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Conditions and Diseases > Lupus Forum > I'm Not Sure If...
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Q: I'm Not Sure If...
asked by: ginisue on September 19th, 2003
New User
I'm not sure if I have I have lupus, but I have alot of the symptoms. Maybe someone could advise me on what to do, who to see? I go through periods of times when my hair falls out, it gets very thin. I get terrible headaches, where I have to take pain medication several times a day(i am otherwise not big on taking anything unless I really need it). I also get very tired . When I go out in the sun without sunscreen I get little bumps sort of like pimples or blisters and they itch so bad I practically scratch my skin off, they last for a week or 2. Some of my joints hurt. Specifically my knees, fingers and some parts of my feet. My back hurts everyday upon rising. I thought maybe I was getting arthritis. But i'm only 41. I rarely have day when I do not have diarrhea and heartburn. My memory is shot. My husband thinks i've become an airhead. I do too. About 4 months ago I thought there was something really wrong with my heart. I had some pain. It was fluttering. Very often. I went to a gp, he did a bunch of tests. Said my liver and thyroid were good. Cholesterol levels were ok, 192. Sent me to a hospital to have a stress test which they said was fine also. By the way I didn't tell the gp about all the other symptoms because I didn't think they were related. I did tell him that I had stopped using anything with aspartame because I thought that was the cause of the headaches and hairloss. When I quit using these products my headaches lessened and my hair started growing in thicker. I thought it was the aspartame. But 3 weeks ago my hair started falling out again. Again the headaches. And all these other symptoms. So I went online singly checking on different things, photo sensitivity, hair loss etc and lupus is what I see in common. I am scared. Who do I see? What kind of doctor do I see? I have good health insurance. Blue cross ppo.
There is one more symptom that really scares me. At night when I lay down in bed, it feels like there is alot of air or liquid moving around just below my ribs. It kind of feels like when you are 9 mos. Pregnant and the baby is moving around under your rib cage. Feels very strange. The worst thing is I don't know what it is. Does anyone else have that?
I've had some of these symptoms for years.
Please advise me.
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LadyBrannon
replied on September 20th, 2003
Active User, very eHealthy
Lupus?
Hi there!

1) get yourself a notebook and write down everything!

2) keep this diary...Forever! Also, the first time you go to the doctor, you most likely will not get a diagnosis.

3) see a rheumatologist! Ask around and see who is recommended in your area. Www.Lupus.Org should have a doctor section, if you want to use some online resources.


Do not try to diagnose yourself. See a rheumatologist.

As for the weird feeling in your chest...Are you swelling? Do you have edema? That can cause that kind of feeling...Also, sometimes your medicines can cause you to swell like that. I would suggest mentioning it to the gp immediately.


We are here to help...We'll help anyway that we can!

Welcome,
ladybrannon Cool
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