my son has this week suffered his lung collapsing for the third time in 2 years. He is in hospital with a chest drain and will be discharged tomorrow to convalesce at home for the next 2 weeks.
The hospital recommend that he has an operation on his lung which will:-
1. Staple and seal around the puncture points on the lung.
2. Remove the membrane from between the lung and the chest cavity to allow the lung to sick to the chest cavity. This will stop the lung collapsing again should a further puncture occur.
I should like to communicate with anyone who has had this operation or knows anyone who has to discuss whether there are any after effects or problems with this type of operation.
Brian, I just found this website today. I am 24 years old and my lung has collapsed 2 times. The first time I was running and it just took me down. The second time I coughed at work and out went my air. I hope you have thought about the surgery. I decided in february when my lung collapsed the 2nd time to have the surgery. It hurts bad, but it is worth it. I have not had any problems since and I feel great. I don't know if your son might have a cyst on his lung, but that is what I had on mine. When they did the surgery they cut my cyst off and then kind of scrapped my lung to rough it up so it would heal to my chest cavity. When I woke up from surgery I was in discomfort, and had two large chest tubes coming out my side to drain any fluids. But my dr gave me an epidoral to help with the pain. Also when the chest tubes are removed they do not hurt at all, it's just a little uncomfortable. The worst thing I think about the surgery was I had a nerve cut and that has left me numb in a little area, but my dr says that will heal on it's own. Please feel free to contact me if you would like more of my story. I hope this response reaches you in good time!
Hi its been a year since my lung collapsed, I went through surgery and it was treated but recently since april I sumtyms get difficulty in breathing? Sumtimes currently its happening again? Do you know if it is in connection with my lung collapsing? Has it been said they will be side effects because I was not told.
I'm not sure. I wasn't made aware of any side effects after surgery. Have you spoke with your doctor? I know from experience that I get unconfortable sleeping on the side that I had the surgery on. It's a weird discornfort from my lung being stuck to my chest cavity. But so far that is the only problem I have had other than my nerver being cut during surgery.
Post Surgery After Effects From Spontaneous Pneumthorax
Hi...I had more than 30 collapses over both lungs from age 14 to 19, when I had the "new" surgery of the day (june 1980)....
Today I am 44...Even with more than 50 titaneum staples in both lungs...I am in daily pain...And the frustration is that because the staples are preventing the lungs from collapsing the way they did 20 years ago...I now get air leaks causing extreme pain under my collarbone and up my neck accompanied by constant coughing of yellow mucus and pain up my neck and sometimes down my arm...
Its very frustrating because, 20 years ago, prior to the surgeries, a pneumothorax on either side, or both at the same time was easily seen on conventional x-ray...
Now...Its almost impossible to see it and yet the pain is so debilitating that it effects my ability to run my companies...
Doctors are baffled and have even suggested i'm "faking" it....
Tonight i've been in so much pain that I went to hospital for an xray where I was told to inhale and hold my breath, while xray was taken...I checked the xray myself and admit I couldn't see the pneumo despite the exact symptoms...
I then went through my post operative charts and did some recent and up to date research and found that smaller pneumo's experienced by patients with a previous history and with the titaneum staples have a better chance of catching the small air leaks if they exhale during xray rather than inhale and hold...
My reply to the person asking about after effects ... I can only say that I hope to god for your sake especially the exception and not the rule...
The extreme pain escpecially during menses, (my pneumo's are catamenial), is so dibilitating I cannot work and doctors don't give me adequate pain relief, at least for the few days prior and post my menstrual period.
I would give anything if I could find a doctor to just go back in and explore what new blebs there are and fix it....But I can't...
This disease is like a curse....And the depression from it is completely unnecessary if only I could find a specialist that would help me manage the pain while we find a solution to either eliminate the problem or at least go back in and see if anything further can be done...
But instead...I'm treated like a drug addict, because I ask for percocet, or demorral, when the fact is I hate taking anything but I have to work like the rest of the world... And I don't mind being closely monitored while a more permanent solution is being sought...
I suffer from this ordeal every day of every year for the past 30 years...
Again ... I pray to god....I'm the exception and not the rule...But if I can help anyone out there or if anyone can help me .... Please contact me...
I would love to correspond with other pneumothorax patients.
Casey.....In extreme physical pain, breathless, and tormented by doctors that write me off....
I've had years of collapsed lungs and have recently had another thoracotomy. My Drs kept sending me home for 2 weeks after being xrayed and told I just had a small air leak, until my Husband stormed me down to the Drs and ordered them to get me a CT Scan (I think they were a little scared of him luckily). When I finally got my scan you could see that I had almost no lung still attached to my chest wall, and it was all impossible to see in an xray due to all the previous scarring and portions of my lung being stuck to chest wall. you need to push and push for a CT scan and then you will have the full story - I would think you would need a thoracotomy and have the staples removed and have VATs again. Good luck I feel for you
Wow! I am 27 and had the Mechanical and Chemical Plueridisis Surgery along with a chest tube which was inserted incorrectly.
This is exactly my experience.
Everything you said. The pain for me isn't always there but it comes more than a few times a year and sometimes last up to 2 or 3 months. It's horrible. For years doctors told me this kind of pain is known and try to just treat the pain. In my case the narcotics actually prolong the pain and actually aren't much of help for me.
Luckily I just found something that works for me. It's CBD cream from Colorado. I also use the tinksher and am getting the patch. Don't get me wrong, the pain is still there but I can live my life. I am praying this continues to work.
My next step is a nerve block because up until i read you post i thought my pain was due to excessive scar tissue and nerve damage. I am going to get a Ct scan this week and am hoping I can find more of a permanent fix to the problem.
I still can't believe how similar our experiences are. My symptoms started only about 2 years after the surgery. Please keep me updated if you find anything that works for you and I will do the same
My name is brittany quinlan. I am 19 years old. I was 16 years old when I had my first spontaneous pneumothorax. I'm still suffering from them. I had surgery on my left lung when I was 16 for multiple collapses. It was a real painful ordeal for me, and still is. I could not take any pain killers because the dosage that they gave me in the hospital was too much. I would puke up everything in my system (i'm only 100 lbs. Very tiny person).
What hurt most was that the doctors never believed me. It takes a lot. You have to really push to get these guys to believe you. I had to visit the hospital 7 times before any doctor would take me seriously. They thought because they couldn't see anything on the x-ray, that I was fine.
The procedure was alright. From time to time, I still have pains in my left lung, even after the surgery. The top portion of my lung was stapled together and was scraped up to heal to the chest cavity. For the most part it has been good, but I still get pains... And because they've done the surgery, they think I shouldn't have pain... And that I am lying.
Anyone suffering from these, realize that it is an uphill battle most of the time. Yes, some doctors will notice it. But without a history, like myself, it takes a lot of time to convince them you're not crazy.
hi my name is tim im 24 year old male from the west midlands i have had 3 Spontaneous Pneumothorax in the past 6 months in january i have the operation to sort this out im really scared what im gona be feeling when i wake up from this he said he is going to remove some lung then staple the lung shave my chest wall then stick the lung to it can some 1 help me on this 1 my email is ear timbad301'hotmail.com
im marc from Philippines...i also have spontaneous pneumothorax last year,december 16 during my bday...it was really scary and i thought of dying during the treatment of tetracycline....until now im experiencing difficulty in breathing.i missed a lot how i lived my life when im still healthy....as if that breathing very deep for me is too hard to make...and with that im quite upset...could someone advise me what to do so that i will be back to normal...?thanks a lot...more power....!
BTW,i can't able to sing opera songs now since i'm a music student because i easily get tired when i exert too much air from singing...however,is it okay for me to sing even if i have this disease?
I had my first collapsed lung when I was 17 and had to have the tube in my lung for that... it then happened again about a month ago when I was 18 and i'm praying I'll get better. Some of your stories are very sad and I'll be praying for you!
Also does anybody know a website that has any current research on this condition? I believe that protein powder shakes may have been a contributing factor to my lung collapses.
My name is Kevin and I had a spontaneous pneumothorax in december of 08'. They put a chest tube in me for a few days then released me, when my lung recollapsed later that day. back in the hospital again then, and then they did surgery. I still feel like crap and im f****** miserable. I would like someone to contact me that has had a spontaneous pneumo or something cause i need to talk to someone who has had this. Help me out please...
Hi. My name is Dustin. I've had 5 Pneumothorax incidents since 1992. 3 on the left and 2 on the right. Don't know if there is a connection, but each time I've had one, I had eaten buttered microwave popcorn within 48 hours of the incident. I had the surgery on the right lung after the 2nd incident and the recovery was quick and even painless (relatively speaking). There was no soreness or even after effects - everything was as good as new again. However, I had the surgery on my left lung after the 3rd incident (OCT 2008). This surgery has been a long and even very painful recovery. I am still experiencing numbness on my outer chest and ribs around my side. In addition, deep breathing is always difficult, shallow breathing can at times be a task as well (seems to be more so on the colder days). Furthermore, the numb areas on the outside experience pain on the inside. Like a knot in the stomach...but its in the lung. The internal pain accompanied with the external numbness is a bit like a painful itch inside your body. By that I mean: you can't scratch it to get any relief. Its a very weird sensation. Sleeping on the left side is difficult due to the constant discomfort. It makes life in the city pretty tough, 'cause I walk everywhere - sometimes 10 miles per day...it has been exhausting of late.
Not sure why I'm experiencing a different outcome with my left side, but I scheduled an appt. with my DR. so he can check it out. I'll post the prognosis here for anyone that may be interested.
My son had surgery Dec.2007 and it took him about nine month for the stabbing pain to subside.He had a lot of nerve damage because of the large tear in his lung. The reason for a pneumo is some people have blebs in their lungs.In the lungs, a bleb is a collection of air within the layers of the visceral pleura.My concern is about the staples, can they cause infection if plaque builds up and breaks off and travels through his body.
I was just reading everyones stories and trying to get some info on the subject because Iam scheduled to have surgery in a couple weeks.
Im currently 10 weeks pregnant and 35 years old. I had my left lung collaps about 8 years ago and I had a chest tube while hospitalized for a couple of days and it wasn't too big of a deal no major pain. This time I woke up with chest pain and i knew my lung had collapsed agian. I had another chest tube put in but my lung didnt fill up so they put the tube in a differ location..still no improvement the third tube seemed to work better but not like it should. after 8 days in the hosp with my 4 month old and 7 weeks preg. i was sent home with the tube in and was told i would have the surgery when i was 12 weeks along in my pregnancy. I have been in and out of the hosp and am now two weeks away from surgery I just had my chest tube removed after 3 weeks because my chest was hurting so bad not just around the site but breathing or lying down hurts bad. I feel a little more comfortable but the pain under my shoulder bone can be unbearable. I also have numbness in certian areas from the tube. Iam very worried about having the surgery and the effects it could have on the baby. I was told that I have a bleb that is very large and it would be too risky to not have it done before the baby is born. The fact that its not completely better really leaves me no choice. I can only hope that i recover quickly
My left lung collapsed last April and I was in the hospital for a week before it re-inflated and I was released. The doctors told me there was a 50% chance of the lung collapsing again; not the best odds, but not the worst. Later that year, in June, it happened again and after that they strongly suggested the surgery. I agreed as I was tired of it all.
To answer the question some of you have about how painful the surgery is, my answer is that it depends. The first operation they did, I just woke up groggy with wires and tubes all over the place. A few days later, I sat up for the nurses to check the tubes in my side and the lung fell again. This required surgery round 2...fantastic. After I woke up from the second round, I was in pain and kept moaning until one of the nurses came over to inspect. Apparently, the epidural apparatus wasn't attached correctly to properly administer the pain medication. After they fixed this, I was ok.
It's been over year since all of that, but ever since then, I get what I call 'flutters' every once in awhile where I, for a few seconds, feel by breath catch and something shutter in my chest. I was nervous at first, but the collapsed lung symptoms have never surfaced. Lately, it's been feeling stranger in there than normal, so I may schedule an appointment to check.
Im 29 years old, I had my lung collaps about 7 years ago I had the tube in my side for a couple of days, and nothing has been the same since...my right side has always been sore, deep breaths have always been difficult, theres times I would get scared that maybe something else formed in that lung. Recently had a check up, my Dr. just said everything looks perfect from the xray, nothing strange, just normal healthy lungs. I kept telling him that I do not feel anything normal, but he basically told me its all in my head. What I feel is exactly what dthacker is experiencing (which I hope he no longer has since he posted his reply). One thing I was recommended is to start excercising, respiratory excercises especially with the tri flo apparatus. Guess I'll try that for a few weeks and see what happens. I'll post my results in a few weeks....
hello my name is Cody i am 17 years old. i had my lung collapsed in march 2009 and i got the tube put in. i had the tube in for about 8 days b4 i got it taken out. the doctor told me its a 50% chance of happening again but i never thought much of it.. i got the odd chest pain but nothing liek my lung collapseing.. on Feb 23rd 2010 10 months after having my first lung collapse i got a really bad pain my my cxhest and back and knew my lung collapse.. when i walk fast i feel something moving in my back its really uncomfortable. the docotr said i have to have the surgery. now i was wondering liek how does the surgery work.. what are the side affects is it worth getting it done. ? can someone please halp me out.
hello, im 45 and had my first pneumothorax 6 years ago, i had the surgery nov 09 after my 3rd collapse. the week after leaving hospital my lung collapsed again and i had the chest drain in for six weeks. i have just suffered my 5th collapse. This time i had aspiration then the drain and then the talc, this was so painful but was my chose to have it done as the doctors wouldnt decide as they didnt no if it would work. i am due to see the surgeon in a few weeks but dont have much confidence in having the op again. I have never smoked and there is no explaination for my collapses. Has anyone had to have the operation a second time? Please let me know. Thanks
Hi, my son had is left lung collaspe 3 times and right one once. He had the left lung operated on in December/09 everything seemed to fine until 1 week ago March 19th, he was sure that the lung had collasped went and had a xray done as was told everything was fine. He said that he feels alot of pressure as if someone is standing on his chest. Has anyone Else had this problem??
Yep, totally identify with the pressure on his lung. I had my first collapse about a year ago (I'm 24) and maybe once a month or so I feel a weird pressure/pain in my upper lung, where they stapled it. Makes me paranoid about another collapse :/ but so far so good. Also I'm a runner/surfer and sometimes extra physical exertion will bring on some of this pain. The pain itself wouldnt really be so bad if it didn't come with the fear of another collapse (especially when I'm out in the ocean). But the main point of this post is to say that what helps me the most is just calming myself down, relaxing, and taking slow steady breaths. I've been meditating a lot more since the collapse (breath work and such) and I feel it really helps! Ask him if he'd want to try yoga or something. They teach breath work there and from experience I can say it helps. Hope he feels better.