I missed spelled your name mayra . And
it's your sister not your brother.
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codygraz
New User, Becoming EHEALTHy
Joined: 06 Sep 2003 Posts: 2 Location: Kentucky
Posted: 09-06-03 19:14pm
Hi there! I am a 22 year old female and
was diagnosed with epilepsy at 17. My
doctor put me on depakote and I took it
for 2 years and he weaned me off of it
slowly. He told me that it was possible
that I would never have another seizure
again and I had one exactly one year
later. So, apparently it may work for
some people that way, but not in my case.
Mine are mostly controlled with
medication (lamictal), but I did have one
this morning, so hopefully I will be one
of those to grow out of it. Hang in
there! You are not alone!
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crochetd
New User, Becoming EHEALTHy
Joined: 04 Jul 2005 Posts: 1
Learning About Grand Mal Seizures Posted: 07-04-05 11:33am
I have a step daughter who just turned 21
that has grand mal seiazures. I've only
known her for a month so I don't know very
much. I know she cant drive but is it
true you can't ride a bus or public
transportation becuase of the seizures
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darbie05
New User, Becoming EHEALTHy
Joined: 15 Dec 2005 Posts: 15 Location: Ohio
Posted: 03-27-06 19:34pm
Hello,
my 6 yr old son was diagnosed in oct 05
with generalized epilepsy and he has gran
mal seizuers. We are still working with
his dr to get him stablelized. The good
news is that the seizures are not lasting
as long and he is coming out of the post
dital stage faster each time. We have
tried 6 differnet drugs and it has been a
week now with no acitivity. Just keep
with it and you might not have found the
right formula of drugs yet. Good luck.
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edith_h2525
New User, Becoming EHEALTHy
Joined: 09 Jan 2006 Posts: 3
Posted: 03-28-06 10:47am
My son just started having sz. In nov.
05. He is 19 also.
His so far are not being controlled by
meds. So they are thinking of
trying vns.
Just keep trying anything. Joe has been
on 3 different meds so far.
Good luck to you.
Edith
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ltjt_52
New User, Becoming EHEALTHy
Joined: 31 May 2006 Posts: 2 Location: Heber Springs,Ar
Re: Grand Mal Seizures Posted: 05-31-06 21:16pm
plambert
wrote:
my son had his first seizure
when he was 19, I thought he was dying.
:cry: he's 20 now and has a severe seizure
every month or so. He's too old to be
insured so we can't afford a doctors help.
He was diagnosed with "right temporal
interictal epileptogenic". He feels his
life is over. With every seizure he
looses more of his memory and he can't
keep a job. I'm so scared for him.
Wish there was help or something I could
do. He takes dilantin, but he's had 2
seizures on the medication. I feel very
helpless when tells me he has severe
headaches for 3 days after having a
seizure. What can a mother
do?
re: grand mal
seizures, has your doctor ever tried him
on topamax, it is the best i've seen.
Dilantin and phenobarb after years will
deterate your bones, but topamax is great.
You might want to look into that. Hopes
this helps,ltjt
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romeomax
New User, Becoming EHEALTHy
Joined: 03 May 2008 Posts: 1
seizures Posted: 05-03-08 22:58pm
i started having seizures when i was 21
and just like most of us i ignored them.it
started once a month and worked it's way
to 30 a day until i had my first grand
mal,i was 32 and it was the first time i
had ever heard voices,screamingit sounded
like a hundred people........
screaming.the last time i had one was
december of last year and i think the
first time i ever heard actual words,"he's
having a seizuer",screaming,with all the
other voices in the backround.i feal these
sounds coming out of my head.
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RobinN
New User, Becoming EHEALTHy
Joined: 27 Apr 2008 Posts: 11 Location: Southern, CA USA
Thanks: 1
Thanked:0
Posted: 05-04-08 00:09am
My daughter was having up to 6 Tonic
Clonic (Grand Mal) seizures a month.
She is doing Neurofeedback treatment right
now and has not had any since beginning
the therapy.
We tried Tegretol, Gabapentin, Lamictal,
and Trileptal but nothing worked and the
side effects were terrible.
I am so excited about the NF therapy since
there are no side effects
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KrisMiss
New User, Becoming EHEALTHy
Joined: 02 May 2008 Posts: 2
Thanks: 0
Thanked:1
epilepsy Posted: 05-04-08 21:04pm
Hi my partner was diagnosed 2 1/2 years
ago at age 36. She'd never had a grand mal
seizure till 2 months after the diagnosis
(she has partial seizures normally). She
had a huge seizure Sat (4/26) though. She
ended up in the ICU for almost 5 days,
stopped breathing and the whole 9 yards.
We're both tired, she's depressed and I'm
frustrated. Their trying her on new meds,
and I feel like we're starting all over
again. I worry about her, not just the
epilepsy but her overall happiness.
Sometimes I know she feels all alone and
so do I. Her neuro doesn't seem to think
these things are a big deal, he sees it
all the time, but we don't. She almost
died and thats a big deal to me. But he
says he can see her in 3 months. I want
things fixed now. Maybe I'm just not being
patient.
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