Epilepsy Forum - Sever Tongue Bite.....


Sever Tongue Bite.....

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RiffRaffMama

New User, Becoming EHEALTHy

Joined: 01 Oct 2005
Posts: 3
Location: Australia

1 In 10! Posted: 10-02-05 03:52am


Thanks critter. They did tests at the hospital after my seizure. No meds. I was alone when it happened and it was in the afternoon. I was at work and I woke up on the floor having no idea how I got there. It was the scariest thing that's ever happened to me. I'm 25 years old. I have an eeg this week, which i'm hoping will show that this looks to have been a one-off. I've gotta say though that prior to all this I had absolutely no idea how common this was. Lucky me - 1 in 10! Thanks again. Tracy.

Critter074

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Joined: 19 Sep 2005
Posts: 9

Posted: 10-02-05 10:02am


Tracy... Glad you're having all the tests. Hopefully you will get some answers. My sister was not allowed to drive for six months after her first one. That was the hardest part for her, I think. That and just being afraid it would happen again. Unfortunately for her, one week shy of her six months being up, she had 3 more in a 16 hour period. Her's are all nocturnal (in her sleep) so far. Anyway, all her tests came back normal (which can happen), so they just call hers "idiopathic," which means "unknown origin." I guess about 70 to 75% of seizure patients fall into that category. After the second seizure they put my sis on dilantin. Also, they had to set the clock back on the driving so she's back to six months off the road again. That varies from state to state in the united states. I have no idea what the laws are in australia. I believe in england it's one year. Again, hoping for a one-timer for you and will keep you in my prayers. P.S. I really do know when to use caps and when not to, but for some reason, on this board the caps never work properly; you'll notice that, too. Critter ((~.~))

RiffRaffMama

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Joined: 01 Oct 2005
Posts: 3
Location: Australia

I Wish I Knew What Was Normal Posted: 10-02-05 21:29pm


That's really all that bothers me - I don't know what's normal, and yeah, i'm petrified it will happen again. I know plenty of people live with seizures, but the prospect scares the hell out of me. I could be counting my chickens too early or whatever, but I hear of people like your sister critter who was probably told she'd likely never have another one and just when she's starting to feel comfortable again, wham! That's what scares me too. I have two wonderful kids and I certainly don't want to injure them, but even just the thought of having a seizure in front of them worries me. The past few days have been kind of "foggy". I had my seizure friday and spent the weekend not being able to remember everything clearly like normal and feeling really really tired all the time. Is that normal? :( thankfully they don't take your licence off you for one seizure over here. From what i've managed to find out it looks like a 12 month suspension though if I have another one. I've been advised not to drive until my eeg. I don't feel like it anyway - the fogginess isn't good on the road. I am feeling a little clearer this morning though [don't worry, i'm still not planning on driving anywhere - luckily I live quite close to shops etc, so i'm ok on foot :) ]. Thanks again for all your kind words. Tracy.

Critter074

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Joined: 19 Sep 2005
Posts: 9

Posted: 10-03-05 09:19am


G'day tracy ;-) first, to answer your question. Yes, having a foggy memory and feeling really tired is completely normal. I always like to stress that everybody is different but I can tell you what it was like for my sister. After the first seizure (yes, they told her it was most likely a one-timer; they don't want you to stress over it), she was foggy for several days and her memory was horrible. After the second one, 6 months later, she slept for 18 hours straight! In other words, she had one at 3:00am then slept.....Had one a 7:30am then slept.....Then she had a third one at 8:00pm that night. They admitted her into the hospital then (because she had three in one day), and she didn't really come out of it until 9:00am the next morning. That was septemeber 1st and she is still having memory problems. Again, everyone is different so i'm just speaking about our experience. You have to also consider the fact that she is 63 years old and i'm sure that might play some part in all of it. You just don't "bounce back" at that age, I guess. I'm keeping my fingers crossed that yours won't happen again. Try not to stress about it too much (yeah, right!), because I understand stress can really be a trigger. P.S. I agree with you that not driving until your eeg and all tests come back is a good idea. Just not worth the gamble. Thinking of you, critter

VampishOne

New User, Becoming EHEALTHy

Joined: 14 Nov 2005
Posts: 1
Location: Upper Pen. Michigan

Posted: 11-14-05 00:59am


Hi, I am a thirty year old mom of two young boys age 11 and 12 and am new to the forum and though i've had seizures since I was roughly 16 I never really took them as serious until about 5 years ago, 1. Because they happened so infrequently and, 2. My dr played them down as well. Saying that if I took my meds i'd be alright and probably grow out of them. All these years later, the dilantin I was on seems to be helping my body rage war against me, causing a blood disease (antiphospholipid antibodies which is seriously affecting blood consistancy and flow.) I guess it's rare, and they aren't even sure it's the dilantin that caused it but I guess it's been known to in other patients. Because of the blood thinners they've put me on, now i'm on a new seizure med called keppra and I must say so far i'm totally unimpressed. I averaged 1 grand mal sz every year to year and a half. And i've never had an aura until now, the problem now is that i'm having them on the average of one a month. They don't know why I have them, i'm usually postictal(? Spelling) by the time anyone can get to running any tests, and all tests run while I wasn't seizing have come back fine. I do get a bit of an aura now, basically long enuff to say "oh no" then it slams into me full brain seizures. I do major and serious damage to my tongue, I severed it more than half way through about 6 years ago and now every single time I seize I cut it back open. The bad thing is these aren't precision cuts like a surgeon would make but are the jagged rips that your teeth would make, and from what i've been told getting it surgically fixed would be a waste of time and money as I would just split it open again. I'm embarassed to talk, until it's started to heal, and majorly embarassed to kiss my husband at all, maybe just in my head I know, but i'm terrified he can maybe feel it and it might repulse him (he's never said so but I worry.) anyone out there got any ideas at all for a person to protect thier tongue that doesn't have enough warning? Otherwise i'm thinking even though my teeth are healthy permanent removal of my back teeth is the next option. I'm glad to have found you all, I don't know anyone with seizures in my real life and find that I feel alone and confused most of the time.

puka3000

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Joined: 24 Nov 2006
Posts: 1
Location: singapore

Posted: 11-24-06 10:04am


Im only 15 and I have been having sezuirs since I was 14 and just recently I had one when I was home alone and when I woke up I found blood in my bed my tounge was in pain and when I got up there was blood all over the house leading to my bed and I had cuts on me and a few on my head all because I had a sezuire in the kitchen. My tounge is still in pain and I dont know how long it will last because its the 2nd day and I am already underweight for someone of my age and hight. Does anyone know of any way to get this fixed cos I dont want my mom to be scared anymore. She was crying at one stage when I was throwing up and spitting constantly and I realy dont want her to suffer.

ping2low

New User, Becoming EHEALTHy

Joined: 12 Dec 2006
Posts: 1
Location: Dallas, TX

Posted: 12-12-06 18:24pm

puka3000 wrote:

im only 15 and I have been having sezuirs since I was 14 and just recently I had one when I was home alone and when I woke up I found blood in my bed my tounge was in pain and when I got up there was blood all over the house leading to my bed and I had cuts on me and a few on my head all because I had a sezuire in the kitchen. My tounge is still in pain and I dont know how long it will last because its the 2nd day and I am already underweight for someone of my age and hight.

Does anyone know of any way to get this fixed cos I dont want my mom to be scared anymore. She was crying at one stage when I was throwing up and spitting constantly and I realy dont want her to suffer.

i know my mom was really upset & worried when she found out. I pretty much keep them out of the 'e' loop nowadays. Educate them. Let her know that it upsets you to see her upset & this isn't good. Good luck p3k

myoung01

New User, Becoming EHEALTHy

Joined: 17 Sep 2007
Posts: 1

Tongue Biting Posted: 09-17-07 20:04pm


yo i been biting my tongue at night while i sleep on an infrequent basis now for a good year, i'll do it then it wont happen again for a few months. i wake up with sores all on my tongue, and can clearly see bite marks in them. i also wake up with a killer headache on the mornings this happens. it hurts to eat man... to be honest, i do smoke a little weed and do drink a occasion. i'm a 20 year old male (about to be 21) that likes to have a good time... i'm just a little scared that there may be something with me. i never have had a seizure that i know of except for these ones i must be having at night. does anyone have a clue as to what the hell is wrong with me...

RJWUK

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Joined: 10 Feb 2008
Posts: 1

Tongue biting Posted: 02-10-08 15:11pm


Hello, Ive gone 14 months without a grand mal seizure..until the other night when for the first time ever in my 6 years of having epilepsy I actually felt it coming on. Its now 5 days later and my tongue is covered in sores and is incredibly painful after i managed to bite chunks out of it yet again. I have to say this is the worst its ever been and I cant even eat soup at the moment, does anyone have any ideas to at least numb the pain for a while?. Thanks Rick

juliecm

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Joined: 09 Jun 2008
Posts: 1

Severe Tongue Bite Posted: 06-09-08 12:35pm


I have been having seizures for about 18 years off and on due to a head injury from falling off a bicycle. I had one just this past Thursday and bit my tongue worse than I ever have before. Nothing I do seems to relieve the pain - it's excruciating! I have tried an antiseptic mouthwash but it hurts so much to spit it out that it's almost not worth it. Any advice would be appreciated!