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Conditions and Diseases > Epilepsy Forum > I Want to Change My Meds What Should I Do? I Am Scared Also
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Q: I Want to Change My Meds What Should I Do? I Am Scared Also
asked by: sami_1982 on October 22nd, 2004
Experienced User
Hello.
I live in a rural area. I dont have a neurologist here. Can my local gp change my meds. Ive been reading great things about keppra. And I want to go on that. My seizures have never been controlled. And I have had epilepsy only one yr now. I am 22 yr old female. Has anyone else demanded a med change from their gp.? I am on 1000mg 2 x daily of epilim (sodium valproate) and I am having recently awful mood changes, of aggression, swollen anckels, weight gain. Severe paranoia and some depression and anxiety also, I always feel scared. I dont know if its the tle or what but I know its not me. I am also on another med to. Tegretol ( carbamazapine )and I take 200mg 3x daily of that. The side effects I get when taking that are when I write or concentrate my eyes role into my head and shake side to side. And they hurt big time when I try to focus.
My seizure frequency is 1 a week on average. And I have had 4 status seizures in 12 months. I dont know if thats average what ppl have or what. My seizure types are complex partials, simple partials and tonic clonic seizures.
I cant work because they say I am a liability and I am always tired.
Please help me.
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danceman
replied on October 22nd, 2004
New User
Can You Change Your Medication?
Hi sami
im 43 and had epilepsy since I was 6 mnths old, I have always had a nuerologist and thier knowledge and help is very benificial , a family doctor will have some knowledge but not that of a specialist. Sami, it would be very worthwhile, even if it was only every 9mnths or so , to make an effort and travel to a town where you can see a nueroligist . I do believe that there are certain medications that ladies have to be careful using if considering pregnancy, and others like dilantin can cause excessive hairiness ,but that is a small price to pay if it works . I believe you would be best to get some guidance from a specialist before changing your medication.
I dont have total control with my medication ,but I know I would be far worse without it .

You say you cant work as you would be a liability sami, did you know that employers cannot discriminate against you by law because of your epilepsy. I know employment is tougher in counntry/rural australia than the city ,but have you considered small part time jobs or maybe providing a service that is needed in your area for example , a dog walking service.

I currently take 6 x 400mg nuerontin , 6 x 200mg tegretol and 4 x100mg dilantin per day I have employment and are grateful for it .

Good luck and try not to let it get to you.
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kayakmom
replied on October 22nd, 2004
Experienced User
It is best to find a good neuro who will work with you. As was mentioned they are specialists and can do better than a gp....An epilepsy specialist or epileptologist is even better for treatment!

Will your neuro not talk about changing meds? Have you asked him if you can try something else? Sometimes you just need to go to a different one for a new look at your case...

I hope you can find something to help you more!
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