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kat1999
New User, Becoming EHEALTHy
Joined: 30 Sep 2003
Posts: 3
Location: united states
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Autisum
Posted: 09-30-03 08:40am
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Does any one out ther have a loved one or
a friend that has autisum.. Please feel
free to write back to me.. My son does
just looking for some one to talk to
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Carol_D_mom23
New User, Becoming EHEALTHy
Joined: 19 Sep 2003
Posts: 6
Location: USA - NY
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My Son Has Autism, Too (m)
Posted: 10-01-03 21:12pm
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My son is 5 years old and was diagnosed
when he was about 1 1/2. He also may
have adhd. He has been in a special
school since he was 3. His speech has
improved, but his behavior is worsening.
Maybe it is the 5 year old boy trying to
come out or it may be adhd, or both. He
is under the care of a pediatric
neurologist right now, but the doctor has
not been much help. I am also looking
for answers and for someone to "talk" to.
Carol
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kat1999
New User, Becoming EHEALTHy
Joined: 30 Sep 2003
Posts: 3
Location: united states
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Hi
Posted: 10-03-03 11:38am
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Carol,
nice to know that there is some one out
there to talk to. My son is going through
some test right now.. Eeg and a blood
test to rule out mental retardation and
for geneitics also I am very nervous and
scared did you ever have to go through
that with your son...You can ask me
questions and I will try to answer them
the best I know how.. I have a 18oo
number it is for autisum it is cool they
send you all kinds of info that you need
if interested please let me know will give
it... Kathy
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Carol_D_mom23
New User, Becoming EHEALTHy
Joined: 19 Sep 2003
Posts: 6
Location: USA - NY
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Hi Kathy
Posted: 10-06-03 14:13pm
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The pediatric neurologist that is treating
my son did order blood tests. He did not
say why(i think). I decided not to bring
my son for this. I know he will not sit
still for this and it will be very
upsetting for the both of us. That phone
number you mentioned. I would like to
try it. Have you tried any meds or a
special diet with your son? I have tried
both with little difference in his
behavior. How is your son with haircuts?
We have tried different ways with no
luck. I hope my experiences don't
discourage you. I have heard of some
success stories, so I am trying to
continue to be hopeful.
Take care.
Carol
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kat1999
New User, Becoming EHEALTHy
Joined: 30 Sep 2003
Posts: 3
Location: united states
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Hi
Posted: 10-07-03 10:12am
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Hi,carol
we have tried to get his hair so many time
each time we go it is bad I have to sit
with him and hold him so he can get a hair
cut. I have not tried a diet change
because he only eats certain foods and it
is the same thing every day. Here is the
number I told you about.1-800-728-8476
tell them you would like a packet with
information regarding autism and anything
else you can thing of that you might want
to know of.Hope that helps you get the
info you are lokking for.Well I will let
you know what happens when I get those
test done but I wont know the results
intill two weeks after it is done I dont
like that idea but gotta wait. October 16
is the big day and my son does not like to
go to hospitals or doctors office going to
be fun.. Well hope to talk to you soon..
Kathy
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MasonsMommy
New User, Becoming EHEALTHy
Joined: 06 Feb 2004
Posts: 5
Location: Bend,Oregon
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Mine Too
Posted: 02-06-04 16:03pm
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My little boy is autistic. I kow and
relate to what you have said, I have
reached the point where I am no longer
willing to go to the doctor and pay for
them to guess and blow me off.
Just this week I went to see an allergist,
but have to go to the hospital for the
blood draw. (to see about dairy or gluten
allergies) I think my next step should be
with a neurologist. I only have begun to
accept my son's autism from the
evaluations at school. Now I need to
start with the medical, and see perhaps if
I can get any more specific information
about him.
Do any of you have any advice for me as
where to start, other than what I have
mentioned? I cancelled my insurance
because I was afraid he was being treated
based on what the insurance would pay, but
I often feel like they are all just
getting an office fee from me, I have yet
to feel like I accomplished anything more
than writing them a check.......
Thanks for reading.....
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MikeD
New User, Becoming EHEALTHy
Joined: 07 Apr 2004
Posts: 3
Location: Pennsylvania
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Autism And Ds
Posted: 04-14-04 23:20pm
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I have a 4-year-old daughter with down
syndrome who has also been diagnosed with
autism. I believe her type is called
pdd. She is verbal, but she displays
many autistic characteristsics such as
head banging, "zoning out" and repetetive
behaviors.
We have help from our county who provide
therapeutic specialists and other
supports. Check with your local, county
and state governments to see what
assistance they can offer. Your school
district may also be a good source. You
should be able to receive evaluations and
follow-ups from experts in behavioral and
neurological fields . You should seek
consultations with them to obtain a
definitive diagnosis and treatment.
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emilymeghansmom
New User, Becoming EHEALTHy
Joined: 13 Oct 2004
Posts: 1
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Anticipating Doctors Fighting Me On This
Posted: 10-13-04 14:24pm
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I have a dd soon to be 3, she was a
preemie born at 26 weeks gestation. She
has had many issues in her little life and
has overcome many of them. We now
suspect she may be autistic. She has
frequent violent tantrums where she
becomes quite agressive and inflicts pain
on herself and us, she is speech
delayed(18 month age level), she isn't
potty trained and doesnt look like its in
the cards anytime soon as she could care
less if she is soiled and in fact fights
diaper changes. She is busy alllllll the
time, ignores everyone around her unless
she needs something once she gets it shes
back to her own world again, has been in
preschool a month and has nothing to do
with the other kids. This is just
hitting on a few of the issues there are
many more that I won't drag on about here.
I have had issues over the last 3 years
with getting the doctors to listen to me
and i'm fully expecting this to happen
again, my mommy instinct is telling me
something is wrong with my kid and it
isn't wrong very often. We ignored these
behaviors all this time figuring its the
terrible twos but when you put all the
little pieces together it looks like a big
something. My question is did anyone
else have any problems making the doctors
listen and what worked for you also what
does the testing entail? I'm supposed to
call the developmental pediatrician next
week to make an appointment for having
testing done.
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Torismom
New User, Becoming EHEALTHy
Joined: 13 Oct 2004
Posts: 3
Location: Easton, PA
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Autism & Diagnosing Same
Posted: 10-13-04 18:28pm
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As my husband posted back in april, our
4.5 year old daughter, tori, was born with
down syndrome and was diagnosed earlier
this year with autism. From all my
research and personal
experience...Observation of a child is the
best diagnosis. There are "behaviors"
typical of asd (autistic spectrum
disorder) and no 2 children are the same
in these behaviors. The spectrum is very
broad. I picked up on alot of tori's
behaviors unusual for a child with down
syndrome for quite some time and monitored
them and finally decided to have a
psychological evaluation done on her.
Low and behold, mom was right (not that I
wanted to be this time). Tori has alot
of sensory issues and has gotten more
agressive. Her sleep was way off for
months, and things just kept piling up.
She now receives 25+ hours behavioral
health rehabilitative services and is
improving slowly. Kennedy krieger
institute in baltimore is very big on
autism and Dr. George capone is
apparently brilliant. We have not yet
had the opportunity to meet with him, but
have read alot of his research and have
spoken with reps from there and they seem
to have a clue. I love my little one to
death, but as a parent of a child with
special needs, now with a dual diagnosis,
I would rather have 15 kids with ds than 1
with asd. It is a very challenging
disorder and has no reasoning behind it.
At least with the ds, we know what she
has- an extra 21st chromosone and an
attitude. 
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Robertsmommy
New User, Becoming EHEALTHy
Joined: 29 Oct 2004
Posts: 2
Location: Oregon
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New Hear
Posted: 11-01-04 12:26pm
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Hello, iam new hear I just wanted to
introduce my self I have a 2 !/2 year old
son with sever to moderate autisum,and a 3
1/2 year dd who has a hard time
understanding why her brother gets so much
different attention than she does.I dont
know what to do for her,does any one out
their have any advice?
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Torismom
New User, Becoming EHEALTHy
Joined: 13 Oct 2004
Posts: 3
Location: Easton, PA
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New Here..
Posted: 11-02-04 07:33am
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Robertsmom...
Your best bet would be to contact your
local support group. They may have a
sibling support network that you may be
able to get your little one involved in.
They probably have other families in the
same situation whereby your little ones
can get together for a play group.
Torismom....
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Robertsmommy
New User, Becoming EHEALTHy
Joined: 29 Oct 2004
Posts: 2
Location: Oregon
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Thanx
Posted: 11-02-04 15:13pm
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You would thinks so but so far their is no
such thing,all they can tell me is to ask
around or they give a web sit to go to.
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Torismom
New User, Becoming EHEALTHy
Joined: 13 Oct 2004
Posts: 3
Location: Easton, PA
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Siblings
Posted: 11-03-04 08:14am
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I would then call the autism society of
america and speak with them. It sounds
like your support system is very weak if
that is all they told you. Be strong and
take the bull by the horns and call asa
and they should be able to give you some
direction.
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jesus rules
New User, Becoming EHEALTHy
Joined: 29 Jun 2006
Posts: 2
Location: elk river
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Posted: 06-30-06 00:35am
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Hi my name ann.
I have a son who might be autisic,but
i'm frusterated because i'm not sure if he
is or not. He has some of the charistics
of it . Ok he does have the delay speech
you can understand him some of the time.
He is not potty trained yet and he is 4/12
yrs.Old sometimes he says he needs to go
but does'nt do anything. He is hyper
always on the go.He does'nt always look at
you when you talk to him. And when he
does wrong and ask him why he is being
punish he knows what he did.He is going
to see a neurologist in a month in ahalf
to see if he is.And i'm waiting for blood
test to come back to see if he has
fragilex. So am I just crazy or should I
be concern of these condtions.
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jesus rules
New User, Becoming EHEALTHy
Joined: 29 Jun 2006
Posts: 2
Location: elk river
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Posted: 07-01-06 18:20pm
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| jesus rules
wrote: | hi my name ann.
I have a son who might be autisic,but
i'm frusterated because i'm not sure if he
is or not. He has some of the charistics
of it . Ok he does have the delay speech
you can understand him some of the time.
He is not potty trained yet and he is 4/12
yrs.Old sometimes he says he needs to go
but does'nt do anything. He is hyper
always on the go.He does'nt always look at
you when you talk to him. And when he
does wrong and ask him why he is being
punish he knows what he did.He is going
to see a neurologist in a month in ahalf
to see if he is.And i'm waiting for blood
test to come back to see if he has
fragilex. So am I just crazy or should I
be concern of these
condtions. |
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nikki27
New User, Becoming EHEALTHy
Joined: 31 Mar 2007
Posts: 1
Location: co
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Posted: 03-31-07 17:23pm
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hello my name is nikki
I am a new here. i am a mother and single
parent of a 10 year old daughter with
autisum, she was dianosed when she was
about 2 years old . i was wondering if
anyone has information or where to get
info on puberty she's going through the
stages and i'm going crazy . if anyone has
any info i'd be so thankful
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dragongirl08
New User, Becoming EHEALTHy
Joined: 03 Apr 2008
Posts: 2
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hi im new my dd has autisum shes 12 going through puberty now
Posted: 04-03-08 20:10pm
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hi all im new here looking for other mom
to talk too about our specials blessings.
im on line offen and will be checking to
see if any would like to write back and
forth about our children. today we got a
new evalulation after since she was 4 yrs
old came to another town and been here
since tuesday. long testing but finding
out answers slowly she too had the mri and
the eeg and blood work up. thanks so much
dragongirl08
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jennikay
New User, Becoming EHEALTHy
Joined: 22 Jul 2007
Posts: 23
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Posted: 04-03-08 20:35pm
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My son is 11 and he has autism/asperger
syndrome and anytime you need anyone to
talk to I am always available.
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dragongirl08
New User, Becoming EHEALTHy
Joined: 03 Apr 2008
Posts: 2
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hi and thanks i would love to chat with you :)
Posted: 04-04-08 00:53am
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 hi its very
late and i was reading the people magazine
on line while all here at the hotel is
sound asleep.......... wow im tired long
trip and im just exhusted........ but im
sure my dd is m ust exusted with all the
testing talk soon tell me about your son
and a little about you
talk soon joy
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