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Topomax Question

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Beckie A

New User, Becoming EHEALTHy
Joined: 06 Oct 2006
Posts: 1
Location: PA
Topomax Is a Wonder Med!
Posted: 10-06-06 21:52pm

Jenn -- I urge you to seek another opinion and ask about topomax. As with any drug, there are side effects different to every individual, but under a doctor's care, you should be fine. You can discontinue taking it if you have problems but topomax is quickly becoming the medication of choice for migraine relief. It bothers me that your doctor isn't open to it for you, unless you have other medical conditions you don't mention. Blood work every year keeps check on liver levels and appetite changes are rare. I suffered for more than 30 years with severe migraines. I tried everything, and I mean everything but nothing helped me. Since taking the topomax, I have been headache free for six years. Not just migraine free -- headache free. I don't even get the little headaches anymore. It is a pill I have to take every day for the rest of my life, but I don't even think about (or worry about) getting a migraine anymore. Special events aren't ruined because i'm in bed with an icepack on my eyes. Sick days aren't used up because I can't see straight from the pain. Topomax totally changed my life. Good luck to you.
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Gaudamus

New User, Becoming EHEALTHy
Joined: 27 Jan 2007
Posts: 2

Posted: 01-27-07 14:59pm

The only problem I have had with topamax is that it decreased my sex drive a little. So I cut it back a little. I am not exactly sure if it works the same way on women as it does on men, but if so, keep an eye out.
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australia-01

New User, Becoming EHEALTHy
Joined: 03 Dec 2007
Posts: 1
Re: Hi.i Am New And I Have a ?..i Am Sharing a Little Much Sorry
Posted: 12-03-07 03:38am

Onezaneygal wrote:
About once a week, I get these intense stomach cramps, so bad that I can't even stand up, the pains go up my back, and then within the hour I have to go (sorry) diahrea (i know that is spelled wrong) for at least 1-2 hours, it is so intense that I get scared and so does my husband. I have not called the doctor yet only because I thought maybe I was eating to much fruit and lettuce. Does anyone else have this happen????I am sorry to be so graphic but I don't want to stop the meds because I think my migraines have slowed down. Thanks for listening...Take care...


Hi there. I came to this site to seek info on Topamax and noticed your comment. I have had similar symptoms for 42 years and was only recently diagnosed with Coeliacs Disease. Coeliacs are allergic to all foods containing Gluten (Barley, Malt, Wheat). It has been a massive change as so many foods contain these ingredients, especially a lot of medications prescribed for headaches/migraines. I thought it might help you to know of this. Since diagnosed I've not eaten any gluten and my stomach cramps and diarrohea have gone completely as have a lot of my headaches and migraines. Many people and doctors told me I had irritable bowel syndrome but it was only whilst looking for something else during a endoscopy/colonoscopy that they found I had Coeliacs Disease. They tell me I have had this since birth but was always misdiagnosed. It is a genetic disease so all my children have had blood tests to see whether they fall within the range. I suggest you seriously look into this as it has changed my life for the better, just 42 years late! Confused

Hope this helps someone.
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yasmine

New User, Becoming EHEALTHy
Joined: 14 Dec 2007
Posts: 1
Starting to Take Topomax
Posted: 12-14-07 11:55am

Hi, I come from Slovenia, and i have found this forum, while there aren't any forums in Slovenian language talking about TOPAMAX.
And I apologize if my english isn't perfect.... Smile

My doctor has just prescribe me topomax, today..... i had a surgery in july, because i had a mucocele in spehnoid sinuses, and now the mucocele is back, and because of that i have severe headaches, so my neurologist has prescribed me topomax, and to admit, I'm afraid of side effects, till now I was taking Zaldiar for my headaches, and they aren't helping me anymore...
but I'm kinda afraid of taking Topamax.... is the benefit worth of side effects?
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kdv1338

New User, Becoming EHEALTHy
Joined: 22 Mar 2008
Posts: 1
Topomax
Posted: 03-22-08 11:09am

i have been taking topomax for migraines which it has helped. I can deal with the side effects of tingling in the hands and face and even sodas tasting terrible. But has anyone noticed thinning hair? If so, does this stop after a certain amount of time or a dose adjustment?
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ashysmm1

New User, Becoming EHEALTHy
Joined: 25 Aug 2008
Posts: 1
Location: cali,
topomax
Posted: 08-25-08 23:24pm

my husband has been on topomax for about 14 mths now and he is wanting to sleep all he time now. he said thats part of a side effect but if it was wouldn't he of had it sooner help
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julem4

New User, Becoming EHEALTHy
Joined: 19 Sep 2008
Posts: 3
topamax
Posted: 09-19-08 07:41am

I've been on Topamax for 3 weeks and have built up to 1 tablet in the morning and 2 at night. I've tried every alternative, nutritional, herbal, diet, medical treatment known and this is probably my current last resort. I get up on average 3 migraines a week so I need a preventative so I can work and live my life. For most of it I feel I have been held hostage to migraines. I seem to have so many triggers. I recently heard of a natural progesterone treatment but my Dr was not supportive and I can't get it in Australia. I'm hoping the Topamax is ok for me. Like others I have some tingling, lack of appetite (this is a bonus actually) and feel like I'm in a fog all day, but it's better than intense pain. I also feel really hot a lot of the time, although my temp is normal. All my relatives on my mums side have glaucoma so I hope the vision side effects aren't an issue for me.
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reesie_89

New User, Becoming EHEALTHy
Joined: 22 Sep 2008
Posts: 2
Topamax
Posted: 09-22-08 09:48am

I understand the "stupid" remark. I took it about 8 years ago. Their is a weight loss bonus but boy I could not function. It was like I was turned into Patrick from Spongebob. I couldn't focus at all and had to stop driving after crashing my husband's Lexus into the fence as I was trying to park. My depth perception was seriously impaired. Be careful while taking it, this was the ONLY prescription drug that worked, the others turned me into Dr. Jekyle and Mrs. Hyde plus made my face very cold and painful, now I just take excedrine
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cuteycarrot

New User, Becoming EHEALTHy
Joined: 21 Jan 2006
Posts: 8
Location: Kentucky
Topamax
Posted: 09-22-08 21:39pm

I took Topamax a few years ago and it was HORRIBLE experience. I was meaner than a snake and I felt SOOOO slow. I am a petite person and it killed my appetite. The side effects of being tired, mean and slow were just too much for me. I've gone back to taking Inderal as a preventative and take Zomig when I do get a headache.

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julem4

New User, Becoming EHEALTHy
Joined: 19 Sep 2008
Posts: 3
topamax
Posted: 09-24-08 19:52pm

I find I'm only sleeping about 4 hours a night is this usual for others? I wake up really early, but tired throught the day. Not many migraines though - it's great. Not much appetite either- also great. I forget what I'm saying sometimes like my brain stops working but I don't really care to have less chronic pain is great also my moods seem more stable and I'm much happier probably due to less pain.
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