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Get the facts on epilepsy types. Identify signs & symptoms of epilepsy. We outline different types of epileptic seizures so you know when to seek help....
How can you know if you're having an epileptic seizure? We outline how doctors clinically diagnose epilepsy and other seizures here....
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Q: New to All This
asked by: calparaith on October 2nd, 2004
New User
Hi
I have been told I have new adult seizures I am 37 years old and this nightmare has started as of last sunday of 9-26-04 have had three so far that I know of 2 while I was asleep waking up in the hospital was a very unsettling feeling the third happened during waking hours while trying to cook some soup the doctors have placed me on valproic acid 500 mg bid
trying to understand all that is happening and deal with the fact that my life has become as one would say not mine loss of driver license not supposed to go anywhere by myself much less do the simple thing of taking a bath alone I feel as im again a little kid im to see an nero this coming week and from all ive read about them a little apprehensive about seeing one but its like im in this big dark hole trying to dig myself out of the muck with my bare hand not to mention my job has now in there infinant wisdom has placed me on a leave of absence till such time they and the Dr. Deem I may return back to work safely so now another worry about trying to pay for the med and doctors sorry I do not meen to unload just so frustrating I dont know what to do or what is really happaning to me since alot I have read so far is above my head

james
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Replies(3)
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sami_1982
replied on October 3rd, 2004
Experienced User
James
Dear james,
please dont feel that you are unloading your unwanted problems on ppl here. We are all the same if we cant help one another and understand what we are all going through then who can help us. I know its frustrating, at least you are on medication right now. It took the doctors 2 months to put me on something. I am now on 2000mg of epilim and 600 mg of tegretol.

You will have ct brain scans, eeg tests they dont hurt and then you will have mri brain scans then you will have sleep deprived eeg brain test. Dont worry. All mine have came back normal.

And 75% of the ppl whom have the tests do have no known causes. So its indeopathic epilepsy.

I am 22 yr old female and I have only had this for 11 months. Its so strange it comes out of the blue.
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calparaith
replied on October 3rd, 2004
New User
New to All This
Thanks
yes it is strange how this comes on already had a ct scan done wich showed normal my family and roomates have tried to help to point even getting me out of the house wich even now that simple act of going to a store worries me one good thing is a dear friend of mine I have not seen in a while is comming down she also suffers from seizures for about two years now she is the one that has pointed me toward this board and so far what I have read has some what helped me to understand a little more of this
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kayak2mom
replied on October 10th, 2004
New User
It is so hard to get a new diagnosis and cope with all that this means...I am so glad that you have sought out support...It is great the friends and family are trying to keep you involved and doing things outside the house, too. It is so easy to withdraw and that will not help you...



Do you have a good neuro who you feel comfortable with? This is so important and makes treatment easier. Ask that doctor how and whne you should communicate with him. (some allow email, others have you talk to a nurse, a few will call you back to talk with you) news things like new seizures or med side effects are usually things to check with him on....


I keep a journal of seizures, med side effects, problems that come up (suddenly not sleeping or sleeping too much, headaches, etc)
i also request copies of tests and reports and put it all in a 3 ring binder. This helps when they ask questions of me about all these tihngs and I cannot remember.....


Best wishes. I hope you find the med that works for you and support!
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