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Conditions and Diseases > Epilepsy Forum > Desperate Question About Birth Defects
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Q: Desperate Question About Birth Defects
asked by: tenngal8183 on August 6th, 2004
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I am 43. I have a 21 year old son with serious problems. He was born with his fingers not being fully developed. The baby finger being the only 'noticeable one'.
My question is he has so many mental problems. Diagnosed at 14 with adhd. Fought the school system for years about no meds till I was finally backed against the wall. Well he did quite well and I was truely pleased with that. He became an honor roll student, graduated with honors. Great kid. Then went off meds because he felt stigmatized in 11th grade. And boy has it been a ride since.

He had always had 'anger outbursts'. Was a detached baby of sorts. Preferred his crib to being held unless being fed. Was extremely shy as an infant. Would go crawl under his crib and play when people would come. Was a good baby outside of these things. He did finally become more affectionate at 1 or so. Then it went totally extreme the other way. Rolling Eyes

my son turned to pot to self medicate. He prefers this to actual meds. Confused
Is just such a mess really. He finally asked for help last week. So off to crisis we went. He has stayed clean. Knows I am serious about this being his 'last chance'. That if he messes up he will be out for good. I have epilepsy and the emotional stuff is very hard on me. His anger outburst the last year are plain scary. Very out of control. I am afraid of him when he gets that way.

Does anyone know if mental defects can occur with anticonvulsants? I was on dilantin 300mg a day. We know he suffered a physical defect of his extremeties. But what about his brain? I can't help but blame myself for him being like this. I have an older son who is fine. I wasn't epileptic with him. He is 23 a soldier, married and doing very well. My heart just breaks for my 21 year old. I want him to be better health wise. Did my meds somehow mess up his brain?
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froggiemommy0104
replied on August 19th, 2004
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Birth Defects
I hav a 3 yr old and a 5 mo. Old. I was on a different med while pregnant but I was told that it is the same for most anti convulsants. Throught the pregnancies I had to see a high risk Dr. And we had to watch for cleft lip, cleft palate, brain development, heart development, spinal cord development, and when both girls were born the got an eeg at a month old the a repeat at a year.
My 2 year old seems to be fine but my new one has already been diagnosed with a seizure disorder.
I have not read anything as far as behavior, I do know that that is also a concern as my girls get old especially with learning and attention spans.
I hope I was some help to you Smile
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Alice in Wonderland
replied on September 4th, 2004
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I have a daughter diagnosed with fetal hydantoin (dilantin) syndrome. She has a slight malformation of her fingers. (thumb is thin and long). She also has very narrow fingernails. She has a problem with a wandering eye as well. (forget what it's called-- similar to lazy eye).



Those things are minor, however. The main concerns are her diagnoses of:
autism
severe/profound mental retardation
adhd

for more information, you may want to check out this website:
Facsline.Com (facs in an abbreviation for "fetal anticonvulsant syndrome).



-alice in wonderland

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tenngal8183
replied on September 6th, 2004
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Thank You Ladies.
You both are a big help and makes me feel empowered to find info on this. I never knew where to look.

I hope I get the answers I need off that sight. Smile thank you again. :d
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Alice in Wonderland
replied on September 6th, 2004
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Hey froggie. I noticed you are from peoria.

The daughter I was referring to in my other post on this thread was born in that very city at st. Francis hospital. :d
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