I was diagnosed with sle late in 1998. I went through alot of meds that didn't work. I'm still using nsaids, and occasionally steriods. I've not been to a specialist yet, but am thinking about it very seriously. I just feel that there has to be something better! Unlike alot of people with lupus, my kidneys have not been affected yet, but I have heart and lung involvement. I have all the other aches and pains that we all have on a daily basis, but my doc just recently put me on amitriptyline to help me sleep. Evidently, I have some kind of seizure while i'm sleeping, that keeps waking me up all night. All I know is I sure do sleep good now! :d thanks for taking the time to read this. I hope to get to know all of you better.
it's nice to hear from you. I also take amytriptiline along with cyclobenzoprene. They help me sleep. I suggest that you see a specialist. It may take a while to find the right doctor for you. Keep smiling and let us know if you have any questions.
i'm new, too. I hope to get to know you and the others. This is the first forum i've joined. I've looked at several of them, but I just couldn't bring myself to participate. I guess accepting this disease and all that goes with it has been a very long process for me. I think you should see a specialist, too. I think it's smart, for one thing, and secondly, I think it sort of helps in the whole acceptance process.
You and the others seem nice. I look forward to being a part of this support network.
I am asking this question on behalf of my cousin who just got diagnosed with lupus. Her neck hurts a lot so everynight she struggles to go to bed, is there anything out there that will ease the pain for her? Pls help. Thanks