Hi karen! It is not an autoimmune disease, just a condition (which I don't believe I have!) of a lot of aches and pains.
From my regular doc, she was the one who pointed out the malar rash on my face. Went to this rheumy (and I am changing next year believe me!) and I told his assistant the following: I get flu-like symptoms every month, sometimes for a whole month and I get a couple days of a reprieve; nausea, headaches, hair loss, joint pain, achy all over, lots of fatigue, brain fog. Got tested three times and all three times the ana came back positive. At that time, he was strongly suspicious of lupus. Did more tests, everything else normal except ana. Then gastroenterologist took 11 vials of blood, everything was ok except anti smooth muscle antibody; that came back positive. Had a liver biopsy, and that showed that I had a fatty liver, nothing else. Went back to rheumy, and now he is going towards fibro "for now". What the hell?!?!?! I am so upset. It's like "well, i'm frustrated I can't figure this out so i'll just label it fibro." I don't get it. It's really important that your doctor listens to you, unlike mine!!!!
Oh! Get this!! I told him about my one cousin, who was diagnosed with lupus. I told him about my other cousin who said that I should see an endocrinologist for thyroid, as that could be the problem as well, but I told the rheumy that she didn't test positive for ana. He says, "well then she doesn't have lupus." hello?!?!?!? I tested positive but I don't have it either?!?!
Sigh. Let me know how it goes for ya! Hugs!! Em