Teenage girl with epilepsy? Posted: 07-21-03 22:20pm
I am 18 years old and 3 years ago I was
diagnosed with Epilepsy. I'm trying to
deal with it the best that I can but my
family members are not helping. They think
that I'm not trying to deal with it and
not trying to live with it. I can't drive,
can't drink like a normal teenager which
is much harder then they seem to think. I
was also recently raped by my best friend
while having a seizure, which is making
the epilepsy hundreds of times harder to
live with? I say my prayers everynight and
take my medicine. I don't what else I can
do to make myself happier with this
situation. They seem to think I enjoy
being depressed about it or something and
they're mad at me?
|
cj
New User, Becoming EHEALTHy
Joined: 25 Jul 2003 Posts: 2 Location: australia
epilepsy,lauren Posted: 07-25-03 09:43am
hi
im so sorry your family dont realise how
devasting the diagnosis can be.
I was diagnosed at 13,my mum was fantastic
but 1 of my sisters actually violent
vommited after seeing me have a fit.The
other chooses to ignor it.
my partner deals really well with it,im
lucky there.
Perhaps your family are scared too that
you will dwell on it too much when what
you want to do is deal with it,its like a
greiving process in my opinion cos it
feels like part of life has been robbed
away from you.
As for the rape what can i say,its
dreadful,can you get somegood quality
counselling,i talked to the epilepsy assoc
and they were great.
Good luck
cj
|
mamie202003
New User, Becoming EHEALTHy
Joined: 28 Jul 2003 Posts: 2 Location: South Carolina
Lauren Posted: 07-28-03 12:52pm
It's very sad that you have not yet
learned how to cope with it. I'm 20 years
old and have had them for 6 years. I have
learned I can have a normal teenage life
and have fun with my friends without
drinking. Just think you could help them
by not letting them drive drunk. I can
give you tips on how to cope with it. All
you have to do is email me or put me on
you yahoo messager.I never had help
through mine but I'm going to help you.
|
Randi03
New User, Becoming EHEALTHy
Joined: 07 Aug 2003 Posts: 7 Location: clovis
Posted: 08-07-03 01:07am
Hey I know exactlly how you feel
i am 18 and I have epilepsy too I have had
it for 3 years always but you knwo what my
parents kicked me out of the house knowing
I had epilepsy and I cant work to support
my self and cant drive I do drink and it
doesnt do anything to me I take my
medicine like im suppose
im always depressed I dont know what else
to do with myself
|
asmita
New User, Becoming EHEALTHy
Joined: 16 Aug 2003 Posts: 3
Posted: 08-16-03 08:22am
Hey lauren,
well this is sumone new here...... "epilepsy" don't
make it that big an issue of ur
life.......Don't make it ur life take it
as a part a small part of ur life.....I
have epilepsy too for about 12 yrs
now.....Am 22 and yes I also did feel like
u do....Being robbed off certain things
but u know life is so beautiful there is
so much to learn out there in this wide
world.....Really sorry to have heard of ur
rape but
life doesnt end here does it??? We all
have our share of good and bad......Good
is cuming ur way def soon......Being
depressed is only gonna make it worse for
u......U are not able to accept it as far
as I can see.....Well when situations in
life cannot change the best we humans can
do is accept it!!! And trust me once u
accept it!! Things jes fall in the right
place......Me I too had a prob but I found
as I accepted it I have been way ahead of
epilepsy.....So wat if u have a seizure
big deal!!!!! ...... "i wept for shoes
until I saw a man without legs".......Am
sure ur parents will understand
too.......Take care :d
|
KnighthawkBJK4U
New User, Becoming EHEALTHy
Joined: 24 Aug 2003 Posts: 1 Location: Cameron,Missouri
Re: Teenage Girl With Epilepsy? Posted: 08-24-03 01:45am
lauren
wrote:
i am 18 years old and 3
years ago I was diagnosed with epilepsy.
I'm trying to deal with it the best that I
can but my family members are not helping.
They think that i'm not trying to deal
with it and not trying to live with it. I
can't drive, can't drink like a normal
teenager which is much harder then they
seem to think. I was also recently raped
by my best friend while having a seizure,
which is making the epilepsy hundreds of
times harder to live with? I say my
prayers everynight and take my medicine.
I don't what else I can do to make myself
happier with this situation. They seem to
think I enjoy being depressed about it or
something and they're mad at me?
I
think it is rediculus that they act this
way..I was diagnosed when I was 13
also.Totaly blew me away..But my family
was with me 100%..I had the problem with
taking my pills daily.<shame on
me>.But I got it togeather..I'm 37
& still driving,working and living
life to the max that I can..You hang in
there..Talk to your family about
everything..Your feelings,and how all of
you can make this epileptic life a bit
easier on you as wel as your
family..Bryce.. :p
|
laura27
New User, Becoming EHEALTHy
Joined: 07 Sep 2003 Posts: 22 Location: west coast
Move Away Posted: 09-08-03 12:14pm
Sweetheart,
you are not a child anymore. Move. Get
out of your city get out of canada if need
be. Your environment is enormously
stressful. We all know that stress is a
siezure trigger. I know it sounds drastic
but to stay and "deal with it" is dogma.
You have a new condition, you are a new
person, new adult, with unique problems."
start a new life. I did! It is
wonderful. I was diagnosed at eight. I
was told never to go swimming, have my
children early (if at all) and I would
never have a drivers licence. You know
what ? I am 27 and I love to swim. Never
alone. I have two normal, happy healthy
daughters and I have a license. Legally.
Remember your doctor doesn't know
everything. I just disciplined my self to
a strict regime starting at age 14. I
went to bed at 9 pm every night to get 8
1/2 hours of sleep. If i'm hungry I eat.
Did my grades suffer because I couldn't
finish my homework? Yes, of course. But
I still graduated with a 3.0 gpa. Your
"best friend" was never your best friend.
He is slow, pathetice lousy excuse for a
human being. Don't be afraid to hate him.
Contrary to popular belief, hate is a
very useful emotion.
Now comes the harsh part-stop whining to
everyone about your epilepsy. Only you
can deal with it. Only you can help
yourself. You think not being able to
drink is hard? Well, I was a bartender
for two years. Try to imagine telling the
other bartenders you don't drink because
you're epileptic. Remember screw 'em if
they can't take a joke.
Also, think up "pet names" for your
siezures. My husband calls it "dead
bugging" siezure is such an ugly word.
Don't forget to move away. You have
resouces you don't even know about yet.
Good luck.
|
mango_goose
New User, Becoming EHEALTHy
Joined: 14 Oct 2004 Posts: 1 Location: Australia
Stuff Posted: 10-14-04 21:53pm
:d hey hey lauran
i know how u feel i20 and had seizures for
4 yrs now and I also got raped while
having a siezure.
It makes u feel unsafe all the time.
It makes the seizures feel worse.
I dunno my parents dont accept my epilepsy
either. So I just left home. I went into
supported accomadation maybe u should look
into this. I get to live on my own and
have a caseworker that helps me out when
im sick or have had a fit. I dunno.
Hope u get ova it but cuz I know its hard.
Seeeya
hi
"epilepsy" don't
make it that big an issue of ur
life.......Don't make it ur life take it
as a part a small part of ur life.....I
have epilepsy too for about 12 yrs
now.....Am 22 and yes I also did feel like
u do....Being robbed off certain things
but u know life is so beautiful there is
so much to learn out there in this wide
world.....Really sorry to have heard of ur
rape 