I had my first seizure when I was 15 in
the back of my dad's car. First off...Not
fun times. Later I was diagnosed and put
on topamax and, along with many other side
effects, I started hiccupping once every
half an hour. So I got taken off topamax
and went on lamictal. Many of my side
effects went away except for the hiccups!
They were less frequent though. I went
from one every half an hour to about one
an hour. Now I have lived with this weird
constant hiccup for about 3 years. I have
given up wondering if it will every go
away and I have learned to deal with the
stares, the snickers, and the laughs. All
I want to know is...Is there anyone out
there that hiccups as well?? I mean one
person that knows what I go through day in
and day out. When I told my neurologist
about the hiccupping problem, he said it
was weird and he'd never heard about it
before. But, please is there someone else
here with me on this?
~granola-hippy
I know hiccup is a very annoying
experience... The only thing I can help
you is (since u said u continuosly having
hiccup problems... Everyday)
trying to implant a vagus nerve stimulator
inside your body...
(please go to google news and type, "vns
therapy" for additional info)
and please note because I can't post any
link here...
I wish you good luck with your seizure
and/or hiccups.
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shrek
New User, Becoming EHEALTHy
Joined: 29 Jun 2004 Posts: 5 Location: Land of Lincoln
Hiccups... Posted: 06-29-04 22:09pm
Hi there my best friend age of 16 is
epileptic she has the same problem with
the hiccups. Hers start about every half
hour and last for about 5-10 min.. And
she is on a real high dose of topamax...
She was getting really freaked out about
it..
If u find anything out plz let me kno....
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pharmainvextor12
New User, Becoming EHEALTHy
Joined: 29 Jun 2004 Posts: 8
Go to Google News Type: Vns Therapy Posted: 06-29-04 22:58pm
Then u will find an article a man had the
same hiccup problems like your friend (but
he is much worst than you, he had
experienced hiccups for more than 20
years...)
once the vagus nerve stimulator device was
implemanted inside his body, his 20 years,
devastating, hiccups problems were over!
I hope your friend should try the vns
therapy if other drugs didn't do well for
him or her...
Why not give your friend a try to vns
therapy?
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shrek
New User, Becoming EHEALTHy
Joined: 29 Jun 2004 Posts: 5 Location: Land of Lincoln
Vns Therapy..not As Good As They Sound Posted: 06-29-04 23:20pm
This is not as good as it may sound..
My friends mom is also and eptelptic..Her
mother had, had the vagus nerve
stimulation surgery done..And its not all
peaches and cream... They say that it
makes ur mood better, and it changes they
way u think..Her moods got worse and she
begain to be more suicidel.. They only
way to stop the seizure is by waving the
magnet over the battery..So yeah it will
stop u from having a seizure if you feel
it coming on..But if you dont fell the
seizure coming then there is no way in
stopping it.. For some yeah it may be
good if u have someone else around u at
all times, that knows how to act while u
go into a seizure and how to correctly use
the magnet....
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pharmainvextor12
New User, Becoming EHEALTHy
Joined: 29 Jun 2004 Posts: 8
Vns Therapy: Not Completely Cure: Posted: 06-29-04 23:31pm
Hi there,
statistics show that vns therapy works for
33% of patients with gradual recovery of
seizures, 33% of patients with mood
improve and 33% of patients have seizures
remained and may become worst... (time
also play an important role, some patients
with vns treatment in 2 years, some in 1
year...)
so that really depends if the patient is
"lucky or not"
