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Conditions and Diseases > Epilepsy Forum > Help!!!!! Im Worried About My Fiance
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Q: Help!!!!! Im Worried About My Fiance
asked by: kinania on September 21st, 2004
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Dear all,

this is my first post....I recently found out my fiance has epilepsy..He told me he's had it since he was a kid. He was very reluctant to tell me, and a lot of people dont know. All because he doesnt want people to change the way they treat him. He had a seizure a week ago while on a trip with his boss and friends in his bosses car. I really wish I was with him. Anyway, he now says that he feels his boss is treating him differently. I dont know what to do. He's been really depressed lately. We talked about the possibilities of surgery. Unfortunetly, there arent any specialists around here, we live all the way in africa. I plan to go to the states in january, and I want him to come with me. I dont want to push him, but I want to do everything I can to help him. His seizures have reduced signifcantly, in the last two years he's only got it twice. The first time he slipped and cracked his head. He says when he was younger he used to get it atleast twice a day....... I really need some advice. What can I do to help him.. And does anyone know a good doctor or hospital where he can get the surgery done? Has anyone had the surgery or have any info??? Plzzzzzzzzzzzzzz help........................
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_anna_
replied on September 22nd, 2004
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If you want to help him then dont make his epilepsy the bee all and end all of every situation. People seem to think that epilepsy is an illness and its not it is a condition that thousands of people live with everyday.My son is almost 3 years old and he has at least 4 seizures every day. If I worried so much about it every time he had one then I would be a nervous wreck by now.It is a way of life and you have to deal with it.If he thinks people are treating him different then he doesnt need you to aswell so pls try not to worry about the situation.
Good luck to you both
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SleepyJen
replied on September 22nd, 2004
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I completely agree with anna here. It sounds like you might be treating him differently since finding out too. If he doesn't think it's a big deal, then it's not. ...Especially if he has only had 2 seizures in the past 2 years. He doesn't sound like he needs help.

However, if he's interested in having surgery (and I do mean if he is interested, because it's his decision and his life) then I may be able to help. I had the surgery 5 1/2 years ago in new york, at an excellent epilepsy center, with an excellent surgeon. I don't think they want advertisements on this forum, but if you want more details you can send me a personal message. They had to be cautious with me so I didn't lose too much vision, but even so my seizures are much better now. I still take 3 meds, and I still have simple partial seizures all the time, but they never ever generalize or even turn into complex partials. I can go to school and even work again. There has been a dramatic improvement in my life.

Just keep in mind that surgery is a big deal and it should only be considered if the epilepsy is really interfering in a person's life. Also, not everyone is lucky enough to be a candidate, so a lot of pre-surgical evaluation is necessary. And remember, it's your fiance's decision (not yours). Just support whatever he decides. Good luck.
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kinania
replied on September 23rd, 2004
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Dear sleepy jen & anna,

thank you first off for your replies and advice. I just wanted to clear something. I havent changed at all after finding out and I dont plan to. And im not pushing him into this surgery. We talked about it and I did as much research as I could for him about epilepsy as well as the surgery. One point that I would like to make is that where we live, we dont exactly have the best medical proffessionals and facilities. That is why we decided to move to the states, to new york. Where I plan to go to school and he plans to work and get his masters. I just wanted to get as much info as possible to pass on to him. In the end the decision is his, and I will support him 110% and stand by him no matter what. Thank u again.
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