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Q: Light Sensitivity.......
asked by:
Jenn
Experienced User
my gp sent me to an optomitrist. I have always had great eye sight but because of my light sensitivity I get headaches all the time. I try to wear my sun glasses but it's not appropriate at work or at night.
The optomitrist is giving me a pair of glasses for work which will have pinkish tint to them which helps cut the glare. I am hoping this is going to work. He is also giving me a pair for driving at night with a special coating to help the light filter through. I am really excited about this. It will mean a lot less headaches. I'll have more info in a couple of days but I wanted to let everyone know there may a new solution to old problems. A lot of us wear sunglasses everywhere we go.
I'll get my work glasses tomorrow and my driving glasses in 2 weeks. I'll let everyone know how they work. I'm keeping my fingers crossed.
Cheers,
jenn
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Replies(25)
sharon
Experienced User
Hi jenn, I also have problems with my eyes being so....Sensitive to light!
I went to get new glasses over a year ago,and he had trouble even looking in my eyes with a light. I felt like a big baby but I couldn't handle it! He was very understanding. He thinks I have something that can be corrected with surgery. I now know that it has to do with my lupus.
He didn't give me new glasses because he said it wouldn't help.
I dicovered that I can where my sun glasses at night and the on coming headlights and street lights don't bother me as bad. I always just thought I was night blind. I learn somthing new every day on this web site!
My eyes are getting really bad, but i'm not sure what I can do about it. It's starting to affect my quilting!
that really bugs me!!
.........Sharon
I went to get new glasses over a year ago,and he had trouble even looking in my eyes with a light. I felt like a big baby but I couldn't handle it! He was very understanding. He thinks I have something that can be corrected with surgery. I now know that it has to do with my lupus.
He didn't give me new glasses because he said it wouldn't help.
I dicovered that I can where my sun glasses at night and the on coming headlights and street lights don't bother me as bad. I always just thought I was night blind. I learn somthing new every day on this web site!
My eyes are getting really bad, but i'm not sure what I can do about it. It's starting to affect my quilting!
that really bugs me!!
.........Sharon
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Jenn
Experienced User
Hi sharon,
i'll let you know how these glasses affect me. My doctor thinks they should help. The ones I have for driving are clear but they have a special coating that allows light pass straight through. He explained this to me and it sounds promising. We'll see.
Are you taking plaquenil? How much?
Cheers,
jenn
i'll let you know how these glasses affect me. My doctor thinks they should help. The ones I have for driving are clear but they have a special coating that allows light pass straight through. He explained this to me and it sounds promising. We'll see.
Are you taking plaquenil? How much?
Cheers,
jenn
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sharon
Experienced User
No, i'm not taking plaquenil. I'm not sure if i've taken it before or not. There has been so....Many different meds that i've taken ,that I can't even remember what it is for? Sharon
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Jenn
Experienced User
Hi sharon,
i take plaquenil every day. It is the one med that I will not give up. It controls my skin rashes, I don't even have to use my creams anymore. It also helps control the flares. They have no idea why it works because it's an antimalarial drug but it does. The reason I asked if you were taking it is because if you are prescribed more than the recommended doseage it can have a bad affect on your eye sight. A recent study shows that it has not affected anyones eyes in the past 3 years, if they were on the recommended doseage. Different things work for different people.
Cheers,
jenn
i take plaquenil every day. It is the one med that I will not give up. It controls my skin rashes, I don't even have to use my creams anymore. It also helps control the flares. They have no idea why it works because it's an antimalarial drug but it does. The reason I asked if you were taking it is because if you are prescribed more than the recommended doseage it can have a bad affect on your eye sight. A recent study shows that it has not affected anyones eyes in the past 3 years, if they were on the recommended doseage. Different things work for different people.
Cheers,
jenn
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sharon
Experienced User
Hi all, I don't get the rash as I heard some of you describe them. I do get an area with a lot of small bumps. They don't always itch, sometimes but not always. I do get a blob of brownish looking spots on my face and neck. Sorta looks like a birth mark gone wild 
when I first went to a rheu. Doctor, he said it was the butterfly rash. It also shows up on my arms at times. I have noticed it appears darker when i've over done it.
Anyone else have this?...........Sharon
when I first went to a rheu. Doctor, he said it was the butterfly rash. It also shows up on my arms at times. I have noticed it appears darker when i've over done it.
Anyone else have this?...........Sharon
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LadyBrannon
Active User, very eHealthy
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sharon
Experienced User
Hello all, I have another 
about lights. I know the lights in the stores bother me and now I know what to do about that. But can the lights in my home be bothering me the same way? I changed the bulb in my lamp I use when quilting from flourescent to reg. It was an uncovered bulb. What about the covered flourescent lighting through out my home?
Most homes have flourescent lighting in the kitchen. And since i'm married to a retired electrition, we have them everywhere.
i'm wondering if that's adding to my constant tiredness whenever I try to cook or clean or do anything. I can't be up doing things around the house without having to take many,many breaks. About every five minutes or so, I have to sit down. this makes it really hard to get
anything done in a reasonabe time.
Sharon
about lights. I know the lights in the stores bother me and now I know what to do about that. But can the lights in my home be bothering me the same way? I changed the bulb in my lamp I use when quilting from flourescent to reg. It was an uncovered bulb. What about the covered flourescent lighting through out my home?
Most homes have flourescent lighting in the kitchen. And since i'm married to a retired electrition, we have them everywhere.
i'm wondering if that's adding to my constant tiredness whenever I try to cook or clean or do anything. I can't be up doing things around the house without having to take many,many breaks. About every five minutes or so, I have to sit down.
this makes it really hard to get
anything done in a reasonabe time.
Sharon
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LadyBrannon
Active User, very eHealthy
Yes!!!!!!
yes, they can bother you...Fluorescent or halogen...Depending on how sensistive you are!
Hugs,
ladybrannon
ps- be glad the hubby is an electrician!
yes, they can bother you...Fluorescent or halogen...Depending on how sensistive you are!
Hugs,
ladybrannon
ps- be glad the hubby is an electrician!
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sharon
Experienced User
Thanks , lady brannon, i'm not so sure my hubby will be all that happy with the news!! He'll change them for me, but he's always been big on flourescent lighting. I've always hated it!!
Now I know why. I'll let you know how he takes the news.
Sharon
Now I know why. I'll let you know how he takes the news.
Sharon
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LadyBrannon
Active User, very eHealthy
Sharon,
i found a company that covers fluorescent lights *safely* if you are interested. I will say up front that I have not used them, I do not know anyone who has...They contacted my group here in nc.
Let me know...Or if anyone else would like the information...
Hugs,
ladybrannon
i found a company that covers fluorescent lights *safely* if you are interested. I will say up front that I have not used them, I do not know anyone who has...They contacted my group here in nc.
Let me know...Or if anyone else would like the information...
Hugs,
ladybrannon
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sharon
Experienced User
Yes, I would like that info. Please, and thankyou for your continuous concern and help!!
my hubby was very understanding about the lighting, as he always is when it comes to my health. lord knows what i'd do without him!!
I'm glad the hot weather is on it's way out, but all this damp weather is making me hurt all over!
is there any season,weather wise that doesn't bother us??
i'm hurting in so many places today, I couldn't count them if I tried!! it's just one of them days!!
Thanks again......Sharon
my hubby was very understanding about the lighting, as he always is when it comes to my health.
lord knows what i'd do without him!!
I'm glad the hot weather is on it's way out, but all this damp weather is making me hurt all over!
is there any season,weather wise that doesn't bother us??
i'm hurting in so many places today, I couldn't count them if I tried!!
it's just one of them days!!
Thanks again......Sharon
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szeeba
New User
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LadyBrannon
Active User, very eHealthy
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szeeba
New User
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LadyBrannon
Active User, very eHealthy
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tbds2000
New User
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tbds2000
New User
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LadyBrannon
Active User, very eHealthy
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sharon
Experienced User
Thanks all, I feel like i've had a real* eye opener * ( a little humor there), on the subject!! 
seriously, I never thought all my eye problems had anything to do with lupus! Why? I have no clue! Everything else does.
I have a lot to talk to my rheumy and my eye docyor about!
Maybe now I will get the proper treatment. I am a little concerned about taking plaquenal( sorry I forgot how to spell it).
If it takes so long to work, what is the positive side to taking it?
What are the side affects?.............Sharon
seriously, I never thought all my eye problems had anything to do with lupus! Why? I have no clue! Everything else does.
I have a lot to talk to my rheumy and my eye docyor about!
Maybe now I will get the proper treatment. I am a little concerned about taking plaquenal( sorry I forgot how to spell it).
If it takes so long to work, what is the positive side to taking it?
What are the side affects?.............Sharon
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