Hi all! I went to my rheumy yesterday
and he said that since what I am telling
him sounds like fibro, we will focus on
that for now and put the test results
aside. (i've had my ana test positive
three times and asma -anti smooth muscle
antibody also positive). My regular doc
says I have the malar rash, rheumy is not
so sure. Before, he also was almost
certain it was lupus, now he's not so
sure. I feel so depressed, sad, angry.
How can it be fibro with these other tests
being positive?
Thanks for listening. Em
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 11-08-04 18:15pm
There are a lot of tests and a lot of
criteria that they use to diagnose lupus
with...And, unfortunately, it can be a
long arduous road, mine was seven years.
Have you considered a second opinion?
*hugs*
ladybrannon
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BabyWheat
New User, Becoming EHEALTHy
Joined: 05 Nov 2004 Posts: 4 Location: Arizona
Re: Frustrated Posted: 11-08-04 18:29pm
Hi ladybrannon!!! Thank you so much for
responding. I am actually trying to find
another rheumatologist. My last resort
would be to go to the mayo clinic out here
in scottsdale.
If you don't mind my asking, why does it
take so long? What was your experience?
Did they tell you the whole "fibro" thing
as well? When do they finally decide
"ok, you have lupus"? This guy i'm
seeing now actually wanted to put me on
prednisone before even doing more research
"to see if it works." ugh. I'm not a
guinea pig! (although I may eat like
one! :-d )
thanks for your help! Lots of big hugs
to you!!! Em
