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Conditions and Diseases > Lupus Forum > Missed You All!
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Q: Missed You All!
asked by: Engelbrecht on October 4th, 2003
New User
Hi - good to be back.

It's good to get back to my computer and read whats been going on with all of you. I have been trying to work for the last week like I used to, sometimes 10 to 12 hour days, and believe me it's not working too well. Even though I now know that it is lupus instead of the numerous other diseases my doctors tested me for and there are medications that will help, it seems to be getting worse even with medication. I had hopes the plaqunil would work faster I guess. I have a job which travel is imperative. I have found over the last week that all of a sudden I just have to stop and sleep. The joint pain has been awful. Not very safe driving long distances. I guess I thought I was doing so well and feeling better but I am so exhausted. Don't know what changed. I am divorced and therefore a single parent. I am also self employed and worry alot about the combination of my job and the effects of lupus. I guess between not feeling well and worry, it doesn't make for a good attitude, huh! This is why I have not been in touch lately. I feel guilty even complaining about this as there are so many others far worse off than myself. Forgive me. Hope all of you are doing alright. I thank god I found all of you and this website.

Lee engelbrecht
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LadyBrannon
replied on October 4th, 2003
Active User, very eHealthy
Welcome back. Your absence was noted...

How long have you been on the plaquenil? It takes about 6-8 weeks before it gets into your system well enough to make a difference.

Keep hanging on! It is tough, but you can do it! You have a great outlook about it! It is all right to vent and you *should* vent. It gets all those ugly feelings out of your mind and body...Keeping the lupus at bay.

Vent away...That is what we are here for. Every one of us has a different disease course...We are all dealing with this disease the best way we know how. Don't ever feel that you can't complain because someone may be worse off than you...You are still dealing with a lot and you need to vent.

Hugs,
ladybrannon
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missinmygwt
replied on July 4th, 2009
New User
I am new here and am feeling the same way lately,had the best 4 weeks,thought i was super woman again,then it startd,now ive been down a whole week and pain has been worse than ever,im just completely xsausted. Nice to know i have others to listen and vent on,hope all are hanging in there,ill be here to listen,Thanks,Tiffani
Lupus is horrible,yes there are worse off people,but we matter too,like all of u im sure when we feel good,we are there to help others worse off than us,wishing every1 Health.
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