Couple of Questions About First Seizure - Thanks! Posted: 06-20-04 18:40pm
Hi all,
last week I had a tonic-clonic seizure. I
was taken to the hospital where they
performed a ct scan and blood tests and
were not able to find any immediate
problems.
So, I have an appointment with a
neurologist in two weeks, and I was
wondering if maybe ya'll might be able to
help me out with some questions that are
just driving my crazy!!!
The week I had my seizure, my hands would
tingle/feel numb for a couple of minutes.
Right before my seizure, my hands started
doing this really bad. Has anyone else
felt this?
Since then, I have felt the tingle/numb
thing again, but I have not had another
seizure. Sometimes, the tingling/numb
thing comes across my head, and my front
neck muscles feel really tight for a
couple of minutes.
The er doc told me that a lot of times
they never find the reason why a seizure
happened, so I am getting excited that I
have not had another seizure since then;
however, the tingling/numb thing continues
on a daily basis and concerns me.
The neurologist is going to perform an
eeg. Will it be able to sense abnormal
activity such as that found in epilepsy
even though the seizure was three weeks
ago?
My dad has epilepsy. He had his first
seizure at 21, and I am 26. My regular
doc who referred me to the neurologist is
thinking I may have it too, but I read
that you are not diagnosed with epilepsy
after just one seizure. Has anyone else
heard this?
I am sorry this is so long. I am not a
patient person, and this is certainly
trying what little patience I have.
I appreciate any and all responses.
Thanks so much,
beth
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Posted: 06-21-04 00:45am
Hello there beth.
my name is samantha and I live in
australia.
8 months ago I had my first grand mal
seizure(tonic clonic) and then 7 days
after that I had another and then since
then I have been having them frequently.
No one in my immediate family has
epilepsy. All my tests have also came
back normal.
You say your hands would go numb...
Well...My feet go numb just to my ankles
and then wham bam thank you mam!
Do you know what is going on during your
seizure? I mean can you feel yourself
doing odd things?
I am told that I have secondary complex
partial seizures, and I cant remember what
else I have lol.
But I read that up to 70% of epilepsies
are unknown.
Just remember that you are not alone. I
thought that I was and then I found this
website and all most all of my were
answered. But like you and probably
everyone else here I still have that big
why question that has not yet been
answered for me.
Take care beth talk later.
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SleepyJen
New User, Becoming EHEALTHy
Joined: 31 May 2004 Posts: 41 Location: NYC
I Hope This Helps Posted: 06-22-04 01:01am
Hi beth,
it's true that one seizure does not mean
epilepsy. Epilepsy is a disorder in
which a person has recurring seizures
under normal conditions. Well, that's
the basic definition. Yours could be
isolated. However, since you are still
getting the tingling feeling (and that
seems to be related), there's a chance
that this may happen again.
If this is epilepsy, the tingling is an
aura (a simple partial seizure in itself).
Your eeg may or may not pick up seizure
activity (in the form of interictal
spikes). If indeed this is epilepsy, and
you have the tingling during your eeg, it
will definitely show up.
I see flickering lights every day. They
are simple partial seizures, and used to
also act as an aura for me before I had a
bigger seizure. I rarely have a 'bigger
seizure' anymore though due to surgery and
medication. My eegs always show
interictal spikes regardless of whether
i'm seeing the lights are not.
Prior to the week you had the seizure, had
you ever experienced this tingling
before--even years earlier?
Best wishes and good luck at your
neurologist appt. Make sure you like and
trust him/her.