Skin Forum - Trichothiodystrophy

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Trichothiodystrophy

do you know what this is?
do you know of any children suffering with this illness?

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Total Votes : 1

Q: Trichothiodystrophy

asked by: sammyjo2 on August 22nd, 2004

New User

Hi I have a 15 year old boy that has been diagnosed with trichothiodystrophy , I am looking for others with this illness , he is photosenstitive to uv rays and has been in extreme pain for a long time ,Vp-it.Com.Au/sammyjoe/ please contact me if you know of any others that are going through similar experiences , we now have a support group as well for ttd and have 40 families with children with this illness.

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