I saw your posting as part of my search for information on this diagnosis as well. My doctor is recommending the hysterectomy even though everything is benign. I haven't gone for the second opinion yet but am to see a gyn oncologist. Can you share any information with me?

Any help will be appreciated!

Hi -

i wrote you a reply yesterday, but I have the nagging feeling that it didn't go through and I don't see it posted. Please let me know if you didn't get it and i'll be happy to try again.

Sorry!

Judy

Hi, judy,

no I didn't get your reply and I am not sure I am going to reach you either. I am scheduled for a 2nd opinion with a gyn-oncologist tomorrow so am anxious to hear from you!

Karen

i was recently diagonosed with this disorder and received treatment. The treatment was a dnc followed by three months of progesterone therapy administered via an iud. I am 34 years old and want to have children so having a hysterectomy was not an option. It has been 5 months since my progesterone treatment. At my last ultrasound there was a noticeable increase in the thickness of my uterine lining it went from 10 to 14cm in a matter of a couple weeks. This may indicate that the atypical polypoid adenomyoma is back. If I do not become pregnant this month I will have a saline ultra sound to reveal if I once again have polyps. I am going to see a specialist in accupunture/alternative medicine tomorrow and will ask for alternative treatment options. I suggest strongly against getting a hysterectomy and getting a second opinion.

yes i have this adenomyoma and mine is verry painfull and i have had it for about 8 years and have bin egnoring it.

I have been diagnoised with adenomyosis and its a very painfull disease. It is also very hard to get pregnant with this condition. I did get pregnant last march but lost the baby due to inflimation and the blood supply was also blocked off due to this disease. I ended up in hospital and had to be put on morphine.I have been on decepeptyl which puts you into the menopause and i can not stay on this for long as it thins out the bones.If i cant stay on decipeptyl i really do not know what im going to do as this drug has been my saviour.I have an mri scan tomorrow to check the womb and i also am getting a bone densitity scan to see it the decipeptyh has thinned my bones out.My gynaecologyst has said that she has only seen a hand full of people geting pregnant with this condition.

With as much damage as this disease can do to your body, I would consider the Hysterectomy...Menopause should help you, but the chances of getting pregnant and carrying a baby to full term are not that great...Get a second opinion if you are in doubt...Take care....

Caroline