Epilepsy Forum - Auditory Seizures


Auditory Seizures

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epilepsyresearcher

New User, Becoming EHEALTHy

Joined: 12 Oct 2004
Posts: 2
Location: New York, NY

Auditory Seizures Posted: 10-12-04 14:11pm


I've noticed some people posting messages about having changes in their hearing assoicated with their seizures. I actually coordinate a research study that examines this particular form of epilepsy. In fact, we have discovered a gene that raises the risk for this form of epilepsy. We are currently conducting more research to examine this type of epilepsy more closely. For more information on this and also how you can help, please visit our webiste at www.Epilepsygenetics.Org or email vce2001 @columbia.Edu.

sami_1982

Experienced User , Rather EHEALTHy

Joined: 13 Dec 2003
Posts: 200
Location: Australia

Hello Posted: 10-13-04 01:39am


That sounds really interesting. My epilepsy began 12 months ago out of the blue. Unfortunatly I am not fully medicated an I still have seizures. I am constantly asking ppl if they have said some thing to me and they havent said a thing. My eyes feel blury and hurt when I write. I think its when I am trying to concentrate. Or focus too hard. Also my mri and ct scans have all came back clear and I dont have a correct answer about my condition. I have seen shrinks. They have ruled out the posibility of pseudo fits.I have seen 2 neurologists. I have had a eeg nothing was seen. But the neurologist did say that there was severe stress all over the test from my brain. The secon eeg was sleep deprived and I was medicated then and nothing was seen on that one. I am currently on the medications epilim ( sodium valproate) 2000mg daily. And tegretol ( cabramazapine) 600mg daily. I am not working because I am having seizures frequently still.The longest that I have gone in 12 months without a seizure is 9 days. I live in australia an if there was any information that you could help me with I would much appreaciate it. I mean if I was over there in the usa I would come an participate.

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