Hi
My daughter was diagnosed with neutropenia this May, well officially in October, It has been a long hard six months. She has been tested for every cancer and leukemia out there, plus all and any rare blood disorders, and genetic ones too. She had a bone marrow test done last month and all the results on that test as well as all the others were normal. yea!!! We just started the injection procedure this saturday. So far we have done two and only have five more left. The hope is that the injections will boost her white count and neutrophils and we will have a plan in place for when she does become ill. I think the worst part for us was the 6 months of not knowing and figuring out how to explain all this to her. She is just now twenty but she is severely developmentally delayed and going blind and her mental age is that of a 5 year old. But thanks to the staff at Stanford Hospital we have managed to get her though this and she is adjusting well. She does have the achey bones but the tylenol seems to relieve some of the pain, and warm baths seem to help. I guess i am just putting this out there and needed to say it all out loud. Thanks