Is your neuro willing to try you on some other meds? From what I read about tegretol, it is supposed to be helpful in controlling hypomania (as in the high end of bipolar disorder) which has many similarities to hyperactivity. I'm thinking you said on another post that this is something you may suspect in yourself. It isn't all that uncommon in epilepsy. (just a thought-- certainly not a diagnosis, by any means).
Here's a thought too: you may consider charting your moods and/or odd behaviors daily. It would be something you could bring with you to your next doctor visit and would carry more weight than a few anecdotes here and there.
Here's one method of measuring them:
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mazmanian mania-depression mood scale
mood scale
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manic delirium: 5
altered consciousness
hallucinations, incoherent, or disorganized speech
disoriented
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manic out of control: 4
crying, unreasonable, screaming
flight of ideas
grandiose delusions
hallucinations
swearing, threatening or lashing out
no need of sleep
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overactive, disinhibited: 3
very expansive
poor concentration, pressured speech, grandiose
quickened pace, disinhibited, decreased decorum
little need for sleep
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agitated loud: 2
elevated mood, inflated self esteem, expansive
apprehensive, unwarranted optimism, overconfident
active, verbally loud
less need for sleep
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irritable, aroused: 1
short-tempered, mild mood elevation, guarded attitude
distractable, confident, optimistic
guarded body language
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euthymic: 0
appropriate mood, no suicidal thoughts
normal speech, normal thought, guilt absent
no anxiety
no sleep difficulties, no somatic complaints
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withdrawn quiet: -1
mildly depressed, loss of satisfaction, feels weak
slight retardation, self-reproach, altered eating
slightly withdrawn, slight tension, figety, irritable
minor somatic complaints, fatigued, restless sleep
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mild depression: -2
looks sad
obvious retardation, pessimistic
avoids others, minimal responses, worried
plays with hands or hair
frequency somatic complaints
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moderate depression: -3
apprehensive, hopeless, suicide plan
poor concentration, obsessive guilt
isolates self, lethargic, non-functional
somatic preoccupation, major sleep difficulty
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severe depression: -4
extremely hopeless, serious suicide attempt
delusional guilt, unable to concentrate
no activities, severe agitation
somatic delusions, unable to sleep even with meds
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depressive stupor: -5
emotional paralysis
accusatory hallucinations
stupor or mute
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