Jenn -- I urge you to seek another opinion
and ask about topomax. As with any drug,
there are side effects different to every
individual, but under a doctor's care, you
should be fine. You can discontinue
taking it if you have problems but topomax
is quickly becoming the medication of
choice for migraine relief. It bothers
me that your doctor isn't open to it for
you, unless you have other medical
conditions you don't mention. Blood work
every year keeps check on liver levels and
appetite changes are rare. I suffered
for more than 30 years with severe
migraines. I tried everything, and I
mean everything but nothing helped me.
Since taking the topomax, I have been
headache free for six years. Not just
migraine free -- headache free. I don't
even get the little headaches anymore.
It is a pill I have to take every day for
the rest of my life, but I don't even
think about (or worry about) getting a
migraine anymore. Special events aren't
ruined because i'm in bed with an icepack
on my eyes. Sick days aren't used up
because I can't see straight from the
pain. Topomax totally changed my life.
Good luck to you.
|
Gaudamus
New User, Becoming EHEALTHy
Joined: 27 Jan 2007 Posts: 2
Posted: 01-27-07 14:59pm
The only problem I have had with topamax
is that it decreased my sex drive a
little. So I cut it back a little. I am
not exactly sure if it works the same way
on women as it does on men, but if so,
keep an eye out.
|
australia-01
New User, Becoming EHEALTHy
Joined: 03 Dec 2007 Posts: 1
Re: Hi.i Am New And I Have a ?..i Am Sharing a Little Much Sorry Posted: 12-03-07 03:38am
Onezaneygal
wrote:
About once a week, I get
these intense stomach cramps, so bad that
I can't even stand up, the pains go up my
back, and then within the hour I have to
go (sorry) diahrea (i know that is spelled
wrong) for at least 1-2 hours, it is so
intense that I get scared and so does my
husband. I have not called the doctor yet
only because I thought maybe I was eating
to much fruit and lettuce. Does anyone
else have this happen????I am sorry to be
so graphic but I don't want to stop the
meds because I think my migraines have
slowed down. Thanks for listening...Take
care...
Hi there. I came to this site to seek
info on Topamax and noticed your comment.
I have had similar symptoms for 42 years
and was only recently diagnosed with
Coeliacs Disease. Coeliacs are allergic
to all foods containing Gluten (Barley,
Malt, Wheat). It has been a massive
change as so many foods contain these
ingredients, especially a lot of
medications prescribed for
headaches/migraines. I thought it might
help you to know of this. Since diagnosed
I've not eaten any gluten and my stomach
cramps and diarrohea have gone completely
as have a lot of my headaches and
migraines. Many people and doctors told
me I had irritable bowel syndrome but it
was only whilst looking for something else
during a endoscopy/colonoscopy that they
found I had Coeliacs Disease. They tell
me I have had this since birth but was
always misdiagnosed. It is a genetic
disease so all my children have had blood
tests to see whether they fall within the
range. I suggest you seriously look into
this as it has changed my life for the
better, just 42 years late!
Hope this helps someone.
|
yasmine
New User, Becoming EHEALTHy
Joined: 14 Dec 2007 Posts: 1
Starting to Take Topomax Posted: 12-14-07 11:55am
Hi, I come from Slovenia, and i have found
this forum, while there aren't any forums
in Slovenian language talking about
TOPAMAX.
And I apologize if my english isn't
perfect....
My doctor has just prescribe me topomax,
today..... i had a surgery in july,
because i had a mucocele in spehnoid
sinuses, and now the mucocele is back, and
because of that i have severe headaches,
so my neurologist has prescribed me
topomax, and to admit, I'm afraid of side
effects, till now I was taking Zaldiar for
my headaches, and they aren't helping me
anymore...
but I'm kinda afraid of taking Topamax....
is the benefit worth of side effects?
|
kdv1338
New User, Becoming EHEALTHy
Joined: 22 Mar 2008 Posts: 1
Topomax Posted: 03-22-08 11:09am
i have been taking topomax for migraines
which it has helped. I can deal with the
side effects of tingling in the hands and
face and even sodas tasting terrible. But
has anyone noticed thinning hair? If so,
does this stop after a certain amount of
time or a dose adjustment?
|
ashysmm1
New User, Becoming EHEALTHy
Joined: 25 Aug 2008 Posts: 1 Location: cali,
topomax Posted: 08-25-08 23:24pm
my husband has been on topomax for about
14 mths now and he is wanting to sleep all
he time now. he said thats part of a side
effect but if it was wouldn't he of had it
sooner help
|
julem4
New User, Becoming EHEALTHy
Joined: 19 Sep 2008 Posts: 3
topamax Posted: 09-19-08 07:41am
I've been on Topamax for 3 weeks and have
built up to 1 tablet in the morning and 2
at night. I've tried every alternative,
nutritional, herbal, diet, medical
treatment known and this is probably my
current last resort. I get up on average 3
migraines a week so I need a preventative
so I can work and live my life. For most
of it I feel I have been held hostage to
migraines. I seem to have so many
triggers. I recently heard of a natural
progesterone treatment but my Dr was not
supportive and I can't get it in
Australia. I'm hoping the Topamax is ok
for me. Like others I have some tingling,
lack of appetite (this is a bonus
actually) and feel like I'm in a fog all
day, but it's better than intense pain. I
also feel really hot a lot of the time,
although my temp is normal. All my
relatives on my mums side have glaucoma so
I hope the vision side effects aren't an
issue for me.
|
reesie_89
New User, Becoming EHEALTHy
Joined: 22 Sep 2008 Posts: 2
Topamax Posted: 09-22-08 09:48am
I understand the "stupid" remark. I took
it about 8 years ago. Their is a weight
loss bonus but boy I could not function.
It was like I was turned into Patrick from
Spongebob. I couldn't focus at all and
had to stop driving after crashing my
husband's Lexus into the fence as I was
trying to park. My depth perception was
seriously impaired. Be careful while
taking it, this was the ONLY prescription
drug that worked, the others turned me
into Dr. Jekyle and Mrs. Hyde plus made my
face very cold and painful, now I just
take excedrine
|
cuteycarrot
New User, Becoming EHEALTHy
Joined: 21 Jan 2006 Posts: 8 Location: Kentucky
Topamax Posted: 09-22-08 21:39pm
I took Topamax a few years ago and it was
HORRIBLE experience. I was meaner than a
snake and I felt SOOOO slow. I am a
petite person and it killed my appetite.
The side effects of being tired, mean and
slow were just too much for me. I've gone
back to taking Inderal as a preventative
and take Zomig when I do get a headache.
|
julem4
New User, Becoming EHEALTHy
Joined: 19 Sep 2008 Posts: 3
topamax Posted: 09-24-08 19:52pm
I find I'm only sleeping about 4 hours a
night is this usual for others? I wake up
really early, but tired throught the day.
Not many migraines though - it's great.
Not much appetite either- also great. I
forget what I'm saying sometimes like my
brain stops working but I don't really
care to have less chronic pain is great
also my moods seem more stable and I'm
much happier probably due to less pain.