Lupus Forum - Looking For Support For My Wife

Conditions and Diseases > Lupus Forum > Looking For Support For My Wife

Q: Looking For Support For My Wife

asked by: lupus-husband on September 6th, 2004

New User

Hi one and all.

My wife of 20 years was diagnosed with sle about 10 years ago. It has progressed over time. This year she was hit with kidney damage (diffuse membranous glomerulonephritis). A recent test now shows antiphospholipid antibody syndrome.

While I have tried to do everything I can for her there are some things I cannot do - namely relate with what she is going through.

I am looking for a forum or discussion group for her to join and perhaps talk to other people going through similar problems.

Please let me know what you think of this board and how helpful it has been for you.

Thanks in advance for any input.

Btw - my wife has never used a bboard so any comments on ease of operation would also be appretiated.

Thanks again
lupus-husband

Replies(2)

clarebear

replied on September 6th, 2004

Experienced User

Welcome Sir

Welcome to the lupus board. I am not speaking for everyone, but it seems to me that we accept all kinds of thoughts and comments (except the solicited kind from bogus "cure-alls") from users. Nothing is a bad subject.

You may want to see if your local area has a lupus support group that you can both attend, if she is able to move about. Most support groups accept patients and loved ones as well as friends, doctors, etc.

We all have open ears. Many of us have husbands who are living second-hand to what we are experiencing, mine included. It takes time for some to realize and understand the depth of the situation but once it does sink in it's like an epiphany.

You should check out www.Lupus.Org and see if there is a lupus support group/chapter near you.

Clarebear

LadyBrannon

replied on September 9th, 2004

Active User, very eHealthy

Welcome!

I think clarebear said it very well! There are a lot of us here: we come from different places, are different ages, but we all share that common understanding of having lupus.

We also encourage *you* to stick around!

Again, welcome. If you or your wife has any user questions or any type of question really, pm (private message) me, my username is ladybrannon and i'll be glad to help!

Hugs,
ladybrannon

Learn About Us

Get Help

Join In

Do More

We comply with the HONcode standard for trustworthy health
information:
verify here.

The site is not a replacement for professional medical opinion, examination, diagnosis or treatment. Always seek the advice of your medical doctor or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information written by any author on this site. No health questions and information on eHealth Forum is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor. Posts made to these forums express the views and opinions of the author, and not the administrators, moderators, or editorial staff and hence eHealth Forum and its principals will accept no liabilities or responsibilities for the statements made. Schizophrenia health sitemap.
This page was last updated on January 1, 2009.
© 2008 eForums, Inc