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Q: Going Crazy
asked by:
tired
New User
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Replies(9)
sweetmelissa
New User
I sure hope that you are feeling better by now and have found some answers to your questions.
I have ms and the problem with ms is that it has so many symptoms that it is sometimes saved until last to be tested for! I had a lot of testing done and my bloodwork came back normal. The mri is what made the diagnosis possible. That is what I would ask your doctor for: an mri. That would wipe out the question once and for all.
If it turned out that you do have ms, this sounds crazy, but right now is probably the best time to be diagnosed! There are 4 different medicines used to treat the disease now! New medical break throughs all the time. I am feeling very positive about it.
Don't let it all drive you too crazy!
melissa
I have ms and the problem with ms is that it has so many symptoms that it is sometimes saved until last to be tested for! I had a lot of testing done and my bloodwork came back normal. The mri is what made the diagnosis possible. That is what I would ask your doctor for: an mri. That would wipe out the question once and for all.
If it turned out that you do have ms, this sounds crazy, but right now is probably the best time to be diagnosed! There are 4 different medicines used to treat the disease now! New medical break throughs all the time. I am feeling very positive about it.
Don't let it all drive you too crazy!
melissa
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tired
New User
Thank you melissa,
no I haven't found out any more and still achey and feeling the same. I have been trying to not dwell on it lately and that seems to help with the going crazy part...Haha, I did go to a massage therapist last week and she about killed me... It hurt so bad...She kept saying poor girl.. My muscles are so retracted all thru my back and neck, she said she never seen it like this.. I will talk to my doctor this week and see what he has to say about ms..
Thanks again for the reply.
no I haven't found out any more and still achey and feeling the same. I have been trying to not dwell on it lately and that seems to help with the going crazy part...Haha, I did go to a massage therapist last week and she about killed me... It hurt so bad...She kept saying poor girl.. My muscles are so retracted all thru my back and neck, she said she never seen it like this.. I will talk to my doctor this week and see what he has to say about ms..
Thanks again for the reply.
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ldylion214
New User
| sweetmelissa wrote: |
| i sure hope that you are feeling better by now and have found some answers to your questions.
I have ms and the problem with ms is that it has so many symptoms that it is sometimes saved until last to be tested for! I had a lot of testing done and my bloodwork came back normal. The mri is what made the diagnosis possible. That is what I would ask your doctor for: an mri. That would wipe out the question once and for all. If it turned out that you do have ms, this sounds crazy, but right now is probably the best time to be diagnosed! There are 4 different medicines used to treat the disease now! New medical break throughs all the time. I am feeling very positive about it. Don't let it all drive you too crazy!
melissa |
melissa,
do you mind if I ask how many lesions your mri showed? My mri showed two large and two small lesions. My doc still will not confirm diagnosis. He wants a spinal tap which I feel isn't necessarily needed. Nicci
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smilingtdot
New User
I am going crazy too ... I keep reading about how people are getting different answers from different doctors and no help. Last year I had a virus - shortly after that things started dropping out of my hands, I have a pain in my left cheek which comes and goes, one episode of loss of bladder control (one doctor said I was having too much chamomile tea - are you joking?), a few episodes of vertigo - one where I was so dizzy I couldn't stand up straight. I have trouble pronouning some words sometimes (mostly s's and th's..). I have a hard time breathing (another doctor told me to excerise ... I've always been a jogger and am short of breath just sitting). My legs are pretty much pins and needles when I am stationary - the trick for me is to keep moving around. I had a couple of weeks with migraines that i've never had before. These past few days, i've found myself waking up in a pile of drool (probably not to attractive if I start to date someone hee hee). I have a twitch on and off in my left hand and toes. My left ankle gives out on me sometimes. A pain in my upper left arm on and off.
People at work think I am nuts. My family thinks I am nuts. My doctor makes me feel like I am nuts. My mri came back clear ... One doctor says it's 5% inconclusive, another says it's up to 25% inconclusive. My evoked potential came back ok. I've insisted on having a spinal tap.
Everyone thinks I just a whiner....But when I have a hard time feeling my legs - it's makes me terrified. My brother has these same symptoms. I asked him to have the mri b/c he hasn't felt well for 10 years (he had monolucleousis 10 years ago and hasn't been the same). His mri came back clear.
I am determined to push on. Thank you for listening. The ms society here says they only help people who are confirmed with ms. With it being such a hard thing to diagnose - what do the rest of us "nuts" do!!!???
Thanks for listening..... I hope all of you who are in the same boat find some answers eventually it makes me feel better reading the postings ....
People at work think I am nuts. My family thinks I am nuts. My doctor makes me feel like I am nuts. My mri came back clear ... One doctor says it's 5% inconclusive, another says it's up to 25% inconclusive. My evoked potential came back ok. I've insisted on having a spinal tap.
Everyone thinks I just a whiner....But when I have a hard time feeling my legs - it's makes me terrified. My brother has these same symptoms. I asked him to have the mri b/c he hasn't felt well for 10 years (he had monolucleousis 10 years ago and hasn't been the same). His mri came back clear.
I am determined to push on. Thank you for listening. The ms society here says they only help people who are confirmed with ms. With it being such a hard thing to diagnose - what do the rest of us "nuts" do!!!???
Thanks for listening..... I hope all of you who are in the same boat find some answers eventually
it makes me feel better reading the postings ....
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ldylion214
New User
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sandyallen
Extremely eHealthy
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ldylion214
New User
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Betty Pooped
New User
Hi
on april 15 of this year, while helping my daughter to pack her apartment, at the end of her first year at university, so she could come home for the summer, I suddenly lost the ability to speak, my right arm went numb, my hand, arm and right leg began tingling and became very heavy.
I knew something was wrong and tried to speak. I sounded like something I had never heard before. Everyone said the right side of my face was all drooped and I was drooling.
Everyone there finally realized something was wrong and 911 was called. I was rushed to the hospital and all the test were started for the search of were the stroke came from. Guess what ? All the test, you name it I had it. All came back perfect. The problem is by june 28 at my last doctors appointment, my right arm and hand are still almost unuseable ( very hard in my line of work, have to keep problems hidden from boss) my speech at times is still not normal. My blood presser on the right is way lower than on the left.
At my last appointment I had to insist on them doing a mri. My doctor did further test due to the problems I still have and he discovered that my right reflexes are must slow than the left. Also I told him of the surgery I am scheduled for in nov for bladder. At that he desided that he wanted to check for ms. I go for the first mri on aug 9 on the brain and aug 21 on the cervical cord. It takes for ever to get these tests in canada and then you can only have one part done at a time. Also you have to have a specialist, so I am luck I had my first problem in toronto and was taken to one of the best hospitals and was turned over to the heart and stoke clinic there, were I was assigned to a specialist.
Any way I am soooo tired these days that all I do is work and sleep. I can sleep 24 hours and still be week and sick the next day.
Now all I hope is that they figure out what is wrong so that I can understand and get on with life. Maybe a medication or something can make me feel some what normal again.
Thanks for listening. I think this is great to be able to share with others that understand.
on april 15 of this year, while helping my daughter to pack her apartment, at the end of her first year at university, so she could come home for the summer, I suddenly lost the ability to speak, my right arm went numb, my hand, arm and right leg began tingling and became very heavy.
I knew something was wrong and tried to speak. I sounded like something I had never heard before. Everyone said the right side of my face was all drooped and I was drooling.
Everyone there finally realized something was wrong and 911 was called. I was rushed to the hospital and all the test were started for the search of were the stroke came from. Guess what ? All the test, you name it I had it. All came back perfect. The problem is by june 28 at my last doctors appointment, my right arm and hand are still almost unuseable ( very hard in my line of work, have to keep problems hidden from boss) my speech at times is still not normal. My blood presser on the right is way lower than on the left.
At my last appointment I had to insist on them doing a mri. My doctor did further test due to the problems I still have and he discovered that my right reflexes are must slow than the left. Also I told him of the surgery I am scheduled for in nov for bladder. At that he desided that he wanted to check for ms. I go for the first mri on aug 9 on the brain and aug 21 on the cervical cord. It takes for ever to get these tests in canada and then you can only have one part done at a time. Also you have to have a specialist, so I am luck I had my first problem in toronto and was taken to one of the best hospitals and was turned over to the heart and stoke clinic there, were I was assigned to a specialist.
Any way I am soooo tired these days that all I do is work and sleep. I can sleep 24 hours and still be week and sick the next day.
Now all I hope is that they figure out what is wrong so that I can understand and get on with life. Maybe a medication or something can make me feel some what normal again.
Thanks for listening. I think this is great to be able to share with others that understand.
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GailMT
New User
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