Are you stressed, anxious, depressed, sometimes this can cause problems too!
Sincerely,
sandy

Thanks for the response, but stress doesn't seem to be a factor. I don't think it's a panic attack. I don't have depression and everything else is going great! Thanks again for responding...

Hello stabile

i believe that what you are having are seizures. No one can say you are or you arent.
Mine began in late october 2003
and now they have not stopped, no one in my family has them. They just came upon me. I am female and I am 21.
I have had all the tests and I still keep having them I am on a med combo at the moment and this new neuro wants to take me off one med. I was all like he is crazy. I still have 2 a week. Better then what I was having b4 wich was 7 per day.

Hi stabile,
i too think that what you are experiencing are seizures. One of the difficult things about any seizure condition is that it rarely can be determined how it started...It just does. I was diagnosed with petit mal when I was 7 (i'm now 2 when I was 19 tonic seizures began pretty much out of the blue. All along they have not been able to identify why I have seizures. I've had eegs done and they show seizure activity. But when I had an mri done they saw nothing abnormal. This is one thing I find frustrating...Not knowing why the condition exists.
The are such things as non-epileptic seizures however, I don't know enough about them to give you any accurate information. It might be something to look into though.

Sami...I was wondering, what kind of seizures do you have?
Kathy

Yes, I think the most difficult thing is just not knowing. Thanks for the response, this is the first time i've tried this. 20 years of not knowing what's wrong with me. And I don't know anyone who has seizures to be able to compare. My last doctor told me "let me know when it happens again". I told him it could be a year. Seemed kinda like he didn't know, didn't care, or didn't believe me.

I did some reading about them and found that seizures will never be painful. I'm not sure if that's true. This is why I think mine are different. Has anyone ever had pain? Can you also tell when your about to have one? What does a seizure feel like to you? Do you dream?

Hi
my seizures are grand mal, full body convulsions. The doctors think that I have temporal lobe epilepsy, I have never had any abnormal reading on a eeg test. I have had sleep deprived eeg,mri,ct. And nothing abnormal, blood tests, heart tests and all normal. I am the only one in my family that has this.
i know that I can be aware of what is going on sometimes, it scares me to death, when I feel my body uncontrolably convulsing, and I have no control over myself. Sometimes after a lim has been paralysed. I also feel so tired that I can sleep for ages and ages. I can have up to 10 hrs sleep. One dr says I am epileptic the next says I have emotional issues. I am not stressed out or nothing.
Although my very first eeg reading when I was not on medications showed that there was severe stress waves in the 15-17 electrodes. I dont know what that meant.
The neurologist was to busy on the telephone instead of talking to me about why I am like I am all of a sudden.
Prehaps it is all anxiety and I panic and cause myself to seize.
I remember one time when I was about 12 I was on a school camp and I was in a small canoe and I tipped over. I couldnt get out I was stuck upside down underwater. I got panicked and then the staff of the camp helped me out.
I guess I get the same feeling of being stuck somewhere I cant get back from so I guess thats my dream like state, I just hate it.
I have hillucinations, visual, and I hear my name being called alot like a whisper, my eyes blur in and out of vision. I just am scared. I dont want to feel like this again.

Hi stabile,

i also think these could be seizures. There's really no sure way to know unless you had one of those episodes during an eeg. Even people with epilepsy can have perfectly normal eeg results (if they're not seizing at the time of the test). What kind of doctors have you been discussing your problem with? Even neurologists often misdiagnose epilepsy. (a handful of them misdiagnosed me.) I recommend that you have a consultation with an epileptologist. He/she can probably help to clear up this question for you.

Best of luck,
jen

Hi stabile,
for me when seizures happen I am unconcious so I don't feel any pain. I remember when one started one time, I fell against the wall as it began. I remeber thinking.."oh, that probably hurt" but of course hadn't felt anything because I was only a second away from being unconcious. Other times I have bitten my cheek, which when I wake up is sore, but I never feel it happening. Often times i'm so tired afterwards that all I can do is sleep. There have been times that my whole body ached from being so stiff. I never convulse, but rather completely stiffen and jolt a little bit. I saw my neuro the other day (who fortunately is really great and supportive) and he always tells me he's intrigued by my case because I don't fit any classic case at all. Wierd.
Anyhow, that's how I "don't feel" if you will.
Hope I answered a question.
Kathy

I am currently at the Mayo Clinic in Florida, in the epilepsy monitoring unit. They hook you up to an EEG and an EKG, and they take video surveilance. You stay in the hospital for a few days, and they do different tests to see if they can make you have an "episode." Then they get it on video and on the monitors and can help determine if it is seizure activity or not. So far everyone is very nice, eventhough their job us to stress my system!

I highly recommend this kind of monitoring for people that can't determine a specific trigger (it's hard to have an episode "on demand" if you don't know what's causing them!), and aren't getting the answers they need.

Wish me luck, and good luck to you too!