Please Help Me Understand, What Is Pseudotumor Cerebri?

I have been dealing with pseudotumor cerebi since I was in third grade. I am now 19 and still have trouble dealing with it. I am not sure what I will and wont be able to do in the future. I mean I am not sure what will happen to me. I was told that by the time I was 16 I would either be dead or blind. Well, I am here and kicking and can see althought I can't see that good. I go to the eye doctor every 6 months before. But now because my vision has changed so much I am going every 3 months. If there is anyone out there who can help me understand what it is I have please write back. Thank you