supplements, which I had
approved by his doctor. Are there any
other supplements anyone has tried that
has helped with the symptoms?
2. He is currently on 40mg of prednisone
a day, and he still has a really bad acne
outbreak over his face and most of his
body. Is there any topical treatment out
there that has worked for anyone? Should
this side effect subside as he continues
to decrease his prednisone?
That is all for now, I am sure I will
think of more questions as time goes on.
Again, thank you for reading this and any
help you can provide!
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patricia142
New User, Becoming EHEALTHy
Joined: 07 Nov 2004 Posts: 6 Location: Wisconsin
Posted: 11-07-04 20:58pm
Hi, I am sorry to hear that he has been
diagnosed. I also have lupus, and
although I was first diagnosed two years
ago, I have experience with prednisone
because I actually had my first flare up
when I was 10 years old and took it then
and also two years ago. To answer your
questions, I was told to take a calcium
supplement while on prednisone, but that
might be something important for females
especially. You could have him talk to
his doctor about that. I never had real
bad acne break outs while on the medicine,
but I did gain a lot of weight. Because
prednisone is a steroid, it tends to
increase your appetite and cause you to
gain weight. Also, my cheeks got real
puffy and I kind of looked like a
chipmunk. But, after I was given
plaquinal, a medication often given to
people with lupus, and taken off of the
prednisone, I lost the weight very
quickly. I wish I could answer your
questions a little bit better, but
hopefully it helped you some. Best wishes
and if you have any other questions,
please ask and hopefully I can help to
answer them
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SunShine4ever
New User, Becoming EHEALTHy
Joined: 27 Jan 2005 Posts: 3 Location: Philadelphia
Posted: 01-27-05 21:34pm
Hey, I also have somewhat your situation,
but the only different thing bout my
situation is that im not in a relationship
yet. He does not want me to be in his
life because he has lupus, which he dint
tell me directly, I kindda had to find out
the reason why he wants to stay away from
me. He was diagnosed with it 5yrs ago.
The thing I wanna ask you is that does
your boyfriend has fears about future?
Coz my boo surely does, and I want spend
my life with taking every step together
and working things out together but he has
decided not to get in any relationship, so
he wont hurt anyone, but it would hurt me
for the rest of my life, would make me
feel as if I left him alone, no one with
him to stand. I wanna be with him. I
wanna know how confident are you with the
situation you are going through. Im 20
and so is he.
Dont you think if we take things with
positive attitide, things would work out?
And its not that im not mentally prpared
with it and im having trouble
understanding him. I know I would have to
sacrifice alot of stuff and I am willing
to. But at the same time I dont wanna
make him feel that I will have to
sacrifise soo much for him, while some
other guy would have given me sooo much
and he cant give me anything. I only want
him. Let me know if u can help.
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Jen779
New User, Becoming EHEALTHy
Joined: 05 Nov 2004 Posts: 9
Hi Sunshine Posted: 02-17-05 16:13pm
I am sorry it took a while for me to
respond. I am actually not with my
boyfriend anymore, even though I am still
worried about him. I actually did not
break up with him because of the lupus,
but found out he had been cheating on me.
This had happened before he was diagnosed
with lupus, and he claims that he does not
even remember it now because he was so
messed up mentally. I think your
boyfriend is tyring to protect you, and if
he does not want to let you in then there
is nothing he can do, but he should feel
lucky! Lupus is different for everyone,
so he may be able to handle it much
better, and go on to live a very normal
life. In my situation, he has not gotten
much better and is still very weak which
makes it hard for him to do anything.
You will just have to be ready to possibly
be the main financial provider of the
family in case in cannot work. It is
hard if you like going out because there
may be times he is in too much main. I
am not saying that is the way it will be,
you just have to be prepared for
anything!
I hope that helps, and good luck.
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SunShine4ever
New User, Becoming EHEALTHy
Joined: 27 Jan 2005 Posts: 3 Location: Philadelphia
Posted: 02-21-05 22:29pm
Hey jenn,
its very sad to know that your bf was
cheating on you. But tell ya something
we all humans do mistake, and there are
only few people in this wolrd who forgive
such mistakes. You know this very well
your bf is going through a very difficult
time and he needs someones support and
that would be you if no one is with him at
this stage...We all in out lifetime do
sometihing or the other rong... If you
support him now he would be yours forever
and would always feel the guilt that he
cheated on grl who was always with him and
the thing which would make him keep binded
to you would be that you forgave him.
And I think flares and emotions play a
major role in lupus. If he is mentally
upset bout the breakin of this
relationship then trust me he is gonna get
worse and worse..Someone has to make him
healthy mentally and physically. I dont
know even know your whole situation...Im
sorry if im getting into ur business...
Goodluck
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Mighty Oak
New User, Becoming EHEALTHy
Joined: 17 Jun 2005 Posts: 7 Location: Arizona
Posted: 06-17-05 18:03pm
In my experience, the only person who can
make someone mentally well is themself.
They can see therapists to help learn what
tools they need to use in order to feel
stable, but nobody can force someone else
to be well. It comes from within. I
wish both of these young men as much
health as possible. Hang in there. I
know it must be hard caring so much for
someone with an illness like this. I
constantly worry about what my boyfriend
(of 5 years) must be going through. I
haven't had a really major flare, but i'm
always a little creaky and fatigued. At
my worst, so far i've errupted in oral
ulcers, experienced intense joint pain,
and have become a total grouch.
I would never want to burden him with
taking care of me, but I also know we
share a very strong bond mentally and
emotionally. He always reassures me that
he stays because we understand each other,
and that it doesn't trouble him at all.
He's so strong. I know it hurts him when
i'm not well, but I also know he feels
proud to be able to offer emotional
support when I need it. Really, it's the
same with my family members as well. I
don't want to become a difficult person to
have around, but I do have health
problems. So far, my case is mild and
for that I am thankful. My doctor says
that if I keep things under control, I
should be able to maintain my current
level of health. I work out regularly,
take vitamins, make sure I get enough
sleep (at least 9 hours), take my
medication (plaquenil), and try not to let
the small stuff freak me out. Hang in
there.
