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Conditions and Diseases > Epilepsy Forum > New Here, My Story And Question
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Q: New Here, My Story And Question
asked by: Emeria on October 14th, 2004
New User
Hi all. This is my first post, so I will tell about myself.
I am 24 years old and had my first seizure (grand mal) january 31, 2004. Though i've always been prone to spacing out and losing track of things, I had never even considered that I might have a seizure.

I have suffered from depression on and off since I was about 14 years old, however, and at the time of the seizure I had recently been put on wellbutrin (as I was to learn later - a huge no-no for people with a seizure disorder). To make matters worse, I was at my boyfriend's step-sister's wedding when it happened. I'm told it was pretty ugly.
The paramedics came and took me to the hospital where I was given a ct scan and a prescription to tegretol right away, as well as a referral to a neurologist.

After learning about wellbutrin, I of course discontinued it right away, and my neurologist proceeded to put me through many tests. By this point I was a bit freaked, but mostly frustrated as I felt so sure the wellbutrin alone had caused it. So my mri came out normal my neurologist told me, and just as I expected him to tell me the eeg was fine too, he told me that he saw a "slight abnormality from the temporal lobes" and ordered a sleep deprived eeg. I was in shock then and began to worry. But I went thru the sleep deprived test and felt fine. And so I went back to the doc... This time he said he saw definite seizure activity from the temporal lobes as I began to fall asleep during the test. Confused

I couldn't believe it! He told me I was predisposed to seizures, and ever since then i've been on carbatrol, going back for regular checkups.
I haven't had any full on seizures since, though I do occassionally get weird sensations as if i'm separated from the room i'm in, or as if i'm part of a dream. Sometimes the room begins to visibly shake a vibrate a bit too. My doc says these are auras.

So... Thats basically my story, sorry so long winded.
My question is just how possible is it that my eeg results were caused by something else or maybe just temporary? How likely is it that this will continue forever or get worse?
They already made me retake my driving test, and I hate being seen as a bit more "delicate" now Crying or Very sad

anyhoo...Thanks for anyone who read this and anyone who can respond Smile
-em
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kayak2mom
replied on October 14th, 2004
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I am so sorry that this happened em! Depression and epilepsy can go hand in hand. Yes a medication like welbutrin can cause a seizure, but it would probably not show on the eeg especially once you were off that med. They neuro is playing it safe to try and prevent another grand mal (also called tonic clonic) from happening since the eeg shows a potential for more. My daughter was put on meds for similar reasons. She has migraines, had a few suspicious things and an abnormal eeg.

My son can have normal eeg and still has seizures!


Best wishes. It is so good that you are getting support. Find good accurate info and this will help you as well. It is a shock to have a diagnosis of a chronic disorder. Epilepsy.Com is a good place for information......
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Emeria
replied on October 15th, 2004
New User
Thanks very much for the reply Smile

yeah, it is very hard to deal with or even understand. Its now been over 9 months since it all started and its still hard to let it sink in.
The medication is a pain, mostly because I now seem to have pretty bad memory problems (i forget all sorts of little things, but I lost my entire memory surrounding the first seizure!), and it does make me tired earlier... But I guess all I can do is hang in there.

Thanks again.
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JKPorter
replied on October 15th, 2004
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I Am New Here Too But Have Had Epilepsy From 1973
I got it from being a near droweding person ( don't like victim) lol it was just before my last year in high school and with all the drugs and time outs it is a wonder that I passed at all! Exclamation well now I am 49 and still looking for some one that will understand this situation and that will want to to be a good friend
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