some people have low b12 becasue of pernicious anemia... whcih means they cant absorb b12 becasue theyve lost their 'instrinctive facot' (think thats wht its called)/... which is something to do with digestion/absorption

Hi all..

HW and pix, I've been hearing/feeling a lot about this absorption theory. I had another episode where I get debilitating pain in waves in my lower abdomen, and then for a couple hours in intervals, all that comes out is waste that is almost always completely undigested.

For a while I figured it would attribute to why I'm always tired in my body and my eyes, and why I've been so cloudy headed. I also had a few deficiencies when I last had a blood test. Nothing serious though, but then again I don't know what they tested for.

Anyway.. I have heard that this could be a malfunction in the gallbladder.

I would seriously love to have a babyfood diet haha, there just isn't enough good adult squishy food out there to keep me away from starvation... I've lost 9 pounds this year. That's going from 130 down to 121-123 at times, and I'm about 5'6 - 5'7. I'm not sure if I should attribute this to my lack of time to exercise (muscle loss), or from this stomach issue taking it's toll on me..

HW, I hope you figure your situation out. I know, as we all do, how uncomfortable that setting is. But pix is right, when you're ready, you'll know and things will work out. When it comes down to it, what a silly reason to not fall in love with someone? You'll be fine. It will just take a long time for any of us to realize it. ( pix, is your optimism rubbing off on me?? )

Coheed, I don't know if this is your issue, but my aunt has had problems for many, many years. She has to go to the bathroom every time she eats. She's lost a lot of weight and has some stomach pain. Her doctors had always told her that she had IBS (meaning they didn't know what was wrong with her). She finally was unable to walk because the pain was so bad and had to be brought to the ER. They ran several tests on her and found out that she has pancreatitis, which comes from a fatty diet and alcohol. None of her previous doctors ran the tests she needed to make the diagnosis. Just something for you to think about in case you're having similar symptoms. Also demand that the doctor run more tests on you. Good luck!

Hi Squirmy Girl..

That's not something I had ever even considered. I don't have to go to the bathroom a lot, at all. Oh, except for when I get those episodes. And I have only gone to a doctor once, just to hear "it's normal". She was a family doctor and didn't feel the need to recommend me to a G.I. I don't think I'll be able to get around to seeing a doctor, but I'll definitely look into what you suggested. I'm sure I can find a lot of information online, and if it seems to fit, maybe I'll figure out a way to get to someone. I know it isn't "IBS", you're exactly right that that is what they call anything THEY can't diagnose. Thank you for your advice!

Coheed,

You're welcome! I just think people should look into other causes for their distress besides IBS. Our condition is definitely not "normal"! I'm very frustrated, but I'm on the path to recovery...I think. I'll be sure to post here if I see great results. So far, not much progress, but I shouldn't expect much progress when I've had it for 11 years and just started a new regimen a few weeks ago.

My cousin and my aunt (not in the same immediate families) were both diagnosed with pancreatitis, so it might be more common than I thought. At least it's another thing to look into as the cause for your problems. I don't have any severe gut pain.

Good luck to you!

Coheed, i know i've got poor absorption and i get the undigested food thing sometimes. Have you noticed if it's when you've eaten something particular? I can't digest things like corn, pepper skins, peas, mushrooms.

HW, been thinking about your 'situation' and i know you'll get there with it. Just think back a few months when you were adamant that you couldn't go to the doctors and would no way have a blood test. You were sure they'd send you for loads of horrific tests but you did it and it was no where near as bad as you thought. I think you underestimate what you're capable of.

The thing with this problem of ours is that certain things we can't do, simple as. I know my limits-i couldn't sit through a play or a day of lectures etc because i've been there and i know how it ends! But somethings we can achieve even though they terrify us.

The key for me is to go with your heart and ignore your head. My heart is telling me that i would desperately love a baby, that i'd be a great mum and it'd be the best thing in the world but my head is screaming 'no-way, you'll never cope, what about all the doctors appointments, antenatal classes, years of parent teacher meeting etc', the list goes on but i'm ignoring all that, i'm blocking it all out. Maybe im living in cookoo land but if i didn't do this id still be at my mum and dads, sitting alone in my bedroom with no qualifications, no job, no boyfriend, no mates.

We've got to keep moving forward or these stupid noises will beat us. So anyway, you'll get there. You're concentrating on your health at the moment-so one step at a time but it will happen. Sorry to rant but i see myself in you so much, i've been through it all so i know how you feel and i wish i'd had someone to tell me that it'll all be alright. It will be, if you moved in together tomorrow you'd never regret it for a second.

Hey

Im so glad i found you guys. Ive been reading the posts and have been taking in all your advise.

Im 15 nearly 16 and have been coping with the same symptons as you for 2 years now. In September i start college and i am really nervous about going because of the noises in my stomach. July 2nd and 3rd i have induction days at the college and i am worried that my stomach will make noises then infront of everyone when i dont want to give them a bad impression. I dont know what to do, as my mum wont take it seriously and says its just nerves. However this does not help at all.

Ive been reading that most people on this forum have had problems at work etc because of the noises preventing them from promotions and i am worried that the same will happen to me. I dont want to have this problem for the rest of my life. And it sounds stupid because all it is is noises in my stomach. Thankfully i have just finished my GCSE exams (the last one was 2 and 1/2 hours long and i managed to get out early) so no more sitting in silence and feeling chlostophobic at school. However i have still got college to get through.

Please Help!

Thanks

x

Hello All,

Well, I try to keep you all updated with any little thing I discover about the noises. Anyway, I've been researching intestinal yeast overgrowth lately. I don't know why, but, anyway, I feel that our problem is sooooooo broad that we could be dealing with food intolerance, candida, leaky gut, parasites, acidic/akaline PH, etc...


Yesterday, I researched Oil of Oregano..There are quite a few tests done on this herb for candida. Research shows that this is the herb to destroy candida more effective than antobiotics or conventional antifungal drugs, nystatin. The thing is all Oregano isn't created EQUAL. I read that you should purchase Oregano Certified Wild. The others are imitation and DOES NOT work to kill candida! I purchased North American Herb& Spice "Oreganol" softgels...cost $28 for 60 capsules. I started yesterday and so far so good...It makes me feel like when I had good results with the Paragone. I thought I would feel a lot of movement and noises, like I did when taking Paragone, but no..I feel great! I'm keeping my fingers crossed on this one.

FYI...I still continue to take my essential digestive enzymes(before meals) and probiotics at night. I read that enzymes are needed to help digest the candida..I'm thinking maybe that is the reason I have good results with enzymes, but, yet no cure.. Enzymes are a must for me...

If the Oreganol doesn't work then I will try Threelac..Has anyone tried it? What about Primal Defense? These are next on my list..

Sorry if this topic has come up in the past but I couldn't find it in the recent postings.

Anyway, I thought I would let you know that I just found out my sister was diagnosed with Coeliac Disease. She has never had the symptom of stomach noises but she has had IBS type symptoms for years. There is a strong genetic link for this disease so her doctor told her that I should get tested.

Note that Coeliac Disease is still possible even if you are NOT allergic to wheat. Not the same thing as an allergy. It's not very commonly tested for in the US where I live according to my sisters doctor.

Here's some info:

http://en.wikipedia.org/wiki/Coeliac_disea se

Also, here is a topic about stomach noises on a forum for Coeliac Disease.

I started on a gluten free diet today so I'll let you all know how it goes. My sister said that after about 3 weeks on a GF diet, all of her IBS symptoms disappeared. One thing that HW might be interested in is that my sister suffered from extreme fatigue also.

I am comparatively healthy. Run a lot, play soccer 3 times a week... but I do have times where I feel fatigued and have a feeling that my digestive system just isn't working properly. This is in addition to the noise symptoms.

1 - thats the kind of talk I like to hear!

xxlittleone - welcome! for a start, do you exercise? some of us find that going for long runs/gym-work/matches helps to relieve the tension and for hours after, we tend to feel great with no noises - and can sit through quiet situations without problem. Ok, it doesn't solve the problem - but if it works for you - it will get you through some situations. If you don't do a lot of exercise, start out with 15 - 20 minute run and see how you feel for the following hours? You'll know if its something for you or not...

Matt - I was thinking exactly that a few months ago - and totally forgot til now! I don't seem to be able to stick to the strict diet that it requires - very busy with work and it gets impractical - also I still live at home - but def something to keep us updated on!

Just thought i'd check in and see how you're all getting on. A big hello to all you newbies, and good luck to Pix. HW - i'm not telling you to rush into anything that you're not ready for but i can assure you that your boyfriend will not be put off by your noisy tummy. My bf will sometimes give me an odd look or even laugh when it gets really loud, but he doesn't really pay it that much attention.

My noises have been exceptionally loud the past few nights, and on and off throughout the day. Since finishing uni and exams 3 weeks ago i have been eating whatever i want (sugar, cheese, mushrooms, bread etc) and the noises have been much worse. I think two of the biggest culprits are bread and ice cream. Also alcohol. Pix, you mentioned gas, i have had the same problem these last few nights. I have had to pass wind in order to ease the noises, which is very difficult when you are not alone! Must be something i'm eating as symptoms are much worse than usual at the moment. And i have not been doing any exercise either as i think i managed to break my big toe during a night out after the last day of uni! Ouch.

I still believe that Candida overgrowth is a likely problem for me, but i would like to know for sure as the Candida diet is very strict and may not even be what i need. I think for now i am just going to go back to eating sensibly, avoiding the most obvious culprits, drinking water, eating yogurt, and taking garlic capsules and caprylic acid. Easier siad than done, but it seemed to help last time. Once the toe is better i will also try and incorporate some exercise. I need to get these noises under control before i start my work placement in a couple of months!

Hope that you are all doing ok. x

irishlad thanks for your reply. I often go out biking, play football and do alot of walking, so im not sure whether exersize is the real problem however i did go to the doctors today and he said that the noises were just normal and (like you have said before) i should stay off certain foods like cabbage etc.

Thanks for your help!

xxlittleonexx1

x

Hi little one,

Glad you found us. From my own experience the things that have helped me the most have been:

-cutting out wheat
-little or no processed food
-reducing sugar (using honey as a substitute)
-eating natural yoghurt with every meal

So, i think the best place to start is diet, try cutting something out for a couple of weeks at a time and see if it helps. Keep up the exercise and start some kind of relaxation to ease the anxiety:deep breathing, meditation, positive thinking-it'll all help. If none of that works there are supplements to try, i think growlgurl is the best person to help you with that.

Congratulations on getting through your GCSE's. My problems started the summer after my exams and i managed a-levels and a degree with them. I can honestly say that GSCE's would have been the hardest to get through with the noises so if you can do that you can do anything! I know i found college and uni alot easier as you have lots of free periods, everyone skips lectures, there are fewer exams etc. One thing i do wish i'd done differently is explain the situation to my teachers so i could have sat my exams separatley-i put myself through alot of undue pressure.

Hope that's helped-keep posting. There's another member here who's your age, not sure if they're still reading but if they are i'm sure they could offer you some support.Pix.

Forgot to say thanks for the luck welshgirl-think we're going to need it, this trying to concieve malarky is a real emotional rollercoaster!

It's so hard to stick to the diet once you're away from uni/work/quiet situations. I always let it slip when im on my hols and i kick myself after but i think it's good to indulge once in a while. For me though, the pleasue of eating 'naughty' food is not worth the noise and discomfort i get after. I've got the memory of a goldfish though so that all gets forgotten.

Last night i ate a curry (the full works) and TWO cream cakes! I was comfort eating though, a piece of steamed salmon and veg doesn't quite hit the spot when you're upset! My stomach feels like a washing machiene on spin cycle this morning! Back to being good for me .

How do you manage when you've got really bad wind and you're in company? When im home, i go for a bath and let as much out as possible. If im at friends/family i get really uncomfortable and end up leaving when it gets very bad. I've got 2 friends who i can let it go infront of and i'm starting to infront of my hubbie as he does it infront of me and it's plain double standards for it to be ok for him to do it!

Anyway, im rambling now-going to have a good sit on the loo, show this stomach who's boss (sorry for all the TMI)

Thanks Pix that helped alot. Im actually sitting here writing lists of do's and dont's in order to help myself . When taking my GCSE exams i did actually ask if i could sit by an open door away from everyone else. This helped and i think fresh air is an important factor for me. My stomach has definatly settled down more since listening to your advise. I am going to start eating more yoghurts as i agree that they will help me.

Thanks again.

x

No problem. My other advice would be to use the long summer breaks to try new things-eg, digestive enzymes, probiotics-anything people may recommend. I struggle with this as my job means having to sit quiet everyday so i really can't afford to make things worse (eg,some people find probiotics make symptoms worse for a couple of months before things get better)

hey everyone...
too much to reply too. hope youre all well.
has anyone tried any medicines or supplements too combat gas? i think one of the biggest contributions to my noise especially at night, is the gas...
was thinking about trying to find something over the counter that mite help

Quite a few of you here have mentioned gas - is that a common factor? I don't suffer from it very often, only occasionally at night. I assume after i have eaten 'bad' foods (ice cream, alcohol, bread etc). Normally i am with my partner and so i just hold it in, but that gets very uncomfortable after a while and the noises get louder so i go to the bathroom or to another part of the house! Luckily not normally a problem for me so no i haven't tried any remedies for it.

it didnt used to be too bad for me but ver the past 6 months or so gas has got really bad and i now get seperate noises from the gas.

does anyone else get thristy a lot? or have almost binges on healthy food sometimes becasue you crave it and need to shut up your stomach?

Hello!

Rachie, I experience the exactly the same symptoms as you. It started about 4 years ago in University. I was in the middle of an exam and my stomach started making noises, sounded like farting, but it was in my intestinal area, lower back, and bum. I had people lean over during the exam and ask if I was ok. I excused myself for a bathroom break. But I guess I started getting nervous from the embarrassment it got ten times worse and I had to rewrite the exam. So embarrassing. Then it started happening during class and other exams. It started in 3rd year university, so I've sat through many classes and exams and have been perfectly fine.

I went to the doctor who sent me to a gastrointestinal doctor and had a colonoscopy. Everything came back fine. I've spoken with my doctor about it many times, but no solution yet.

Since I have finished university, the only time that it occurs now is when I'm out for dinner at a restaurant. I think mostly it keeps reoccuring is that I'm nervous it'll happen again, which causes my muscles to tighten and when I start eating food at the restaurant it all begins. However this isn't all of the time. It's really strange and I don't know what to do. It's not like I get anxiety with the people I'm out to dinner with. I go out with the same people one time & i'm ok and another I'm not.

I went out for dinner with my boyfriend's company for their Christmas dinner party. My stomach started getting quezy. Then I got really cold and then really hot. I started shivering like I was cold. I felt light headed. I had to excuse myself numerous times because I had diaherra. These are the usual symptoms that occur now. Not to that past extreme at the Christmas dinner, but different variations of it. As soon as I take a bite of food, my stomach starts making noises, and usually have to have a bowel movement. And maybe numerous ones. I try to talk in my head to breathe and calm myself, but it only sometimes works.

Does anyone else experience similar symptoms and have found something to make it stop?!?!???