Hi,
i'm really sorry to hear about what your sister is going through and the same for her loved ones. It is very trying emotionally for the care takers and so heart breaking knowing how helpless we are for our loved ones.
My 37 year old girlfriend went through excessive thirst last november for about 2 weeks. We all thought it was diabetes but turns out, she was diagnosed with aml late january 2004. My poor baby lingered in the hospital for 4 long months and finally died late may.
I remain very angry, depressed and devastated that this came out of no where and took her. I go to the cemetery every sat and sun as it makes me feel "closer" to her but it is terrible losing someone so special. I will possibly join a support group next month as the individual counseling once a week is not enough.
We weren't together that long but I got so emotionally involved when she got ill. I was at the hospital 5-6 days a week along with her parents so it has greatly affected me and the aftermath of it all has been very difficult.
I don't know much about myelofibrosis but my gf had acute myeloid leukemia so the myelo part sounds like it's the same type of cancer. It's really one of the worst cancers because you cannot have an operation or cut out that part. Once it gets into the blood, good luck!
Please feel free to write me as I have a lot to say along these lines. I wish your sister good luck and good health. You must stay strong, be there for her as much as you can and try to get your mind off the illness, even for just a few moments a day. Easier said than done, I know.