Sever Tongue Bite..... (Page 1)

Hello mickeyfan,

i am so sorry for the suffering you have gone through. I know very well the pain of a severe tongue bite and have had to endure this pain off and on for 20 years. My seizures are infrequent, I had one on last thursday night. I woke up in the middle of the night to go to the restroom and when I came back to bed I twitched so I could tell a sz was coming. The next morning I woke up with that completely exhausted worn out feeling and my tongue was swollen from biting it. I hate this feeling. The tongue is so sensitve and every movement in your mouth hurts. I am grateful that my seizures only occur at night and are relatively infrequent. I hope that someday I will outgrow these but I am already 40 so my hope is fading. The tongue is one of the most sensitve areas of the body and any pain there is almost unbearable, especially from a severe tongue bite.

I pray that the good and merciful god will provide you comfort and respite from your pain. Do not give up hope. Keep your faith.

God bless

Hello....
I have had what you describe, micky fan.. I had a severe seizure the other day at the store whilst shopping for christmas presents. Turned me brain to mush. The dr at the er checked me out, and I had bitten my inside lip. And my inner cheek.

Really hurts for ages, the seizures you forget, but the tongue bits are a constant reminder of what happened.

Love sami tc and merry x-mas.

Hello mickey,

statue epilepticus can be very serious. I lost all memory of my childhood because of a status episode. You were lucky you didn't suffer permanent brain or heart damage.

I have not had a seizure for about 4 years now. I've had epilepsy for 37 years. I remember all too well the extreme pain from biting my tongue and cheeks. Just drinking water brought tears to my eyes. It's awful and i'm sorry your going through it. Ask you doctor for some lidocaine or another type of anesthetic that you can swish around in your mouth until the pain goes away. It really helps, especially if you have seizures frequently. My tongue seldom healed completly because of the frequency of the attacks.

Wishing you the best. Hang in there and keep on keeping on.

Jake1

Hi

i have only just started having this (what appears to be the whole epilepsy thing). I have never had a seizure before but this week I have had two, and on both occasions woken with blood pouring from my mouth.

Its painful, and I feel sorry for anyone who has this. I now talk funny, find it difficult to eat and swallow.....Put me off getting my tongue pierced thats for sure!!!

My son had 4 small fits all in as many days ,he had major brain damage 10 years ago ,driving his car came out at 80 mile an hour ,hit the metal on the hard shoulder head first ! 10 years later he had these 4 fits and he was aware that something was happening ,we got an app with a neurologist ,who said it was defo not epilepsy ,then the following week he had a seizure ,bit his tongue ,hit his head as he fell was taken to A/E ,they said wait for next app to see neurologist which is in March next year ,he phoned me today sounding very odd ,his memory is playing up ,then later rang me again and said his tongue hurts badly ,just seen his tongue its split in two down the side ,it's killing him ,talking weird ,muscles hurt ,made app with doc cannot get one till tomorrow morn !

Mickey,sorry to hear that you are having seizures again.Please tell your husband to never put anything in your mouth when you are having a seizure.I know that ativan is not a huge pill,but it is not worth the risk of obstructing your airway while you are having a seizure.I know he means well,but he could do more harm than good in doing so.Hope you get under control soon.
Patty

Thanks for the concern but, the ativan I take to help stop my clusters of seizures dissolves as soon as the spit in my mouth touches it.
Dealing with this doesn't seem to get any better the older I get, my seizures seem to change as my body ages.
The seizures often change in duration and type.
I just keep trying different meds and combos of meds and hope I come upon the magic one.

:)

Mickey fan, I am sorry it is getting harder to deal with this! Hang in there. Yes we were prescribed the ativan at one time and told that same thing about it quickly dissolving away....


Hoping for better control for you!

Only thing I can say is do not spend 20 years in denial wishing and hoping that this is all a bad dream there are so many small things I wish I could do but know I will never be able to do like do what my father and grand father did by joining the navy I pray that there will be no more pain for any one due to suzure it really takes your self essteam level down but salt water will numb your pain I have had 3 suzure in the past two weeks with just me and my 2year old and 3year old wondering why I am on the floor and my wife geting the blood out of the carpet no one should have to go through this kind of pain

Twist, yes, it is a hard thing when you cannot follow the family tradition for going into the service. My kids have had to come to grip wiht this. Dad was a nay vet, they grew up around it. Grandad was army, great uncles and all 4 great grandpa's were military. Grandad has given them some grief saying they are copping out.



I am sorry you have bad ones and little ones to worry abou. Hoping you can get things better controlled soon. Hang in there.....

I always bite my tongue severely when having a fit.I suffered 3 fits the weekend,and my tongue is still swollen.I find using teething gel works as it numbs the pain.
:)

Sorry to hear of your recent seizures shelby. I hope your tongue heals quickly. The only good part of biting my tongue when I had seizures is that I didn't eat for about a week and I lost weight. Talk about doing it the hard way. Take care

jake

:lol: lol yeah your right,surely is the hard way to lose weight.All my mates are jealous...5ib in 1 week.I'm starvin though.My tongue feels a bit better today,i'v managed some beans on toast.
Take care.Xx :)

The best advice I can give you is to keep your mouth as clean as possible.
I know brushing hurts " but it helps"

cameo

Hi mickey

in reading all of the accounts of tongue-destruction I was surprised to see that nobody had mentioned that "auras" before seizures often give enough time for the sufferer to put an appropriate-sized object in the mouth to save the tongue.

My husband suffers from epilepsy and had chomped his tongue repeatedly for years before he started carrying around a rolled up bandage in his pocket. He usually gets it into his mouth before the full-blown seizures occur.

Now, sometimes it doesn't do a perfect job and there are small pokes through the tongue. But the damage is nothing compared to what he was doing beforehand - a lot less blood!

Just make sure the roll of bandage you use is wide enough so you won't choke on it. We use a standard roll of gauze, about 6inches wide and 2 inches thick; then wrap in duct tape for durability (this was his idea, I thought it was softer without). He places it sideways, like a bar to bite down on; as the seizure takes hold, he grinds down on the bandage bar instead of his tongue. He carries it everywhere with him.


K

99% of mine are while i sleep,Wed. night got another bad bite on tongue. i never think of asking Dr.but anyone have an idea? what for pain and put in mouth while i sleep?Thanks so much

I just wanted to say that I stumbled across this forum in my search for information about seizures and have found it fantastic :)
i suffered my first grand mal seizure two days ago and this tongue-biting forum has provided me with my first smile in two days :)
i have been so confused and to be honest - horrified - that this happened to me for seeimingly no reason. The sore tongue has been the one thing that keeps reminding me that it *did* happen and to read that pretty much everyone else goes through the same pains and troubles is incredibly comforting.
And I wanted to add my two cents - i've found plain old paracetamol takes the pain out better than nurofen or similar. That's *if* you can swallow!
Thanks so much.
Tracy.