Complete Hysterectomy Due to Endometriosis Posted: 06-30-04 13:28pm
I am 32 an are booked in to have a
complete hysterectomy due to endo, my
bowel is also stuck to my uterus and I
have a 3 inch cyst on my left ovarie and a
2 inch on my right.I have been having
zoladex implants for the past 3 mths and
will be starting on estrogen patches after
my op which is on the 19th july 2004 all I
hope is that my sex drive will come back
and I will feel like a woman after still I
have gained alot of weight from the cyst
etc which im hoping will go soon after the
op does any one else suffer from endo???
|
ta2dteacher
New User, Becoming EHEALTHy
Joined: 02 Jul 2004 Posts: 2 Location: New Jersey
Complete Hysterectomy Due to Endometriosis Posted: 07-02-04 15:11pm
I am 3 weeks into recovering from a
complete hyst. Due to endometriosis. I
had a completely frozen pelvis: uterus,
tubes ovaries, appendix & colon were
all stuck together. The pain was
unbelieveable. I am 30 years old and
have no children. I had no choice but to
have the surgery. Nothing was able to be
saved. The surgery went a lot smoother
than I thought it would. Recovery,
however, has not been that great. I;m
pretty much bored and tired of being in
pain. My abdominal muscles are sore and
the incision is killing me. I had to
have a vertical incision due to the extent
of my endo. It took over 20 stables to
close me up. I can't bend over, lay down
flat, or lift anything. Sex is the
absolute last thing on my mind. I have
no clothes that fit comfortably, not that
I am dressing to go anywhere, I haven't
been given the okay to drive yet. My
friends and family have been great,
visiting me and taking me out for as much
as I can stand. I haven't started any
hrt yet, my Dr. Wants to wait for 6
months to make sure any endo doesn't grow
back (estrogen makes endo grow) my advise
to anyway about to go through this
surgery, prepare yourself mentally! You
will be limited as to what you can do.
And remember, it won't last forever.
Everyday I feel a little better. I hear
4 weeks is the major marker, after that it
is smoother sailing!!!
|
llf
New User, Becoming EHEALTHy
Joined: 22 Jun 2004 Posts: 2
Endo Reply Posted: 07-04-04 16:10pm
Hi im sorry to hear that you have been
having such a bad time of it,the zoladex
implants have helped alot with my endo
pain all though they are only a short term
answer,i did have alot of bleeding and
discharge but after my second implant it
has stopped completely which is good for
me because I was constantly using pads
which made me sore.Well I go for my pre-op
assessment on wednesday and I will mention
the patches to my Dr.I was under the
impression that once I had a complete
hysterectomy all my troubles would be over
and that I would not get endo again as
there was nothing there. Are you
dissapointed about the no children thing
or was that a concious decision? I do
have 2 boys but its part of being a woman
and it feels odd that I cant have any more
kids even if I dont have the op as im in
such a mess I still cant have them. Im
glad I found this site I have spoken to
some one else who is due to have a
hysterectomy 3 days before me its good to
talk about it. Im also suposed to start
my patches a week after my op they do
things so differently in different places,
where are you from? Im in lincolnshire in
england. Was your tummy very swollen
after your op? They are going through my
c-section scar, I was going to ask to see
it after but ive seen some pictures on the
internet and they made me feel ill,so I ve
changed my mind.Please keep in touch and
let me know how you get on. Thanks for
getting in touch lorraine
|
ta2dteacher
New User, Becoming EHEALTHy
Joined: 02 Jul 2004 Posts: 2 Location: New Jersey
Re:endo Reply Posted: 07-05-04 13:21pm
I am glad to hear that you are getting
some relief from the patches. It is
interesting to hear how differently they
treat the same disease in different
places. I am from new jersey, usa. I
didn't use any medication before or after
my surgery. I won't start hormones for
awhile. It was a very difficult decision
for me and my husband. We always wanted
to have children. But as my husband so
wonderfully put it, my health was more
important. We believe that there is a
different path meant for us to follow.
If we are truly meant to be parents, then
there is a baby out there for us
somewhere. When the time is right, we
will find him/her! For me, the pain from
the endo took over to much of my life. I
couldn't live with it. What it all came
down to is that my quality of life was
more important to me than my organs! As
for my stomach after the surgery, it was
swollen and very sore but everyday it
feels better and better! Good luck to
you. Let me know how it goes at the Dr.
-- sam
|
etredwr8
New User, Becoming EHEALTHy
Joined: 25 May 2004 Posts: 11 Location: Texas
Endo And Hysterectomy Posted: 07-27-04 10:00am
Hi, ladies. I have been reading about
your endo, and the choice... Or decision
to have a hysterectomy.
I also have endometriosis, and I have
been thinking about an hysterectomy. I
was wondering if I could get some advice
from the both of you.
I was diagnosed only two months ago with
stage one. But like everyone else that is
suffering with this disease I still have a
great deal of pain, even after the lap.
My options like everyone else is either
the lupron injections, cbcp, or
hysterectomy.
I know that someone with stage one
wouldn't generally consider something as
drastic as a hysterectomy, but I tryed the
birth control, and they made me very
depressed, and have horrible migraines.
Not to mention that I have to have a
considerably strong dose to keep from
having breakthrough bleeding which in turn
causes me to have a constant bladder
infection.
The lupron injections scare me because
of all the side effects, and from what
research I have done there isn't a great
chance of it actually helping for any
length of time.
The other reason that I would consider
this is because, I have four children, and
have had my tubes tied. I would only
consider a partial (or whatever it is when
you keep the ovaries) if only to avoid the
extreamly painful periods that keep me bed
ridden for three to eight days a month.
I don't intend to make this decision
lightly, and would be greatful or any
advice/opinions/support.
Thanks,
wendy
|
girlsk8ersmom
New User, Becoming EHEALTHy
Joined: 26 Aug 2004 Posts: 2 Location: Metro Detroit Michigan
Hysterectomy And Endometriosis Posted: 08-26-04 12:47pm
Etredwr8: I also agonized over a
hysterectomy and after over 15 years of
battling endometriosis, and long
discussions with my gynecologist, I have
opted for complete removal. My disease
when first diagnosed, was classified as
moderate. It caused total infertility
after my first child (who is now almost
19). I underwent hormone therapy
(synarel) for 6 months which did work for
quite a few years until the inevitable
regrowth came back. Due to my young age
at the time and desperately still hoping
to become pregnant, my doctor advised
against hysterectomy. We tried every
procedure and method to conceive again but
to no avail. While I no longer desire to
have any more children, I did agonize over
the finality of losing my reproductive
organs (i would feel less of a woman,
etc.) but through lots of soul-searching,
and conversations with my very supportive
husband, I know that the temporary
discomfort from surgery will far outweigh
the unbearable pain I have endured these
years and more so for the past 10 months,
being briefly alleviated by a recent
d&c. You know your body best, and
you are the only one who can make the
right decision for you. I just know for
myself, that I want to get back those 2 or
three days every month that I lie in a
fetal position for hours in pain until my
motrin kicks in and I can semi-function.
I finally ended up asking myself, "why
would I want to continue to keep something
that number one, knowing that I no longer
want children at this stage in my life
(41)(and couldn't conceive anyway), and
two, having something in my body that is
of no use to me other than causing me
incomprehensible pain???" I have made my
peace with my body, and embrace the
opportunity to enjoy life hopefully, and
finally, pain-free. My best to you.
|
longears
New User, Becoming EHEALTHy
Joined: 17 Nov 2004 Posts: 2 Location: southern ca
I am being booked now for a laparoscopy
and feeling like I wil just do a
hysterectomy based on experience of
friends. I feel like I wil have no more
kids and why do I wnat to keep having this
pain monthly daily...Bring it on. I find
most peoples expeirnces are pretty good..
It also depends on your outlook too. I
am just strugglinh with the surgery aspect
of it now... And who is gonna take care
of my critters and place ? Etc janice I
also tried bith control and they did not
make me feel good at all !!! Lupron I had
a friend go on and I wil never touch that
stuff.. So waht's left ? This or
hysterectomy and relief?
|
girlsk8ersmom
New User, Becoming EHEALTHy
Joined: 26 Aug 2004 Posts: 2 Location: Metro Detroit Michigan
Longears: I am 9 weeks post-op from my
total hysterectomy and I can tell you that
I feel so much better after the hyst.
Than having to deal with the excrutiating
pain from the endo. In fact, my Dr.
Told me that he does not know how I
endured it for all these years, that's how
bad it was; it also had started to attach
and fuse together other internal organs.
The only thing I would do over again would
be to have the hyst years ago, but for
awhile was hoping to conceive again but
found out that wasn't possible so why keep
something in your body that is causing you
so much pain. You will be laid up for
about 4-6 weeks, depending on what type of
surgery you have. Hospital stay will be
about 3-4 days, if you have
family/neighbors, maybe they could help
out with your critters/place. I felt
pretty good after about 2 weeks, you just
have to be careful about heavy lifting and
stairs (if you have abdominal hyst.) I
can only speak from personal experience
and mine was definitely positive. Any
questions, please feel free to ask, but I
really believe you will feel much better
for it.
|
snowball
Experienced User , Rather EHEALTHy
Joined: 04 Dec 2004 Posts: 159 Location: North Bay,Ontario,Canada
Posted: 01-01-05 22:39pm
You do know that you can still get
endometriosis after you have a
hysterectomy.
|
sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Posted: 01-01-05 23:30pm
I had a complete abdominal hysterectomy
but my situation was a little different as
I had cancer and let me tell you that I
never have any regrets, yes, their was
pain and some stiffness @ 1st for a couple
of weeks but do remember that you do go
thru menopause, heck, I did not have any
problems there either, please do not get
me wrong, I am not trying to scare you. I
have had a lot of surgeries and my
hysterectomy was the best by far.
I do realize this post wa started back in
june, sure hope all is doing well!
Happy new year
sandy
|
cynthiaforbey
New User, Becoming EHEALTHy
Joined: 22 Jul 2003 Posts: 17 Location: north carolina
Endo Too Hysterectomy On Hold Posted: 03-05-05 22:59pm
All of my organs are stuck together also,
I was wondering if any of you experience
lower back pain so bad its better to stand
than to lie down. It seems when I go to
bed at night I am back up after 3-4 hours
of sleep, because my back and hips hurt
so bad I can not sleep ,i have to be on my
feet. Once I am on my feet for a while
the pain goes away. But the problem is no
sleep. I take muscle relaxers and rub
lower back with biofreeze just to get a
few hours sleep. Is anyone else as
miserable as I am. I have been going
through this a year and a half.I was
suppose to have a complete hysterectomy 16
mos ago. I am a chicken when it come to
surgery. Please reply.
Sincerely
,cindy
:oops:
|
lagarti
New User, Becoming EHEALTHy
Joined: 04 Apr 2005 Posts: 1 Location: Chicago
Afraid What Happens After Hysterectomy Posted: 04-04-05 15:47pm
Hi ladies I have been reading your
messages regarding hysterectomy
and I am very concerned about it. I have
had edometriosis for approximately 10
years and the pain gets worse and worse as
months pass by they suggested a
hysterectomy is the only thing I can have
now because I already went through 6
months of lupron about 5 years ago and the
pains went away for maybe 1-2 years but
then they came back.
I am afraid the even if I have the surgery
the pains are still not going to go away.
And howabout when you have sex do you
still feel the same or is there no more
pleasure. :( :cry: :( :oops:
|
Joy L
New User, Becoming EHEALTHy
Joined: 18 Apr 2005 Posts: 1 Location: Virginia
Still Having Pain After Hysterectomy Posted: 04-18-05 11:50am
I am like some of you out there who after
having had a total hysterectomy 7 weeks
ago am back to having terrible back pain
yet again! I was put on hormones the
week after my surgery (which was done
because of endometriosis) I had to start
the hormones right away as I was having
such terrible migraines from not having
the hormones in my system. The doctor
had hoped that I could go for a short
while without them to make sure all the
endo was killed.
I had an appointment last week with my
family doctor he said I had a kidney
infection is treating me for that, it's
been 7 days on antibiotics and no relief
so far. I phoned him this morning and
have another appointment this afternoon to
see where we go from here *sigh*....I
thought this surgery was supposed to take
care of it all!
|
Aken
New User, Becoming EHEALTHy
Joined: 01 Jul 2005 Posts: 3 Location: Indiana
Posted: 07-01-05 14:37pm
I know this is a little late for this
post, but I have been reading all these
posts and have been reading a lot of the
same thing, the surgery was "suppose" to
help, i'm with all of you when I say, as
for possibly helping only part of the
problem i've had a lot more add on since
the hyst..I only had a partial, but my
whole way of living has changed..I think
the only thing "good that has come from
this is no more periods..Doesn't say a
whole lot..I'm only 29, life is hard
enough already w/o the other
complications.. I feel for everyone on
here, truely sorry...Hope things look up,
good luck..;)
terri..
|
stephlg
New User, Becoming EHEALTHy
Joined: 22 Aug 2007 Posts: 1
Lower Back Pain After a Hysterectomy Posted: 08-22-07 22:03pm
Hey ladies- i have had stage 4 endo for
about 4 years - in feb 07 after my 4th
laperodomy I had lost my battle with
endometriosis with a total hysterectomy.
Now 6 months later I am starting to show
signs of lower back pain coming back with
full steam. I am not sure what to think
as of this point. wondering if anyone has
had this situation. i am scheduled to
have tests this week to check it out.
if anyone has feedback that would be great
- thanks stephanie
|
endoneverends
New User, Becoming EHEALTHy
Joined: 20 Sep 2007 Posts: 1
I Had a Hyst. At 28...i've Never Taken Hormones Since... Posted: 09-20-07 22:59pm
I see that some ladies actually take
hormones after a hysterectomy due to
endometriosis! i've been told that I
don't need to take them. I had endo all
over my insides...if they left behind any
endo at all...the estrogen can make it
grow again. I hadn't noticed a big
problem with my attitude until recently
and I was debating on taking
hormones...after reading and remember how
much pain I was in I don't think I will.
Also, my hyst was the best decision I ever
made, BUT it did not get rid of the
endometriosis. I have had surgeries since
removing endometrial mases, adhesions, and
endometriosis...it just moved...but it's
not nearly as bad as it use to be.
Each woman I know with Endo...is also sick
in other ways. GI problems, Pain all the
time, unexplained odd symtoms or
illness...anyone else notice a pattern of
endo patients?
|
Settler
New User, Becoming EHEALTHy
Joined: 08 Nov 2007 Posts: 3
Pain 20 Years After Hysterectomy For Endometriosis Posted: 11-10-07 09:40am
I had a TOTAL hysterectomy for
endometriosis 20 years ago. About a month
ago I started having pain in lower abdomen
and right side similar to what I had 20
years ago. I had urine checked for
bladder infection and also went to
gastroenterologist to check that I didn't
have my ulcerative colitis acting up
again. Both negative. I have heard that
endometriosis can pop up again after
hysterectomy. Does anyone have any
information on this? I'm scheduled for a
c-scan this week. Also, could this happen
after 20 years?
|
CookieK
New User, Becoming EHEALTHy
Joined: 02 Dec 2007 Posts: 2
Endo After a Total Hysterectomy? Posted: 12-02-07 09:04am
I was just reading the post from Settler
and am surprised to hear you can get endo
after a total hysterectomy. I had a total
20 years ago when I was 31 yrs old for
endo and severe dysplasia. I had no
choice....was in severe pain since I
started having my period at age 14. I
tried all the treatments and nothing
worked. The only thing I regret about
having the hysterectomy is I never had
children but the pain was gone finally
The problem I'm
having now is severe pain when I have sex.
I spoke with my gyn about it a couple
years ago and he said it was from scar
tissue and the only thing I could do is
reconstruction of my vagina!! I haven't
been back to a gyn since then and very
seldom have sex because of the pain.
Luckily I have a very understanding
husband but its not fair to him and I'm
really depressed.
I feel like my life is over at age 51..I'm
on antidepressants now and pretty much
just give up on everything. I am curious
if anyone else is having probs with scar
tissue ?
|
healthy123
New User, Becoming EHEALTHy
Joined: 07 Dec 2007 Posts: 2 Location: ,
Posted: 12-07-07 16:00pm
I have had endo for 15 years , I had my
tubes removed and 1 ovary in 1999 ..The
doctor then cleaned out as much as he
could he stated my organs were glued
together back then. Since then I have been
dealing with the pain getting tumors and
cysts that have been removed several times
. I am gettin tired I am 35 and do have
one child and asked my doc to just do a
hysterectomy and he said due to all the
organs glued together it would be a very
dangerous surgery to attach without damage
. My doc has been researching this for
years trying to find a cure and I have
faith in all he says .. Plus he says a
hysterectomy is not for sure to take
away the pain ... I am going in again for
a removal of a tumor this month oon my
uterus and he will try to remove some of
the endo again .. I have had my gall
bladder removed as well... that was a task
I was suppose to go home that day but
stayed for 3 days in the hospital due to
complications. all these surgerys seem
simple but you never know what can go
wrong especially with everything glued
together which is the mosty scariest part.
During that surgery with the gall bladder
they removed the last cyst at the same
time ..
Well I hope this helps ..
|
heather27
New User, Becoming EHEALTHy
Joined: 02 Jan 2008 Posts: 2
Hi There I Had a Hysterectomy 3 Years Ago.... Posted: 01-02-08 17:42pm
Hi there my name is Heather.. i had a
fullhysterectomuy 3 years ago.. I am only
27 now i was 24 at the time.. I had
endometriosis.. I had one child
thankfully. I named her Heavenly Anjel
cause she is my anjel from god.. Anyway,,
I am here wondnering why? My endo hasn't
came back yet thankfilly. But i sitll
have pain. I can't have sex with my
husband hardley because well it hurts to
much. I have went back and back to my gyn
and they keep on saying it's just scar
tissue and the onyl way to remove it is
another Laproscopy and i am so sick of
doing that. I have alot o fscar tissue
built up. But i just had one last ear
around this same time and i am just
wondering if there is anyone else having
to go threw this. I had the hysterectomy
and thought that all of this was behind me
and now i guess that i have to worry about
vaginal cancer now.. There telling me that
i have so many chances to get it now.. I
am just tired of going to the doctor and
them telling me that there is anothere
surgery in my furutre.. whoa whoa ... i
am excited for this one..lol not!.. i am
young i think and i just am wondering why?
why do we have to go threw this..Any of
us.. And i am also wondering well i went
to the doc tor and they were trying to get
me on a program for insurance for young
women who have had hysterectomies and
there telling me that i am too young. i
have to be 35 years of age. Well no
offense to you women that are 35 or
abvove, But they need some sort of
insurance for young women or some sort of
programs out there for us.. I didn't chose
this.. Do you think that i wanted this.
NO. But i have it.. So i wanna know where
the help is for us.. well i know that
this is alot. But i am just frustrated.
if there is anyone that can help i would
appreciate this alot. I am just at a
standstill.. My hormones are going crazy
today i guess.. Thanks everone who reads
this.. Give me some insight
please..heather27
The site is not a replacement for professional medical opinion, examination, diagnosis or treatment. Always seek the advice of your medical doctor or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information written by any author on this site. No health questions and information on eHealth Forum is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor. Posts made to these forums express the views and opinions of the author, and not the administrators, moderators, or editorial staff and hence eHealth Forum and its principals will accept no liabilities or responsibilities for the statements made.
Schizophreniahealth
This page was last updated on June 11, 2008
