Welcome! It is nice to meet you! I am ladybrannon.
I read briefly through your story...And a couple things come to mind:
1) it cannot hurt to be tested for lupus. However, lupus is diagnosed by a combination of blood tests and symptoms; there is *not* a lupus test, per se.
2) could it be lupus? Sure. Could it be something else? Sure.
3) tias- yes, they do occur in lupus patients. Have you had an mri? If not, I would.
4) you listed having a lot of docs...Do you have a rheumatologist?
5) keep a diary. Be *very* detailed. Take it to your doctors.
6) find out what tests they *have* done and obtain the results. This will help the doctors as well to have *all* your tests in one place.
7) don't stress! It will only make it worse, lupus or no.
8] waiting...No! Will the tests be more *reactive* if you are sick, yes; but not worth waiting to find them that way. If you are diagnosed with lupus, you will find that the doctors will re-run those tests ad naseum (but for your benefit and you will also find that the test results *can* change).
Blood tests?
Ana
sed rate
c reactive protein
c3 and c4
anti-dna
anti-ro
anti-sm
see if any of these have been tested...
We are all here to help in anyway we can...Ask away if you have any more concerns. We will help if we *can.*
hugs,
ladybrannon