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Frequent Cold Sores

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Tallwoman

Experienced User , Rather EHEALTHy
Joined: 17 Apr 2004
Posts: 59
Location: US
Frequent Cold Sores
Posted: 07-17-04 17:32pm

Anyone bothered by frequent cold sores? It seems like I get them at least once a month. They're little blisters that break out on my upper lip. Sometimes I get them in my nose too, near the inside of my nostrils. Sometimes i'll get a sore inside my mouth, on my gums. Usually lasts about three days. The ones on my lips last longer. They go through a cycle. Day one is usually itching and redness. Then day two, little blisters. Then day three, seeping. Day four drying and then scabbing over. I hate them. I used to get them every once in a while (two or three times a year). Now, I have them all the time. My kids even tease me, "you always have cold sores mom." if they're contagious you'd never know it. My husband of 27 years has never gotten them.
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clarebear

Experienced User , Rather EHEALTHy
Joined: 29 Sep 2003
Posts: 120
Location: Can't keep up! Florida now!
Cold Sores
Posted: 07-17-04 22:45pm

Hey tallwoman...
Whenever I go see the rheummy they always ask if I get cold sores. I did before I was diagnosed, since then though, nope.

One of my rheummys gave me prescrip for some kind of gargle that helps them go away. I didn't ever use it as I didn't need to. You may want to ask about it.

Hope it helps.

Why they come I have no idea. I'm someone will be very bright and say "stress".

Clarebear
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Tallwoman

Experienced User , Rather EHEALTHy
Joined: 17 Apr 2004
Posts: 59
Location: US
Hey Clarebear
Posted: 07-17-04 22:57pm

Thanks for your reply. You know, the rheumy I see now has never asked me about cold sores. He's more interested in his test results and my neurological symptoms. He doesn't ask me for things that point to a lupus dx like, "do you experience excessive hair loss?" the answer would be yes. "do you experience problems with sunlight?" the answer would be yes. "do you experience cold sores?" "unexplained fevers?" the answer would be yes. And so on.

Well, I try to be patient with him. He does do his best. And I have to trust he knows what he's doing.
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clarebear

Experienced User , Rather EHEALTHy
Joined: 29 Sep 2003
Posts: 120
Location: Can't keep up! Florida now!
Doctors? Trust?
Posted: 07-17-04 23:01pm

You do ***not*** have to trust that he knows what he is doing. You can ***always*** get another opinion.

I know you are having a hard time getting an answer to your symptoms but if he is more concerned about things ***other*** than you then I feel there may be a problem.

I didn't like one of the doctors at the hospital when I was first admitted in 2002 and requested a change. It was done instantly and the new doctor was much better and also more informed on what was going on with me.

Clarebear
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danyul74

New User, Becoming EHEALTHy
Joined: 05 Aug 2003
Posts: 11
Location: Los Angeles

Posted: 07-19-04 12:08pm

Hi there -- I also get cold sores and my doctor prescribed me a really effective medicine called acyclovir (i think that's how it spelled?). As soon as I start to feel the tingling coming on I immediately start taking the medicine and it almost always prevents a sore from forming. Of course you'd need to talk with your doctor to determine if it would be a good fit for you, but it works really well for me.

Dan
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Tallwoman

Experienced User , Rather EHEALTHy
Joined: 17 Apr 2004
Posts: 59
Location: US
Thanks Dan And Clarebear
Posted: 07-19-04 22:49pm

I see the rheumy again in august. You know, i'm going to be assertive and ask him about the cold sores and other symptoms. I really don't want to change rheumys because he's really the best doctor i've seen so far for my symptoms. And i've seen five (yes, 5) neurologists. And he beats all of them! I didn't mention before but he found a disease (a parasite actually) that I had, that no one had tested me for before this. So, I took the treatment for that, and right now we're waiting to see if this has helped. I think he's got his work cut out for him where i'm concerned. Because i'm a regular at the lab (always giving blood for tests) I have short conversations with the lab techs about my ordeal. They speak very highly of this doctor and assure me, that if anyone will find out what's wrong with me, it will be him. They say, "he won't give up." i'll also ask him about the acyclovir. I've heard of that.
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