Joined: 29 May 2004 Posts: 36 Location: santa monica
Help I Am In Agony Posted: 07-24-04 17:59pm
I have some arthritis problems but even
worse my whole back and neck are in spasm
=massive headache too. I cannot stand it
one more minute.
I called my rheumatologist ( a new dr in
my list) and told the receptionist it was
very important to get a call back or I was
going to the er. I waited 7 hours and he
never called me. What a jerk. I think he
doesn't believe me or something. And he
certainly does not believe in pain control
meds . I have nothing. He gave up on me
after he found out I lost my job ( due to
this) he didn't seem to give a rats ass
and gave me a 20 minute lecture about
smoking . Was that what I was paying
for?
Also he did ( I will give him this) refer
me to physical therapy - yes that will
cost me 75 dollars a session 4 days a week
for a month ( that is with insurance I pay
270 dollars a month for) I cannot go. I
lost my job and have 100 dollars period
and no income to ever come again. No
dissability no unemployment.
Please - any idea how I can get
dissability? How can I find a pain
specialist - or does anyone have a referal
for a different rheumatologist in santa
monica , calif
thanks in advance and I sure hope someone
answers this
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purple333
Extremely EHEALTHy
Joined: 01 Dec 2003 Posts: 1420 Location: Sydney
Posted: 08-15-04 03:26am
Universities, colleges, hospitals, some
research places including pharmaceutical
companies often run research into all
sorts of things - it might be worth
checking (emailing, visiting, local
papers, college/university & hospital
noticeboards & newspapers) to see if
there's any research or need for guinea
pigs for trainees going on near you.
Relaxation therapies (local library may
have books/videos/tapes) on yoga,
meditation, relaxation etc these could
help - not the arthritis - but if you
could relax the spasms might reduce - when
my arthritis is hurting I tense & the
pain gets worse if I can relax the pain
eases.
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MTTHC
New User, Becoming EHEALTHy
Joined: 22 Aug 2005 Posts: 2 Location: Washington
Help I Am In Agony Posted: 08-22-05 20:39pm
First of all, you have my empathy. Pain
is one of the worst villans out there, and
it certainly does rob one of our life, and
sometimes even our desire to do anything.
I wonder with your pain in the back and
neck, and your hx of arthritis...Have you
ever been checked out for fibromyalgia??
There are numerous trigger points in the
back and neck, and when I have a flare it
can give me horrible spasms, and pain that
is out of this world. The great news is
that you don't have to see a
rhuemotologist for this. Often times
they (rheu) don't listen, and give out
lectures that we don't need. Start by
checking though with your local chapter of
the arthritis foundation, and seeing if
they have a support group in place for
fibro. Then go, and see who the doctors
are that they trust, and see one of
them.
Your pain may be something totally
different, but I do know that taking some
action is empowering, and can relieve some
of the stress, and make us feel better.
Good luck!!
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alisonjoan
New User, Becoming EHEALTHy
Joined: 29 May 2004 Posts: 36 Location: santa monica
Wow Thansk For Response .. And Interesting Posted: 08-22-05 21:07pm
You are the third person today that
mentioned fibro to me ( cause there was an
article in the la times and evryone
thought it sounded like me) . I posted
the orginal post a while back it seems.
..But I read it and the issues are still
the same. Pain. Vicodin does not even
help.. Nothing seems to help. The pain
moves aroound but is based in my back all
the time. Everyone is baffled. I was
tested for fibro a year and 1/2 ago but
the rheumatologist didn't think so
although I reacted to some trigger points.
His diagnosis was negative. I have been
sick for around or more than 2 years now..
One infection after another..And muscle
pains and fatigue and I am so tired. I am
sick of the no answers .. I am drained by
the daily pain. I know peopel are
thinking I am nutso or a hypochondriac.
But I really am in pain whatever the case
and it is seriously affecting my life.
Thank you for your thoughts and your
empathy. -alison
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alisonjoan
New User, Becoming EHEALTHy
Joined: 29 May 2004 Posts: 36 Location: santa monica
Thanks So Much Jack .. Would Pinched Nerve In a Neck Show Up Posted: 08-28-05 22:36pm
On an x-ray? I gad one of my neck..
Still to be officially readbut I had a dr
look and he saw minor deterioration in a
disk but said it is not that bad. That is
all I ever here .. It is not that bad.
Well it feels that bad.. Now they think
the neck issue is actaully a hand issue as
I do have carpel tunnel.I can feel the
nerve pinching in my elbow but my hand is
weak and painful actaully I have
arthritic issues in my neck back and hips
plus the carpel. I am onyl 35 so this
seems odd to me. Headache is still there
for 2 months ..Not convinced as to its
cause..One is at base of skull which I
think is anxiety.. The other is near my
eye and temple. Now I have more caca
going on like heartburn from my colon to
my throat.
I have been on a list since may when I st
posted to see a rheumatologist...Seems the
clinic lost my place so here goes another
4/5 month wait .
I will check your web page
thanks so much.
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alisonjoan
New User, Becoming EHEALTHy
Joined: 29 May 2004 Posts: 36 Location: santa monica
to Lean Muscle Posted: 08-28-05 22:45pm
Thank you ffor your reply...And wowee they
just take out your gallbladder for
nothing? See I am scardof caca liek that
happening cause now they are attempting to
treat symptoms without finding a cause. I
mean really they are offering me up 2
surgeries for pain control..One for carpel
( I hear odds are not so great) and the
other epiduarl shots and perhaps more in
my back.. Ok great iof it helps.. Btu I
think there is more to this picture. I
always feel seek, I am fatrigues. I have
pain everyday, I seem to have had laods of
infections over the past 2 years 9 and I
never used to get sick at all ever) . Now
I have stomach probelms ( ok well I did 2
years ago also) constant headache... The
fatigue is so bad sometimes I cannto even
see straight.
Ialso do have a panic dissorder.. So
things become confusing as many of my
symptoms could be cuased by the disorder
but I knwo I got ill and then began to get
panic when no one could figure out the
trouble. Course this makes it so drs do
not listen to what I am saying with the
same ear.. I have to tell them cause I am
on meds and do nto want a bad reaction in
the rx department
i really have zero income right now so I
cannto try the pain relief thing at this
time
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alisonjoan
New User, Becoming EHEALTHy
Joined: 29 May 2004 Posts: 36 Location: santa monica
to Purple . I Do Not Want to Be a Guinne Pig More Than I Am Posted: 08-28-05 22:51pm
In the normal healthcare system. I
already feel that way.. Try this try that
but no diagnosis. Some of the pills need
pills so I can can handle side effects
where does it ever end?
Relaxarion is a good idea cause I have
prmanent muscle spasms.. And it turns
into a viscious cycle. What else do you
do when you have arthritis pain? Thoguh
they say my arthritis is nto that bad..
It is that bad... I feel liek hell.
Does it hurt you really bad or should I be
looking for other causes ..Like what
caused me arthritis now ?
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alisonjoan
New User, Becoming EHEALTHy
Joined: 29 May 2004 Posts: 36 Location: santa monica
to Leanmucle Again Re Graves And Natural Drs Posted: 08-29-05 08:43am
Thanks for all the info wow! I sure
appreciate it. I do have almost all the
symptoms on your list of graves..Btu I
also have panic which has many of the same
symptoms
crusshing joints..Yep you have the knees
with the stairs . I have my hips.
Everytime I go ot for a walk just down the
street caca is popping out of wack it is
very wierd.
I have always been terribel about drinking
water but in the last week I have been
doign a gallon a day or so.. Much better
than my usual none.
I cannto afford any dr rightnow..Natural
or otherwise really. I am on disability
.. Or was on temp and the checks stopped.
I am on a 3 month or more wait for
permanent to come through. In the
meantiem I have nothign but food stamps.
I eat fairly healthy.. I am a vegetarian
and only like fresh stuff for the most
part. Meaning I do nto eat a bunch of
processed junk.. Only very rarely.
I have tried digestive enzymes ..They do
not seem to do the trick but perhaps it
was the worng kind or something. I do eat
lots of yogurt as well.
Healthcare here sucks I am in los angeles.
I even have insurance I pay 300 dollars a
month for and I will still go to the dr
and get a bill for another 300 that the
insurance did not cover... So with zero
income I am pretty well stuck at this
point. I am going to a clinic but care
there is not so great .. Takes too long
and they are limited in what they can
provide. But perhaps in some way they
will be better cause they aren't going to
do unecessary things since they have no $
to gain from it. ..At least not from
me.
I just cannto take this chronic pain from
outta no place any longer. I am only 35
years old for crap sakes and I feel liek I
am 95 .
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wolftrades
New User, Becoming EHEALTHy
Joined: 16 Sep 2005 Posts: 5 Location: South Florida
Posted: 09-16-05 00:22am
You need to see a pain management doctor
if you don't already have one.
