hi my name is maria alexandra my daughter mariana (15 months) has low tone hypotonia and descalsification on her bones. She was born fine no problems at all, then when she was 4 months old everything came down, she started to throw up everything especially her milk. Then it started with her foods well everything she thru up. She shaked a lot and her eyes were all crossed. I went to her first doctor and he said that was normal for her reflex, and that her vomiting that was reflux, he reffered me to a gi doctor and saw her and started reglan she started to shake more and her vomiting was worse. Since january (i chaged doctor and nothing either he was concern at first hospitiled her and practice a lot of test but nothing, no answer) till now she hasn't gain weight she is still on 17 pounds, her height is 28.75 inches and her head is still 44 cm since january. I'm always at the hospital doing a lot of tests and they come normal (the best) but she is still going back instead of going up. She doesn't walk, nor crawl and she is very floppy. I'm desperate, i'm here alone no money and trying to the best for her, but i'm falling apart. I have seen gi doctor, neurology doctors, pshycological doctors, nutrionists doctors, genetic doctor and no answer and marinaita still the same, no gaining weight and more floppy and no standing and no walking and very constipated. I'm going crazy and still vomiting. Please if you can help me out that could be the best thing that could happen to marianita and me!!!!!!! Thank you so much for reading and getting back to me. I have faith that one day marianita is going to walk, but if her bones are like that I don't know what is going to happen.
Thank you