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Help! What Do I Have?

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igiveup

New User, Becoming EHEALTHy
Joined: 16 Jul 2004
Posts: 5
Location: alberta,canada
Help! What Do I Have?
Posted: 07-16-04 20:59pm

Crying
or Very sad for five years i've been dealing with this, doctors treat you like a liar, dermatologists diagnose barely looking at you,and not really listening.
This is bazzar but pllleeeaasssee believe me i've had sebbaceous cysts before I know what they are but as soon as I mentioned this to my dermatologist he says I need accutane, he dosent seem to hear me when I say this is different! I have bumps and itchiness under the skin, it started 5 yrs ago, i've had swelling, it seems if I don't keep draining(which is not recommended but to keep me sane I do) these things it grows and grows. I have bumps full of hair and fibre that follow a path from my chin all the way up to my left eye, the inner layer of my eye has crossed over about five times I notice that happens when it is puffed up and I havent drained it in a while. I know this is gross please bare with me. I have white fibre that looks like cotton in large amounts come out of my face when i'm just washing or putting foundation on, long 1" or so ingrown hairs some white some black, hard white things that look like bone marrow but can be pulled apart and really are white fibres really compacted, for five years it just keeps coming, I filled up a pill bottle full of the stuff and taken pictures so I will be believed. My dermatologist has had me on all sorts of atibiotics, weak to strong none have any affect at all, he wants me to go on accutane because he says its cystic acne, I can't because I have bi-polar depression, he just does nitro sprays on my face once a week and seems to minimize what I say, ie my inner layer of eye skin covered my eye again told him he looked at me and said I suspect you touched something and touched your eye and it is irritated, I could of spit at him or punched him, i've had this for five years what does he think im stupid!!! My eye happens to be puffed up and when I put water and toner on it hairs and fibres come out so I know its aggrivated by this growth!! I put drops in and leave it and it goes away until the next time I dont drain it for a while. It is spreading---i suspect it's not acne at all perhaps it's some sort of bug that got in from my sebaceous cysts, which are gone now, when my skin is wet and i'm doing a peroxide scrub or general face scrup I can actually see the path its like a big long column or tape worm! But because you can't see this all the time(when im in the dermatologist office) they don't believe me. I'm sick of it and ready to take a knife to my face!!!! I dont go to the dermatologist anymore he upsets me and pushes my moods in to a bad direction, wich could actually turn fatal if it snowballs thats part of the reason I cant handle going in to see him anymore. In canada to get any tests done, particularily alberta its like pulling teeth! Help has anyone ever heard of this, and why is it growing when will it end! My only other option now I can see is to let it grow and go to the hospital when it's huge, signed I cant take it anymore. Sorry for the long message.
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ungj85

New User, Becoming EHEALTHy
Joined: 10 Jul 2004
Posts: 21

Posted: 07-17-04 01:54am

One. Good god, use paragraphs if you want people to actually take their time to read and give you a reply.

Two. That sounds really serious. If I were you, i'd go for accutane for those sabaecious cysts.

Three. About those fibre stuff looking like cotton. I don't know what that is without some sort of image. But all I can say is keep trying different doctors. Some care, some don't.
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purple333

Extremely EHEALTHy
Joined: 01 Dec 2003
Posts: 1420
Location: Sydney

Posted: 07-17-04 02:58am

Have you tried any natural therapists - homeopathy or naturopathy come to mind - there's actually an indian ( as in from india) homeopath who posts on here drvenugopal it might be worth sending him a pm to see what he thinks - if you have pictures send them too (1 picture is worth a thousand words) - otherwise though i'd still seek a natural therapists advice - they are generally moer inclined to both listen & to look for answers outside the "box".

Good luck
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igiveup

New User, Becoming EHEALTHy
Joined: 16 Jul 2004
Posts: 5
Location: alberta,canada
Purple333
Posted: 07-18-04 13:38pm

Thanks for your info, I think I will try that, they do think outside the box. My sister found relief for a problem where doctors were of no help.

Thanks again for your info, its appreciated!
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igiveup

New User, Becoming EHEALTHy
Joined: 16 Jul 2004
Posts: 5
Location: alberta,canada
Ungj85
Posted: 07-23-04 15:05pm

Sorry about the paragraphs

as I said I cannot go on accutane because of my bi-polar depression it could be deadlly to me literally and my sebaceaous cysts are gone its just this path of fibre type stuff, thanks for your interest and reply though Smile
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CFMN

New User, Becoming EHEALTHy
Joined: 20 Mar 2008
Posts: 1
OMG
Posted: 03-20-08 04:29am

I have the same God Damn problem and also got NOWHERE with dermatology. I've had more success with my plastic surgeon who had to remove quite a lot of what he called "diseased skin" from under my chin. I had 2 significant surgeries to remove what I think, from my research, are dermoid cysts. I take an oral antibiotic which I think helps, otherwise, like you, I mostly have to deal with them myself. I pull the more superficial ones out for some relief of the itching and swelling and to stop them from spreading. It has been HELL dealing with this and if you are still at this blog I would like to know how you are doing.
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