Joined: 18 Jun 2004 Posts: 2 Location: Sarasota,Florida
Is Anybody Receiving Treatment For Secondary Mds? Posted: 06-18-04 14:57pm
I am a 67 year old man who was treated for
lymphoma with chemotherapy--now in
remission for 2 1/2 years. The
chemotherapy resulted in secondary
myleodysplasia sydrome (mds), precancerous
blood disorder, which can lead to
leukemia. I am considering becoming part
of a trial mini stem cell transplant with
my brother who is a match. I am having a
consultation at nih about becoming part of
a mini stem cell transplant research
trial. Has anybody had such a treatment
and what was your experience with it? Was
it successful? Or does anybody know of
someone who has this diagnosis who has
been successfully treated with anything
else. I am due to go up to this
consultation on july 2nd, and would love
to go armed with information of
others'experience with treatment for this
diagnosis.
Thank you in advance for taking the time
to read and share your information with
me. I am really eager for your
information. I have been to several
"experts" on this disorder. But would
love to hear patient experience.
Appreciatively,
father larry
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marge
New User, Becoming EHEALTHy
Joined: 19 Jun 2004 Posts: 1 Location: Gainesville, Ga
Mds Posted: 06-19-04 19:27pm
Hi, my husband harry was diagnosed with
mds in feb. But his is not secondary. He
had intense chemo in april and we are
presently waiting for a donor so he can
get a mini bone marrow transplant. He is
not doing very well at this time and we
are praying emory hosp. Will soon find a
donor. Harry is 61 and from what I have
read, this is the common age for this
disease with no known cure and mainly
found in males. I have gone to many sites
on the web and read as much as I can find
on this disease. You are blessed to have
a brother, as I understand that is the
closest match for a donor and I am sure
you will recover without a problem. Harry
does not have a brother so finding the
right donor is a very long wait or it
seems that way. Keep your spirits up, and
good luck.
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Father Larry
New User, Becoming EHEALTHy
Joined: 18 Jun 2004 Posts: 2 Location: Sarasota,Florida
Reply to Marge About Bone Marrow Transplant Posted: 06-19-04 19:42pm
Dear marge, I thank you for answering my
topic. I am sorry to hear that your
husband is not doing well and I hope that
a donor will be found for him. I,too,
have been doing a lot of reading about
mds. Your husband is lucky that his is
not secondary mds because, from my
reading, it is more"intractable " to
treatment. We have to look on the bright
side of each of our situations to get the
strength to keep on keeping on. So,god
bless you, and I will let you know what
happens when I return from my
consultation at nih about our decision
about having a mini stem cell
transplant.
Sincerely,
father larry
