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Unexplained Headache Does Anyone Have An Answer

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I have had a constant temporal headache on my left side for 4-5 weeks now. The pain never goes completely away and my vision is sometimes blurred in my left eye. I have had a mri/mra and a ct done for a brain aneurysm but they cam back clear. They don't seem like a migraine because i'm not sensative to light and it never goes away. It is almost a pulsatin headache and it is very localized in my left side near my temple. The neourologist hasn't got a clue but all he did was the mri/mra, I asked him if there was anything else we should do because I can not live like this., but he just put me on preventative headache meds. I am not convinced that there isn't something wrong, does anyone know what it might be or has had this problem? Please help me, I am desperate for some type of answer and resolution. Thanks you so much. Jamie
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First Helper PUCCITALIA1
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replied October 20th, 2004
Extremely eHealthy
Sorry to hear about you pain,i know it sucks.Did you try the medication?It might be worth a try.If you did use the meds and they did not help,you need to return to the doc and let her/him know that that particular treatment did not work for you.Can you pinpoint anything that may be triggering your headaches?It has been hurting for weeks with no relief at all??If that is the case,i would definately call the doc again and ask for further testing.That is your right as a patient to ask for futher treatment if there is no relief from previous treatment.Are you seeing a neurologist??If not,you should.If you are,maybe you need to see another one.I hope you find some answers.Patty
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replied October 22nd, 2004
One Sided, Daily Headache
It is quite reassuring that your imaging studies were normal. The chance that your headache is due to any ominous or sinister problem (other than suffering the headache you are) is extremely small. Would you rather stay still than move around? Are you nauseous at all? Would you rather steer clear of certain sounds? How old are you? Migraines can present in many ways--daily migraine is very very common and when it becomes daily it may lose some of the hallmarks that make one think of migraine. If you happen to be over 40, one might consider hemicrania continuua as a possible diagnosis. This one responds to indocin. If your physician is unsure, ask to see a headache specialist--the diagnosis here will not be difficult. If it is chronic migraine as I suspect, medications will likely be required as nonpharmacologic avenues such as acpuncture, massage, relaxation all help, just usually not enough when things get really bad. Be aware, there is hope--it just might take time to treat it properly--there is no diagnostic test for migraine--the tests are simply to rule out other possible causes. Migraines are genetic (plus of course environmental triggers bring out the genetic predisposition). Good luck!

-dooba
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replied December 9th, 2004
I do not have migrains but I have almost constent head pain due to blood clots. They say the pain may be from them opening back up again after clotting. I a few months ago had a bad spinal tap and they ripped my spine, talk about a headache I was out for a month but I became so afraid of having a headache my neurologist put me on paxil and it has really helped with the headaches, just a thought. Hope you feel better.
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replied December 26th, 2004
Diet can often be a factor in headaches, although it sure is hard to cut out things like sugar and caffine! A regular sleep cycle can also help sometimes, as well as taking some time just to relax. Even if your head doesn't stop hurting completely, sometimes just breathing deeply and letting worries float away can make you feel better (emotionaly at least). Hope this helps, and if you're looking for medication, try seeing different doctors, sometimes you must even go to a different area to find a doctor who will help. Good luck!
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replied January 8th, 2005
I think it could be migranes and I know how u feel. My fiance has severe a typical migranes. His specialist said that he can write a paper on both him and his brother. His first migrane experience was a migrane for 140 days straight at age 15 or 16 don't remember what age. He can sometimes have a normal migrane that is just pain and that but his migranes for the most part makes him look like a stroke victim. He looses feeling on the one side of his body and he can't ever feel his legs when his migranes get bad. He also looses his speach or he can only say a few words. He's had every test known to man but they have all been clear and atleast 40 different pills ( he's now 25) but only a select few work for awhile and the ones that kept working they have since taken off the market. So it's some hospital visits, specialist visits, and more meds to try out to make this where he can keep going on having a normal life. You just need to find a system that works for you. It could take awhile but it's worth it in the end.
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replied January 16th, 2005
I've Got It Too....!
:d glad to know i'm not alone with this! I've had the same thing, an 'ache' on my left temple for the past 14 years now - it doesn't always hurt unless its touched - I describe it like a big bruise that won't go away. But it makes me incredibly cautious with roughhousing with my children and what positions I sleep in...

I haven't been given medication for this - i'm interested in what you've been given, and whether or not it is helping?

I have found that it is worse when I am sleep deprived and breastfeeding a wee baby - might be dehydration related? Who knows. My doctors did the mri/xray/ct scan and couldn't find anything either - the closest they came was to saying it was a twisted nerve and they could operate, but don't know what that would do...
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replied October 14th, 2013
me too! I have never had a headache my whole life, other than the 'hangover' headache..last September (2012) I had gone out for the evening and just assumed the next day that I had the 'hangover' headache so I lived through it and went on with my life. After 3 weeks of the constant throbbing in my left temple, I went to see my Dr. She sent me for a CAT scan that was clear. After 6 weeks my left pupil was not reacting to light the way it should. It was sluggish. I went to my eye Doc and he felt that it was just age. (I was 44 at the time). After 8 weeks the pain turned from throbbing to a feeling of being electrocuted and I could not touch the side of my head, it felt like someone had hit me over the head with a baseball bat. I was sent to see a neurologist who told me that I should just go home and take an Advil and a diet pepsi and I would be fine..Like I hadn't tried every combination of pain meds before?? He was absolutely useless and only after losing it on him did he sent me for an MRI,,came back normal..at the end of my rope now, going on 3 months straight with no relief from this 'headache' and I finally saw a neuro-opthamologist who said he felt I had shingles all this time..so he basically said that I would have residual pain for years and that my pupil in my left eye was 'dead'..eventually the headaches subsided but now, a year later, they are starting again. I have had a constant headache for 3 weeks now, and have no relief. I have to go to work everyday and don't know what to do..I cant go through this again..HELP!!
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replied January 16th, 2005
Well he's been on over 40 different combos. Right now he's on dhe shots, axert, and a bata blocker and it seems to help somewhat. It still doesn't help when his migranes get real bad. Sleep has a lot to do with it too. If you aren't getting enough sleep it can trigger it. I have also seen with him (he's also a diabetic) that if his sugars are up it can also trigger a migrane. I also have seen and nurses have said too that migranes especially ones like this will dehydrate you and that you should have lots of water to keep hydrated. U just have to try different things and see what works. That's what we're doing. Hopefully the drs can help but sometimes they too are at a loss on what to do. My thought is just keep at it and keep trying to find solutions to get to the point where you can live a normal life again.
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replied February 18th, 2005
Alternatives
Thought I might give acupuncture a go. The doctor put the needle right into the nerve in my left temple - hurt like a !**@!, really. :shock: but only for a few seconds because the anesthetic that is on the needle kicked in.

Six hours after the treatment, i've taken the needle out and the temple isn't as swollen as it was this morning, and it feels that the area that was painful to the touch has reduced in size...

I'll keep you all posted on how successful the treatment is - i'm meant to go two more times..... :?

(added two days later) am very doubtful that this will help - was too scared to go back today because of the pain inflicted last time. The acupuncturist I spoke to said he could work on other points first, but it would just mean i'd need more appointments, whereas if he could put it inthe sorest point, this would reduce the amount of treatments required.
So if you want to try acupuncture, this is the way to go....Slow
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replied April 18th, 2005
Trigeminal Neuralgia?
Have they considered the above as an option? That's the thing that we're currently exploring....
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replied April 18th, 2005
Unexplained Headaches
I too experienced from time to time occular migraines with your symptoms. Go to this website and see if it sounds like your symptoms. The website is nti-tss.Com. It is a website for an appliance to relax the muscles which in about 80% of the cases is due to clenching your jaw at night or during the day without realizing it. I am a dentist and wear one at night. It is very small and locks in place. Also, alot of headaches are associated with a decrease in ionized magnesium. I take a magnesium supplement every morning to prevent headaches. 400mg is the recommended dose per day. Do your homework and I hope this can help. I have helped many patients with the same or similar symptoms.
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replied May 21st, 2009
Have your doctor check for this
My daughter was just diagnosed with idopathic intracranial hypertesion and after 7 straight months of severe chronic pain that never left she is now improving drastically after only 4 days on her new medicine. Her mri's and ct scans were also clear this is a build up of fluid around the brain that does not show on tests!!!
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replied October 2nd, 2010
Kind of the same situation
So have you found out yet what is going on. I deal with a similar situation. I have dealt with migraines since the age of 9. What is going on now is NOT a migraine. I would know the diffence since I have lived in my body for the past 30 years. The start up of these horrible, consant headaches started up almost 3 years ago for me. They started very unpredictable for me. Then one day they stayed on the left side of my head and have not budged since. Ibuprofen is the only thing that reduces the pain. I have a pulsation that feels like it's shooting out my left eye. All the specialist are dumbfounded for what's going on. I've tried their prescriptions of darvecet and lora tabs. All they do is make me feel drunk. I don't need a sleep aid. I already have a chronic fatigue problem do to all the pain I'm in. Tell me what you have figured out and maybe it can help me get some answers.
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replied October 2nd, 2010
Experienced User
Mate you a suffering from electro magnetic radiation and electro magnetic force sensitivity.

If you use a cell/mobile phone, DECT phone, or any form of Wi Fi communications systems, then you are suffering from radio, wireless, radiation, microwave sickness.

All the symptoms of such are the same as Sick Building Syndrome, Chronic Fatigue Syndrome, Myalic Encephamyelitis, and numberous othe syndromes.

Having been suffering this for decades.
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