Hello! I am kinda new to this...
My daughter spent her sweet 16 in the hospital with a staph infection on her cervex that turned to toxic shock syndrome. It was very unusual and the doctors had not seen anything like it...Any way...She was recovering from that and she came down with what they thought at the time was mono...And she was hospitalized again...She was released from the hospital on 9/3/04. Since then we have visited the er 7 more times...Blood in her urine, chest pains, stomach pains, blood in her stools.. And everytime they have told her it is just the mono and have sent us home....
Yesterday she came to my office and she had the butterfly rash across her cheeks, nose and I thought of lupus...When I got home I opened my mail and a letter was in my box from our Dr. Telling us that one of her blood tests...Ana had come back speckled and we should see a rheumatologist soon. We happened to have a doctors appt today with our gp and he believes that she may have lupus. We can not get into see anyone for 4 weeks. My concern is this----i don't believe she ever had mono...I think it has been lupus all along...And if that is the case she has been in a "flare up" for almost 2 months...Kidney and chest pain....And with no treatment....Should I insist we get in sooner...Or is it ok to wait...Help!!!....